A shout out to all healthcare professionals of goodwill

Tech Volunteers Rush to Save Turkey’s Earthquake Survivors wired.co.uk/article/tech-v… via WIRED UK

To mark International Angelman Day, we spoke with Margaux Vanham, whose son, Lucas, was diagnosed with the rare disease. Read about why sharing #HealthData and taking part in research studies is so important to families here. #AngelmanSyndrome #IAD2023 #ASFShowtheLove❤️

For any patient group representatives out there – what would be your greatest motivator in establishing a #PatientRegistry? #DSLChat

For any patient group representatives out there – what would be your greatest concern in establishing a #PatientRegistry? #DSLChat

HIRING | Are you looking for a #newjob? Be our #CapacityBuilding Assistant. The European Patients' Forum team is looking for a new colleague to assist in the roll-out of our Capacity Building activities. More about the #vacancy here: bit.ly/3ImE0ur 🗓️Deadline: 12 March 2023

[1/6] 📢 Did you read European Patients' Forum's February edition of The Patient Perspective? Stay updated and find the latest in the world of #patientadvocacy here. Read the thread for a roundup!

Delighted to be in the beautiful city of #Lisbon to host our second #DataSavesLives Bootcamp! We can't wait to meet our #PatientOrganisation ambassadors for 2 days of learning, collaboration and FUN as we discuss key #AI topics in #healthcare. Stay tuned!

🛟 Day 2 of the #DataSavesLives boot camp is underway! ▪️First, hearing from @MTrucl about European Patients' Forum work on #ArtificialIntelligence ▪️Then, playing a serious game via One Vision Health ▪️ and finally wrapping up these two days with the ambassadors and looking to the future!

📊 Muy contentos de participar en el #bootcamp de DataSavesLives en Lisboa 🇵🇹 sobre datos y transformación digital centrada en #salud. Estuvo coordinado por Gözde Susuzlu Briggs, Coordinadora de Proyectos de European Patients' Forum #pacientesPOP datasaveslives.eu

#EPF20 #20YearsStronger #FutureofPatientAdvocacy

"Where there is political will, a lot can happen" Maya Matthews mentions the importance of #patientengagement in #HTA during her keynote speech at #EPF20. This gives a nod to our new project #EUCAPA, a joint effort to build patient community capacity in HTA: bit.ly/3NfnsIW

🇪🇺 Celebrating #EuropeDay by supporting important causes! 🌍🤝 Today, I'm spending my Europe Day by preparing for a presentation and panel discussion representing DataSavesLives, taking place tomorrow. Stay tuned 🛟 #DataSavesLives

📢DataSavesLives News: "Our Health in the Cloud" report was launched today HIMSS European Health Conference & Exhibition Read the full report here ➡️bit.ly/42zn386 i~HD The Health Policy Partnership

👉EPF is travelling to Italy today! Why? Together with Made WITH Patients, EUPATI, and many others, we join the face-to-face edition of #PEOF, the Patient Engagement Open Forum. Curious to learn about what we are up to in the following days? Stay close for more!

✅Are you a #youngpatient advocate? ✅Are you between the ages of 18 and 29? ✅Are you passionate about building a better future for young patients? Then you may want to consider joining EPF Youth Group! #Applications remain open until 31 July. ➡️bit.ly/3peL5ru

📢 Today, we were at #ESMOGI to kick off our 8th annual Masterclass & we gather leading experts to discuss: 🔹Priorities for Digestive Health Research 🔹Tailored Treatment for Digestive Cancers 🔹Latest Updates from GI Cancer Congresses 2023 #DiCEMasterclass2023 #WCGIC2023

#RWE and #patientregistries are gaining a momentum as tools to inform regulatory and HTA decision making. DataSavesLives and EHDEN host a much needed bootcamp event for patient organisations.

"#EHDS approach to primary use of #healthdata holds a lot of tangible promises for patients. Secondary use will bring results in the longer run, as they won't be immediately visible to the public." says Gözde Susuzlu Briggs from the European Patients' Forum at #HIMSS24EUROPE.

“AI is math, not magic!” Eric Sutherland #DSL5 #datasaveslives DataSavesLives European Patients' Forum