MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile
MPNAdvocatesNetwork

@gmpnan

Global Patient Advocacy Network for Myleoproliferative Neoplasms

ID: 881583742468227072

linkhttp://www.mpn-advocates.net calendar_today02-07-2017 18:41:58

878 Tweet

702 Followers

168 Following

Silence Therapeutics (@silencetheraplc) 's Twitter Profile Photo

On #RareDiseaseDay, we honor those living with #PolycythemiaVera (PV). Mindfulness, and self-care can bring comfort on your journey. We've created a free Mindfulness Coloring Book with suggestions for managing PV. Get yours by contacting MPN Voice, MPNAdvocatesNetwork or @mpn research

On #RareDiseaseDay, we honor those living with #PolycythemiaVera (PV). Mindfulness, and self-care can bring comfort on your journey. We've created a free Mindfulness Coloring Book with suggestions for managing PV. Get yours by contacting <a href="/MPNVoice/">MPN Voice</a>, <a href="/GMPNAN/">MPNAdvocatesNetwork</a> or @mpn research
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢 Join our upcoming webinar! Dr. Serge Verstovsek, Kartos’ Chief Medical Officer will share the background and design of the POIESIS trial. 🗓Date: 31 March 2025 ⏰Time:6 PM CET 📍Zoom Webinar 🔗 Register TODAY: us06web.zoom.us/meeting/regist… #MPN #Myelofibrosis #ClinicalTrials

📢 Join our upcoming webinar! 
Dr. Serge Verstovsek, Kartos’ Chief Medical Officer will share the background and design of the POIESIS trial.
🗓Date: 31 March 2025
 ⏰Time:6 PM CET
 📍Zoom Webinar
🔗 Register TODAY: us06web.zoom.us/meeting/regist…
#MPN #Myelofibrosis #ClinicalTrials
ESH (Haematology) (@eshaematology) 's Twitter Profile Photo

Welcome to #ESCMLMPN2025! Stay tuned! ESH Young Scientific Reporters Laura Li Gagnon Elena Torre will provide regular updates on the conference! ➡ bit.ly/4cjz0oy Chairs: Claire Harrison, Andreas Hochhaus, Ruben Mesa Ruben A. Mesa, MD #ESHCONFERENCES #MPNsm #CMLsm #HAEMATOLOGY

Welcome to #ESCMLMPN2025!
Stay tuned! ESH Young Scientific Reporters <a href="/lauraligagnon/">Laura Li Gagnon</a> <a href="/Elena_Torre_/">Elena Torre</a> will provide regular updates on the conference!
➡ bit.ly/4cjz0oy
Chairs: <a href="/harrisoncn1/">Claire Harrison</a>, <a href="/AndreasHochhaus/">Andreas Hochhaus</a>, Ruben Mesa <a href="/mpdrc/">Ruben A. Mesa, MD</a>
#ESHCONFERENCES #MPNsm #CMLsm
#HAEMATOLOGY
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢 DON'T MISS OUT! 📢 Join our upcoming webinar: “The POIESIS Trial for Patients with Myelofibrosis” 🗓 Date: 31 March 2025 ⏰ Time: 6 PM CET 📍 Zoom Webinar 🔗 Register TODAY: us06web.zoom.us/meeting/regist… #MPN #Webinar #ClinicalTrials

📢 DON'T MISS OUT! 📢
Join our upcoming webinar: “The POIESIS Trial for Patients with Myelofibrosis”
🗓 Date: 31 March 2025
⏰ Time: 6 PM CET
📍 Zoom Webinar
🔗 Register TODAY: us06web.zoom.us/meeting/regist…
#MPN #Webinar #ClinicalTrials
Viji Venkatesh 🇮🇳 وجی وینکٹیش (@vijivenkatesh) 's Twitter Profile Photo

And we conclude in Dubai a two day intense and packed weekend meeting of the Executive Committee of the MPNAdvocatesNetwork MPN Advocates Network. Amidst other responsibilities we have created a very interesting agenda for the upcoming MPN Horizons meeting coming up later this year.

And we conclude in Dubai a two day intense and packed weekend meeting of the Executive Committee of the <a href="/GMPNAN/">MPNAdvocatesNetwork</a> MPN Advocates Network. Amidst other responsibilities we have created a very interesting agenda for the upcoming MPN Horizons meeting coming up later this year.
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

We're sharing important update from our friends at MPNAA, featuring haematologist Dr Cecily Forsyth, discussing the global Pegasys shortage & practical strategies for patients & physicians to navigate this challenging time. 🎥 Watch now: mpnallianceaustralia.org.au/pegasys-shorta… #MPN

MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📣 New FREE Online Course: “Interaction with Newly Diagnosed Patients” 🗓 Starts April 26 🔗 REGISTER NOW HERE: docs.google.com/forms/d/e/1FAI… #MPN #PatientAdvocacy #BloodCancer #MPNAdvocates #CML #CLL #Leukemia #PatientSupport #OnlineCourse #PatientVoice #HealthcareAdvocacy #BCPAA

📣 New FREE Online Course: “Interaction with Newly Diagnosed Patients”
🗓 Starts April 26 

🔗 REGISTER NOW HERE: docs.google.com/forms/d/e/1FAI…

#MPN #PatientAdvocacy #BloodCancer #MPNAdvocates #CML #CLL #Leukemia #PatientSupport #OnlineCourse #PatientVoice #HealthcareAdvocacy #BCPAA
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢Have you registered?! ⏳ Our FREE online course “Interaction with Newly Diagnosed Patients” starts April 26 – don’t miss out! 💻 100% online | 🌍 Open to all advocates | 🎓 Free of charge 📝 Register now: docs.google.com/forms/d/e/1FAI… #BCPAA #PatientAdvocacy

📢Have you registered?!
⏳ Our FREE online course “Interaction with Newly Diagnosed Patients” starts April 26 – don’t miss out!

💻 100% online | 🌍 Open to all advocates | 🎓 Free of charge

📝 Register now: docs.google.com/forms/d/e/1FAI…

#BCPAA #PatientAdvocacy
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢If you haven't registered as yet for our FREE online course, there is still time to!! ⏳ “Interaction with Newly Diagnosed Patients” starts April 26 – don’t miss out! 📝 Register now: docs.google.com/forms/d/e/1FAI… #BCPAA #PatientAdvocacy #BloodCancerSupport #NewlyDiagnosed

📢If you haven't registered as yet for our FREE online course, there is still time to!!
⏳ “Interaction with Newly Diagnosed Patients” starts April 26 – don’t miss out!

📝 Register now: docs.google.com/forms/d/e/1FAI…

#BCPAA #PatientAdvocacy #BloodCancerSupport #NewlyDiagnosed
Viji Venkatesh 🇮🇳 وجی وینکٹیش (@vijivenkatesh) 's Twitter Profile Photo

As patients and their caregivers walked in there was this great sense of satisfaction and relief that we were doing the right things By the end we were all part of a new family . #MPN Support Group in Bangalore at St John’s. Together We Share & Learn Friends Of Max MPNAdvocatesNetwork

As patients and their caregivers walked in there was this great sense of satisfaction and relief that we were doing the right things By the end we were all part of a new family . 
#MPN Support Group in Bangalore at St John’s.
Together We Share &amp; Learn 
<a href="/Friends_Of_Max/">Friends Of Max</a> <a href="/GMPNAN/">MPNAdvocatesNetwork</a>
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢 Missed our webinar? The recording is now available! 🎥 Look at key insights into the POIESIS trial - a global Phase 3 study for myelofibrosis patients. ▶️ Watch now: vimeo.com/manage/videos/… 🌍 Translations in more languages coming soon! #ClinicalTrials #MPN #PatientEducation

📢 Missed our webinar?
The recording is now available! 🎥
Look at key insights into the POIESIS trial - a global Phase 3 study for myelofibrosis patients.
▶️ Watch now: vimeo.com/manage/videos/…
🌍 Translations in more languages coming soon!
#ClinicalTrials #MPN #PatientEducation
MPNAdvocatesNetwork (@gmpnan) 's Twitter Profile Photo

📢 Upcoming webinar by MPN Research Foundation: FDA 101 🗓️ Thursday, June 5 ⏰ 5 – 6 PM CT 📍 Virtual | Free to attend | Recording available afterward This session will feature FDA expert Sara Wicks! Register here: us02web.zoom.us/webinar/regist… #MPN #PatientEducation #PatientAdvocacy #webinar

📢 Upcoming webinar by <a href="/MPN_RF/">MPN Research Foundation</a>: FDA 101
🗓️ Thursday, June 5
⏰ 5 – 6 PM CT
📍 Virtual | Free to attend | Recording available afterward

This session will feature FDA expert Sara Wicks!

Register here: us02web.zoom.us/webinar/regist…

#MPN #PatientEducation #PatientAdvocacy #webinar
Friends Of Max (@friends_of_max) 's Twitter Profile Photo

Date: Saturday, 17 May 2025 Timing: 10.30 AM to 1.00 PM Venue: Lecture Hall, 2nd Floor, Golden Jubilee Building, Tata Memorial Hospital, Parel, Mumbai 400012 Invite all patients with caregivers to come and join. Tata Memorial Hospital MPNAdvocatesNetwork Viji Venkatesh 🇮🇳 وجی وینکٹیش AlokShetty Lingaraj Nayak

Viji Venkatesh 🇮🇳 وجی وینکٹیش (@vijivenkatesh) 's Twitter Profile Photo

The #MPN Support Group Meeting gets underway with patients & caregivers registering before breaking fast over delicious Poha and garam chai ! Thank you AlokShetty Manju Sengar Tata Memorial Hospital for facilitating this all important intervention for us The Max Foundation Friends Of Max

The #MPN Support Group Meeting gets underway with patients &amp; caregivers registering before breaking fast over delicious Poha and garam chai ! Thank you <a href="/DrAlokShetty/">AlokShetty</a> <a href="/ManjuSengar7/">Manju Sengar</a> <a href="/TataMemorial/">Tata Memorial Hospital</a> for facilitating this all important intervention for us <a href="/themaxfndn/">The Max Foundation</a> <a href="/Friends_Of_Max/">Friends Of Max</a>
MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo

MPNs don’t appear overnight — mutations like JAK2 V617F can start decades before symptoms. Over time, mutant stem cells outcompete healthy ones, reshaping the bone marrow. Donate to research: goto.mpnresearchfoundation.org/4js24x1  #MPNResearch #FoundationForward #BloodHealth

MPNs don’t appear overnight — mutations like JAK2 V617F can start decades before symptoms. Over time, mutant stem cells outcompete healthy ones, reshaping the bone marrow. Donate to research: goto.mpnresearchfoundation.org/4js24x1 

#MPNResearch #FoundationForward #BloodHealth