A new app, the Hypermobility Assessment Tool, may aid in earlier and more accurate diagnosis of Ehlers-Danlos syndrome. buff.ly/Pq0h8Xc

Good to know! I’m just learning how my diagnosis affects my life.

US Job Accommodation Network (JAN) mentions #EDS in workplace for first time 2016: askjan.org/disabilities/E… #HMS #Fibro #MedEd #EhlersDanlos #disability #NEISvoid #Zebras #Spoonies

We recommend avoiding Cipro and all fluoroquinolones if you're hypermobile: ohtwist.com/avoid-cipro #EDS #HSD #Fibro #medicine #fibromyalgia #nurses #doctors #medicine #MedTwitter #MedEd #FOAMed #NEISvoid

From Diagnosis Odyssey to Scientific Vision: A New Genetics EDS Lab in Norway Opens Its Doors buff.ly/aqHppjM #EDS #EhlersDanlosSyndrome #hEDS #Hypermobility #HSD #Zebras #NEISVoid #Spoonies #Medicine #Genetics #Doctors #Research #MCAS #POTS #MedX

The cost of chronic illness isn't just physical. It's losing friends and family. Losing time. Losing dreams. Losing pieces of who you used to be. Losing hobbies. Losing jobs. Losing stability. All while being shamed for not "staying positive."

A new study suggests a possible link between Ehlers-Danlos syndrome and high pressure in the skull, seen in three U.S. women with EDS. buff.ly/kHTWjAI

Psychology cannot cure chronic pain. Psychology cannot cure chronic pain. Psychology cannot cure chronic pain. We don’t end the war, we provide the armor.

Interview with Georgina Frankie: Author of “The Chemistry Test”, a romance featuring an EDSer as protagonist without the pity: buff.ly/3503JKJ #EDS #hEDS #HSD #Hypermobility #Fiction #Romance #writing #Disability #Spoonies #Zebras #NEISvoid

🌪 Why Emotional Dysregulation Happens in ADHD, Autism and AuDHD For people with ADHD, autism, or AuDHD, emotions arrive faster, hit harder, and take longer to settle. Here’s what happens 👇 🔥 Faster emotional activation The amygdala, which detects emotion and social threat,

Is #hypermobility just a big red herring? I think so in 2021… ohtwist.com/the-hypermobil… #EDS #HSD #hEDS #EhlersDanlos #fibromyalgia #fibro #MedEd #FOAMed #MedTwitter #nurses #doctors #pain #rheumatology #genetics #NEISvoid

Happy CapyDay

My birthday is this month. All I want is to stay housed and fed and my kitties to stay fed. Even a share helps. Thank you so much

WTF!

Si queréis saber más dobre el #ehlersdanlos vascular, #veds, os recomiendo ver este webinar de @ansedh ansedh.org/webinar-sobre-…

Looking well doesn’t mean you are well, especially when you live with a condition like EDS or HSD. EDS is an invisible illness. You might look put-together, calm, and strong on the outside but still be dealing with dislocations, fatigue, brain fog, or internal pain. We need to

The MANY co-occurring conditions found in hypermobile & Ehlers-Danlos patients: ohtwist.com/about-eds/como… #EDS #HMS #fibromyalgia #medicine #MedEd #FOAMed #MedTwitter #Doctors #Nurses #hypermobility #POTS #MCAD #NEISvoid

ALL doctors have seen Hypermobility Spectrum Disorders and #EDS whether they know it or not! ohtwist.com #HSD #fibro #MedEd #FOAMed #Nurses #Pain #Fibromyalgia #zebras #MedTwitter #rheumatology #genetics #NEISvoid #autism #ADHD

The Extra Mile: Why This 79-Year-Old Pioneering Physician Ran the Boston Marathon Again in 2025 buff.ly/UPemeY6 #EDS #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #Doctors #Advocacy #Marathon #Zebras #NEISvoid #POTS #Dysautonomia #MCAS #BostonMarathon

This is great!