HAE International (HAEi) (@haeday) 's Twitter Profile
HAE International (HAEi)

@haeday

HAEi is the global umbrella organization for the worldโ€™s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.

ID: 325582142

linkhttp://www.haei.org calendar_today28-06-2011 14:51:12

7,7K Tweet

1,1K Followers

209 Following

HAE International (HAEi) (@haeday) 's Twitter Profile Photo

HAEi's Regional Patient Advocate, Fernanda De Oliveira Martins, reports on her activities for the South America and Mexico region in the latest edition of our Global Perspectives magazine: buff.ly/AUMMUwW Find the full magazine here: buff.ly/vy2gk7Z

HAEi's Regional Patient Advocate, Fernanda De Oliveira Martins, reports on her activities for the South America and Mexico region in the latest edition of our Global Perspectives magazine: buff.ly/AUMMUwW 

Find the full magazine here: buff.ly/vy2gk7Z
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Our Member Organization in Belgium recently launched its website using HAEi's website hosting service. We're delighted to help our MOs establish an online presence with a simple website in just a few days. Visit HAE Belgium's new website: buff.ly/YRyQd9o

Our Member Organization in Belgium recently launched its website using HAEi's website hosting service. We're delighted to help our MOs establish an online presence with a simple website in just a few days. 
Visit HAE Belgium's new website:  buff.ly/YRyQd9o
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

It's with great pleasure that we welcome Niger and Namibia to the HAEi Family as the #104 and #105 countries under our international umbrella. Thank you for all you do on behalf of people with HAE. Niger: buff.ly/cdFnXrS Namibia: buff.ly/Pa9Dtom

It's with great pleasure that we welcome Niger and Namibia to the HAEi Family as the #104 and #105 countries under our international umbrella. Thank you for all you do on behalf of people with HAE.
Niger: buff.ly/cdFnXrS 
Namibia: buff.ly/Pa9Dtom
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

HAEi Member Organizations worldwide are #active4HAE and have organized various activities to raise HAE awareness : ๐ŸŽถ Concerts ๐Ÿซ‚ Patient meetings ๐Ÿ“š Book releases ๐Ÿง‘โ€๐Ÿ’ป Webinars ๐Ÿ’œ Purple light-up buildings/landmarks More info: buff.ly/kAifTXd happy hae day:-) ๐Ÿ’œ

HAEi Member Organizations worldwide are #active4HAE and have organized various activities to raise HAE awareness :
๐ŸŽถ  Concerts
๐Ÿซ‚ Patient meetings
๐Ÿ“š Book releases
๐Ÿง‘โ€๐Ÿ’ป  Webinars
๐Ÿ’œ Purple light-up buildings/landmarks
More info: buff.ly/kAifTXd
happy hae day:-) ๐Ÿ’œ
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Today, HAE communities around the world come together to raise awareness through events and activities celebrating hae day:-) ๐ŸŒโœจ If you're being #active4HAE in purpleโ€“ just like our amazing HAEi LEAP Class of 2025: share it with us -> haeday.org Happy hae day:-) ๐Ÿ’œ

Today, HAE communities around the world come together to raise awareness through events and activities celebrating hae day:-) ๐ŸŒโœจ
If you're being #active4HAE in purpleโ€“ just like our amazing HAEi LEAP Class of 2025: share it with us -> haeday.org
Happy hae day:-) ๐Ÿ’œ
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Those with Travel Grants for the 2025 HAEi Regional Conference EMEA in Rome, Italy, from 10 to 12 October 2025 must register with the grant code on 25 May 2025 at the latest! This conference covers Europe, the Middle East, and Africa. Register here: buff.ly/ECKqbzu

Those with Travel Grants for the 2025 HAEi Regional Conference EMEA in Rome, Italy, from 10 to 12 October 2025 must register with the grant code on 25 May 2025 at the latest!
This conference covers Europe, the Middle East, and Africa. 
Register here: buff.ly/ECKqbzu
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

In our latest edition of Global Perspectives, Fiona Wardman, HAEi's Advocacy Lead for Oceania and South Africa, reports on activities in her region: buff.ly/5XC9DAB Find the full magazine with translation options at your fingertips here: buff.ly/vy2gk7Z

In our latest edition of Global Perspectives, Fiona Wardman, HAEi's Advocacy Lead for Oceania and South Africa, reports on activities in her region: buff.ly/5XC9DAB
Find the full magazine with translation options at your fingertips here: buff.ly/vy2gk7Z
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

In the latest edition of our Global Perspectives magazine, Javier Santana, HAEi's Regional Patient Advocate for Central America & Caribbean, reports on his region: buff.ly/9P9gJf2 Read the full magazine with translation options at your fingertips: buff.ly/2XeIJbO

In the latest edition of our Global Perspectives magazine, Javier Santana, HAEi's Regional Patient Advocate for Central America & Caribbean, reports on his region: buff.ly/9P9gJf2
Read the full magazine with translation options at your fingertips: buff.ly/2XeIJbO
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

HAEi's Regional Patient Advocate, Yong Hao Lim, reports from his region, East Asia, in the latest edition of our Global Perspectives magazine: buff.ly/9WNqyLx Read the full magazine with translation options at your fingertips: buff.ly/vy2gk7Z

HAEi's Regional Patient Advocate, Yong Hao Lim, reports from his region, East Asia, in the latest edition of our Global Perspectives magazine: buff.ly/9WNqyLx  

Read the full magazine with translation options at your fingertips: buff.ly/vy2gk7Z
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

โ—Do you have a travel grant for the 2025 HAEi Regional Conference EMEA? Sunday, 25 May, is your last chance to use itโ— If you have a travel grant and havenโ€™t used it, head to our conference website, register now, and use your travel grant! ๐Ÿ‘‰๐Ÿ‘‰ buff.ly/ECKqbzu

HAE International (HAEi) (@haeday) 's Twitter Profile Photo

HAEi's Regional Patient Advocate, Natasa Angjeleska, reports from her region, South Eastern Europe, in the latest edition of our Global Perspectives magazine: buff.ly/PpND2Td Find Global Perspectives with translation options at your fingertips: buff.ly/vy2gk7Z

HAEi's Regional Patient Advocate, Natasa Angjeleska, reports from her region, South Eastern Europe, in the latest edition of our Global Perspectives magazine: buff.ly/PpND2Td

Find Global Perspectives with translation options at your fingertips: buff.ly/vy2gk7Z
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

We've almost beaten last year's result โ€“ and we still have until Sunday to go ๐Ÿ™Œ ๐Ÿ’œ In 2024, 16,418 activities have steps for 3.4 trips around the world. We're almost at 3.5 trips! Join us and help reach the target. All kinds of activities count ๐Ÿ‘‰๐Ÿ‘‰ haeday.org

HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Start suspecting HAE, doctors told in new educational films for HCPs. New HAEi videos, The HAE Insight Series: Understanding HAE in Asia Pacific, is designed to support physicians by guiding differential diagnosis, & sharing real-life patient experiences: buff.ly/4of8Z0N

Start suspecting HAE, doctors told in new educational films for HCPs. New HAEi videos,  The HAE Insight Series: Understanding HAE in Asia Pacific, is designed to support physicians by guiding differential diagnosis, & sharing real-life patient experiences: buff.ly/4of8Z0N
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Call forโ€ฏAbstracts Open for the 2025 HAEi Regional Conference EMEA! Please share this with healthcare professionals, physicians, and researchers in your country who may want to submit their work to the conference. Guidelines: buff.ly/UNHzg7X Deadline: 4 July,โ€ฏ23:00 CET

Call forโ€ฏAbstracts Open for the 2025 HAEi Regional Conference EMEA!
Please share this with healthcare professionals, physicians, and researchers in your country who may want to submit their work to the conference.
Guidelines: buff.ly/UNHzg7X 
Deadline: 4 July,โ€ฏ23:00 CET
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

We have beaten last year's total, but there is still time to go further. It's the last day of the hae day:-) activity challenge today - how far can we go?! Try something new or complete your favorite and usual activity โ€“ they all count ๐Ÿ‘‰๐Ÿ‘‰ haeday.org

We have beaten last year's total, but there is still time to go further. It's the last day of the hae day:-) activity challenge today - how far can we go?!
Try something new or complete your favorite and usual activity โ€“ they all count ๐Ÿ‘‰๐Ÿ‘‰ haeday.org
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

1 June is the Global Day of Parents, which recognizes that the family is primarily responsible for nurturing and protecting children. At HAEi, we support parents and families of children with HAE by providing a community and many free resources: haei.org

1 June is the Global Day of Parents, which recognizes that the family is primarily responsible for nurturing and protecting children. At HAEi, we support parents and families of children with HAE by providing a community and many free resources: haei.org
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

10-11 May, HAE Croatia hosted a patient and physician meeting in Split, Croatia, with educational presentations from HAE-knowledgeable physicians and HAEi's RPA, Natasa Angjeleska, sharing data from the State of Management study in SEE. HAE Croatia: buff.ly/h217kEZ

10-11 May, HAE Croatia hosted a patient and physician meeting in Split, Croatia, with educational presentations from HAE-knowledgeable physicians and HAEi's RPA, Natasa Angjeleska, sharing data from the State of Management study in SEE.
HAE Croatia: buff.ly/h217kEZ
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Spotlight: Dr Jindal's view from India ๐Ÿ‡ฎ๐Ÿ‡ณ In the latest issue of Global Perspectives, you will find a feature with Dr Jindal, who is a key part of the HAE community in India. Read the feature ๐Ÿ‘‰๐Ÿ‘‰ buff.ly/VAnnNbr Full magazine ๐Ÿ‘‰๐Ÿ‘‰ buff.ly/ekr97PF

Spotlight: Dr Jindal's view from India ๐Ÿ‡ฎ๐Ÿ‡ณ 
In the latest issue of Global Perspectives, you will find a feature with Dr Jindal, who is a key part of the HAE community in India. 
Read the feature ๐Ÿ‘‰๐Ÿ‘‰  buff.ly/VAnnNbr 

Full magazine ๐Ÿ‘‰๐Ÿ‘‰ buff.ly/ekr97PF
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

"We are extremely happy to announce that the study of IV Human Plasma-derived C1 Esterase Inhibitor Concentrate in patients with congenital C1-INH deficiency is now open at the Heratsi Hospital in Yerevan.โ€œ Read more from HAE Armenia buff.ly/h7lxAh5

"We are extremely happy to announce that the study of IV Human Plasma-derived C1 Esterase Inhibitor Concentrate in patients with congenital C1-INH deficiency is now open at the Heratsi Hospital in Yerevan.โ€œ Read more from HAE Armenia buff.ly/h7lxAh5
HAE International (HAEi) (@haeday) 's Twitter Profile Photo

Today, 8 June, is the last chance to register #active4HAE in purple activities for this year's hae day:-) challenge. The challenge ended on 31 May, but you have until the end of today to submit any activities you did in the challenge: haeday.org

Today, 8 June, is the last chance to register #active4HAE in purple activities for this year's hae day:-) challenge. The challenge ended on 31 May, but you have until the end of today to submit any activities you did in the challenge: haeday.org