Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile
Global Sickle Cell Disease Network

@globalscdn

The Global Sickle Cell Disease Network is a platform for resources and engagement for researchers, clinicians & organizations advancing work of SCD in LMICs.

ID: 36741320

linkhttp://www.globalsicklecelldisease.org calendar_today30-04-2009 18:59:47

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828 Followers

221 Following

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

📣The 5th Global Congress on Sickle Cell Disease is taking place in Abuja, Nigeria, from June 3–6, 2025. Register now to attend! 🗓️Early bird pricing ends on Feb. 28➡️: tinyurl.com/574y6zv7 #SCD #SCDCare #SickleCellAdvocate #SickleCellResearch #SickleCellDisease

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

The 5th Global Congress on Sickle Cell Disease is happening in Abuja, Nigeria, from June 3–6, 2025! Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care. Learn more & register now➡️ tinyurl.com/2ke36h7h #SCD #SCDCare #SickleCellResearch

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

Have you registered yet? The 5th Global Congress on Sickle Cell Disease is fast approaching — June 3–6 in Abuja, Nigeria. Don’t miss an incredible lineup of experts sharing the latest in #SickleCell research & care➡️: tinyurl.com/2ke36h7h #SCD #SCDCare #SickleCellResearch

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

📣The theme for the 5th Global Congress on Sickle Cell Disease is: Working Together to Reduce the Burden of Sickle Cell Disease: Leaving No One Behind. Join #SCD care professionals, researchers & advocates from around the 🌍 — register: tinyurl.com/3pd8bey2 #SCDCongress2025

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

The Congress provides a unique opportunity to come together to share ideas & drive real progress in the diagnosis, treatment & care of people living with #sicklecelldisease. Don't miss the powerful lineup of plenary sessions being offered. Learn more➡️: tinyurl.com/2ke36h7h

The Congress provides a unique opportunity to come together to share ideas & drive real progress in the diagnosis, treatment & care of people living with #sicklecelldisease. Don't miss the powerful lineup of plenary sessions being offered. Learn more➡️: tinyurl.com/2ke36h7h
SickleInAfrica (@sickleinafrica) 's Twitter Profile Photo

SickleInAfrica will be at the 5th Global Congress on Sickle Cell Disease in Abuja, Nigeria (June 3–6). Our members will be presenting in several sessions. Here are some highlights (more loading..) Attending the congress? We would love to connect! Please come say hi. #GCSCD2025

SickleInAfrica will be at the 5th Global Congress on Sickle Cell Disease in Abuja, Nigeria (June 3–6). Our members will be presenting in several sessions. Here are some highlights (more loading..) Attending the congress? We would love to connect! Please come say hi. #GCSCD2025
Muhammad Ali Pate (@muhammadpate) 's Twitter Profile Photo

Today in Abuja, I had the honour of addressing delegates from over 60 countries at the 5th Global Congress on Sickle Cell Disease Global Sickle Cell Disease Network. This gathering could not have come at a more critical time. As Nigeria deepens implementation of the National Health Sector Renewal

Today in Abuja, I had the honour of addressing delegates from over 60 countries at the 5th Global Congress on Sickle Cell Disease <a href="/GlobalSCDN/">Global Sickle Cell Disease Network</a>. This gathering could not have come at a more critical time. As Nigeria deepens implementation of the National Health Sector Renewal
Uganda Sickle Cell Rescue Foundation (@uscrfuganda) 's Twitter Profile Photo

This week we sent our Community Engagement Officer Musiimenta Euniky to the 5th Global Congress on Sickle Cell Disease hosted at Abuja Continental Hotel in Abuja Nigeria from 3rd June to 6th June 2025. Quite an honorable experience with an international discussion on SCD

This week we sent our Community Engagement Officer Musiimenta Euniky to the 5th Global Congress on Sickle Cell Disease hosted at Abuja Continental Hotel in Abuja Nigeria from 3rd June to 6th June 2025. 

Quite an honorable experience with an international discussion on SCD
Uganda Sickle Cell Rescue Foundation (@uscrfuganda) 's Twitter Profile Photo

Second Day was about engagement with different partners and organization representatives at the Global congress. Learning different modules on management, treatment, preventive and advocating methods that they use in different countries to combat SCD

Second Day was about engagement with  different  partners and organization representatives at the Global congress.

Learning different modules on management, treatment, preventive and advocating methods that they use in different countries to combat SCD
Uganda Sickle Cell Rescue Foundation (@uscrfuganda) 's Twitter Profile Photo

The 5th Global Congress on Sickle Cell Disease that happened last week was also about linkages and partnerships Among the linkages was the Nortvartis Team and National coordinator of sickle cell Dr. Kiyanga Ministry of Health and VP Journeys By Grace, Ms. Kisha Chempton

The 5th Global Congress on Sickle Cell Disease that happened last week was also about linkages and partnerships 
Among the linkages was the Nortvartis Team and National coordinator of sickle cell Dr. Kiyanga Ministry of Health and VP Journeys By Grace, Ms. Kisha Chempton
Uganda Sickle Cell Rescue Foundation (@uscrfuganda) 's Twitter Profile Photo

On the 4th day of the 5th Global Congress on Sickle Cell Disease, we linked up with the First African Sickle Cell Patient to get cured using Gene therapy A beacon of hope to all Sickle Cell Warriors out there.

On the 4th day of the 5th Global Congress on Sickle Cell Disease, we linked up with the First African Sickle Cell Patient to get cured using Gene therapy

A beacon of hope to all Sickle Cell Warriors out there.
Isaac Odame (@drodame) 's Twitter Profile Photo

Today is World Sickle Cell Awareness Day. Untreated, sickle cell anemia results in > 45 years of healthy life lost. That’s why early diagnosis and hydroxyurea treatment should be the standard of care regardless where patients live in the world.

World Health Organization (WHO) (@who) 's Twitter Profile Photo

Today is #SickleCell Awareness Day 🩸 40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today. This means more health workers – inc. maternity providers - need to know how

Today is #SickleCell Awareness Day 🩸

40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today.

This means more health workers – inc. maternity providers - need to know how
SickKids Global Child Health (@sickkidsglobal) 's Twitter Profile Photo

Today is #WorldSickleCellDay🩸! Join SickKids Global Child Health & WCEA (World Continuing Education Alliance) for a special webinar on access to hydroxyurea for people with sickle cell disease. Hear from one of the world’s leading voices on #SickleCellDisease, Dr. Isaac Odame, Hematology Section Head in the Division

Today is #WorldSickleCellDay🩸! Join <a href="/SickKidsGlobal/">SickKids Global Child Health</a> &amp; <a href="/WorldCEAlliance/">WCEA (World Continuing Education Alliance)</a> for a special webinar on access to hydroxyurea for people with sickle cell disease.

Hear from one of the world’s leading voices on #SickleCellDisease, Dr. Isaac Odame, Hematology Section Head in the Division
Isaac Odame (@drodame) 's Twitter Profile Photo

Today, World Sickle Cell Awareness Day, we should double efforts to surmount the diagnosis barrier in LMICs. Accurate point-of-care tests are available to supplement lab techniques like isoelectric focusing/electrophoresis. Early diagnosis matters! Global Sickle Cell Disease Network SickKids Global Child Health

Isaac Odame (@drodame) 's Twitter Profile Photo

Management of sickle cell crises alone is inadequate to achieve best outcomes for patients with sickle cell disease. Patients should ask their providers about hydroxyurea, an effective disease-modifying treatment. Global Sickle Cell Disease Network SickKids Global Child Health

Global Sickle Cell Disease Network (@globalscdn) 's Twitter Profile Photo

Thanks to all who joined the 5th Global Congress on #SickleCellDisease June 3–6! From powerful conversations to global collaboration, your participation & engagement are helping to drive #SCD care, education, advocacy & research forward.#GlobalSCDCongress2025 #SickleCellAwareness

Thanks to all who joined the 5th Global Congress on #SickleCellDisease June 3–6! From powerful conversations to global collaboration, your participation &amp; engagement are helping to drive #SCD care, education, advocacy &amp; research forward.#GlobalSCDCongress2025 #SickleCellAwareness
World Health Organization (WHO) (@who) 's Twitter Profile Photo

Many pregnant and breastfeeding women cannot be sure that their needed medications are safe for them – inc. for diseases like #SickleCell - because of exclusion of these groups from clinical trials. A new global Task Force aims to accelerate ethical inclusion in research, for

SickKids Global Child Health (@sickkidsglobal) 's Twitter Profile Photo

Today is #WorldSickleCellAwarenessDay🩸! SCD is one of the most common genetic diseases worldwide. To mark this important day, SickKids Global Child Health's Isaac Odame led a special global webinar, co-hosted by the Centre & the WCEA (World Continuing Education Alliance), delivering a talk entitled, "Hydroxyurea —

Today is #WorldSickleCellAwarenessDay🩸! SCD is one of the most common genetic diseases worldwide. To mark this important day, <a href="/SickKidsGlobal/">SickKids Global Child Health</a>'s <a href="/DrOdame/">Isaac Odame</a> led a special global webinar, co-hosted by the Centre &amp; the <a href="/WorldCEAlliance/">WCEA (World Continuing Education Alliance)</a>, delivering a talk entitled, "Hydroxyurea —
SickKids Global Child Health (@sickkidsglobal) 's Twitter Profile Photo

To celebrate #WorldSickleCellAwarenessDay🩸, SickKids Global Child Health's partners in the Community-based SCD Care & Screening capacity building project, Maamobi General & Princess Marie Louise hospitals, hosted community SCD awareness events in Accra, Ghana!🇬🇭 Learn more:

To celebrate #WorldSickleCellAwarenessDay🩸, <a href="/SickKidsGlobal/">SickKids Global Child Health</a>'s partners in the Community-based SCD Care &amp; Screening capacity building project, Maamobi General &amp; Princess Marie Louise hospitals, hosted community SCD awareness events in Accra, Ghana!🇬🇭 Learn more: