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The opportunity to correct a serious disconnect in how people with Down syndrome are valued within society. Someone at some point made a decision to limit outcomes for people with Down syndrome - this firmly says, ‘not anymore’ - this is not political this is about people! #NC41

Great work in Cornwall from our founding officer Angie who is supporting people with learning disabilities to understand and participate in this year’s General Election. itv.com/news/westcount…

Delighted to relaunch the APPG for Down Syndrome with excellent cross party support, welcoming our new co-chairs, Damian Hinds Andrew Cooper MP Thanks to our new members & National Down Syndrome Policy Group & particularly our policy network leaders, fionnathan, Ed florence garrett for their informative presentation.

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Well done Billy, proud of you!

Productive @APPGD UK House of Commons with valuable contributions from @DownsCheshire & National Down Syndrome Policy Group Advisory Group highlighting their day to day challenges with education, employment, housing & healthcare. David Goss Jack Rankin MP 🇬🇧 Andrew Cooper MP Baroness Hollins Damian Hinds

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Very proud of these young men- Outstanding Young Person Award #suttoncommunityawards2024 well done Billy and Ben!

Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆 A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024 #OutstandingYoungPerson #HASU

Great job!

Get on Down’s supports this National Down Syndrome Policy Group Bobby Dean MP 🔶

Our open letter supported by 62 groups across UK representing interests of disabled people highlights need for cautious, inclusive & comprehensive examination of assisted dying proposals ndspg.org/wp-content/upl…

Nearly two thirds of respondents Royal College of Psychiatrists are not confident that consent can act as a safeguard. "This bill should be overwhelmingly rejected" say leading expert psychiatrists. #AssistedDying Kim Leadbeater MBE MP Danny Kruger Lord (David) Alton Rosa Monckton

Thank you to MPs who supported the APPG for Down Syndrome @grahamstuartMP call for a UK House of Commons debate highlighting widespread concerns with the Down Syndrome Act Guidance #DownSyndromeAct #FitForPurpose  Damian Hinds Sir Liam Fox Bobby Dean MP 🔶

Thank you all for your support, big thanks to Bobby Dean MP 🔶 National Down Syndrome Policy Group

Fabulous Fionn!

Great response from a letter by a member of the National Down Syndrome Policy Group Advisory group East Lancashire DS Thanks Andy MacNae MP for listening.

Disappointing that the #DownSyndromeAct guidance is yet further delayed, but this provides an additional opportunity for the Department of Health and Social Care to listen to ongoing concerns about the content & work productively with stakeholders to create robust & meaningful guidance, now long overdue.

Looks like it was a very productive meeting. Good to see florence garrett from the National Down Syndrome Policy Group Advisory Group sharing ICB information.

Another successful meeting, looking forward to the public consultation and hopefully a powerful and useful #DownSyndromeAct Stephen Kinnock APPG for Down Syndrome