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Our vision is that anyone affected by a genetic condition receives the support and information they need at the time they need it and in a form they can use. Together, we are Gene People.

We are delighted that The Aortic Dissection Charitable Trust Aortic Dissection Medical & Patient Charity - UK and Ireland is the newest partner in the Partnership Network. Welcome!

Hi All A reminder that the Gene People Helpline will be closed for spring leave until 23rd April. Voicemails and emails can still be left during that time and will be responded to as soon as possible. Thanks in advance.

#thankyouthursday Thank you to the ABPI for inviting our CEO Samantha to speak on a panel at their annual conference about growth with Lord Harrington. It's great to have user representation at events like these!

Happy Easter, from all of us at Gene People!

Hi All A reminder that the Gene People Helpline is closed for spring leave until 23rd April. Voicemails and emails can still be left during that time and will be responded to as soon as possible.

Progress has been made with the World Health Authority recommending the adoption of the Resolution on Rare Diseases and the global rare disease community. rarediseasesinternational.org/wp-content/upl…

Following the announcement of integrating NHS England into the DOHSC, Genetic Alliance UK, The Neurological Alliance, and the Specialised Health Care Alliance have sent an open letter to the Rt Hon. Wes Streeting MP and Sir James Mackey. shca.info/wp-content/upl…

Our genetic counsellor-led helpline service is available for all. Call us on: 0800 987 8985 Email Us: helpline\genepeople.org.uk Contact form: buff.ly/3OI6ws6 #geneticconditions #support #genetics

Have you seen the new report from our friends Sense called 'From crisis to care: making social care work for disabled children'? If not, do have a look. sense.org.uk/about-us/resea…

🎉 Calling all birthday champions! 🎉 Are you looking for a meaningful way to celebrate your special day this year? Why not host a birthday fundraiser for Gene People?! Get started today by setting up your fundraiser and spreading the word. buff.ly/4dkCzv0 🎂💖

Gene People representing the community in May! Gene People will be attending a few events this month to represent our community. These include a workshop on the NHS Commercial Framework for New Medicines and the Scottish Strategic Network for Genomic Medicine.

Prescriptions charges have been frozen for the first time in three years in a welcome move from the government to help people during the ongoing cost of living crisis.- GOV.UK

#thankyoufriday Thanks so much to Aaron and Tim who both ran the TCS London Marathon last week, in aid of Gene People. They both did brilliantly and ran sub 4 hour times which is an amazing achievement! Well done to both of you! We look forward to sharing pictures soon!

We are delighted to welcome the newest member of the Gene People Partnership Network. MED13L UK ( MED13L UK) has joined this fantastic community and we look forward to working together.

Dave McCormick (aka Twin Castor) and Bryan Matthews (aka The Rayne) have released a single called The A, the C, the G, the T which celebrates the extraordinary science behind the world of genomics medicine Spotify open.spotify.com/track/5Ebuq0ig… Apple Music music.apple.com/us/album/the-a…

Congratulations to Aaron and Tim who both ran the TCS London Marathon recently on behalf of Gene People. We finally got the pictures of them in action, running sub 4 hour times. We are so proud of them and really grateful for their support!

🌟 Birthdays are a time to celebrate and to give back. Let's make your birthday count by spreading good for people living with genetic disorders 🎂💖 #BirthdayFundraiser #SpreadKindness

Have you, or has someone you know, been newly diagnosed with a genetic condition? Visit our website to find out how you can best access support genepeople.org.uk/support-and-in…

Living with a genetic condition can feel isolating, but you are never alone. Our helpline connects you with a caring community of individuals who understand your journey and are here to offer support, encouragement, and solidarity. #SupportHelpline #GeneticCondition