🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Safety and efficacy of #pegtibatinase enzyme replacement therapy in adults with classical #homocystinuria 👥 24 participants ☢️ No severe immune reactions (most commonly injection-site reactions) 📉67% plasma homocysteine reductions with 2.5 mg/kg BIW. sciencedirect.com/science/articl…

On this World Homocystinuria Awareness Day, please help us raise awareness for HCU 💛 Éimear Mc Glynn from Ireland, who has type 2 HCU, sheds light on her rare genetic disorder and advocates on the importance of newborn screening and raising awareness for the HCU community, with

🚨 Happening in TODAY🚨 Join us at 5:30 pm EST for a Summer Community Virtual Meetup! 🖥️ Come connect, learn, and share with others in the community and receive some updates! 👥 🫂 ➡️ Register: bit.ly/JuneVirtualMee… #homocystinuria #hcunetworkamerica #summer #meetup

Today's the day - start your training 🏃🏼‍♀️ because the 2025 HCU Heroes Race for Research registration launches today! The first 100 registered will receive a metal. Early Bird discount ends July 15! Register now before prices go up! ➡️ charity.pledgeit.org/HCURaceforRese… #Homocystinuria

☀ Meet our June #HCUHero, Nico! ☀ Coming all the way from Scotland, read more about Nico's diagnosis journey, how he is doing now, and his parents' hopes and fears for the future. ➡️ Read Nico's story here: hcunetworkamerica.org/nico/ #HCUHero #HopeConnectsUs

Wow, what an excellent first-ever #Homocystinuria regional meetup in Orlando, FL! Thirty-four participants from 4 states joined to network, have fun, play games, and enjoy each other's company. Thank you to our sponsors for making this possible!

☀👀Did you miss us in Florida? 👀☀ Don’t worry—we’re heading to TEXAS next! 🤠 Come hang with us in person, meet the community, and connect IRL. 📍May Valley Park The Woodlands, TX 📅 Saturday, June 28th 🕐 9:00am -2:00pm Let us know if you’ll be there! 💬

🎙️ HC&U: A Homocystinuria Podcast episode dropping 6/26! 💙 Ben welcomes Rene to the table! 💙 Rene is the father of Nico, who was diagnosed through the Scotland newborn screening program with Classical HCU. ➡️ Catch the HC&U Podcast at hcunetworkamerica.org/hcu-podcast/ RARE-X

From head to toe, we want to know! 🧠💬🦶 Whether you're registering for the first time or are already registered, it is critical that you complete your Head to Toe Survey! Join us in expanding this critical research ➡️ homocystinuria.rare-x.org RARE-X

🎙️ HC&U: A Homocystinuria Podcast BONUS EPISODE OUT NOW! 💙 Ben welcomes Allison to the table! 💙 Allison and Ben will touch on the current and future state of newborn screening. ➡️ Catch the HC&U Podcast on all listening platforms Or, head to hcunetworkamerica.org/hcu-podcast/ RARE-X

☀👀1 WEEK TILL OUR TEXAS MEET UP 👀☀ Will you be there?! 🤠 📍May Valley Park The Woodlands, TX 📅 Saturday, June 28th 🕐 9:00am -2:00pm Visit for more details ➡️ charity.pledgeit.org/pr/fr9QvREfua * Link in bio * We can't wait to see you! 💬

👋💙 Hey, Rare-X HCU DCP (Data Collection Program) Users! 💙👋 Check your inbox for an exciting opportunity from Rare-X 💻📩 RARE-X #Homocystinuria #NaturalHistoryStudy #RareDiseaseResearch #HopeIsData #HCUAwareness #PatientPoweredResearch

🎙️ HC&U: A Homocystinuria Podcast episode OUT NOW! 💙 Ben welcomes Rene to the table! 💙 Rene is the father of Nico, who was diagnosed through the Scotland newborn screening program with Classical HCU. ➡️ Catch the HC&U Podcast at hcunetworkamerica.org/hcu-podcast/ RARE-X

🩵🤠 What an amazing time we had at our second #Homocystinuria regional meetup in Texas! 🤠 🩵 We want to thank Ajinomoto Cambrooke Metabolic Nutrition , Nutricia , Eton Pharmacuticals, and Travere Therapeutics for their generous sponsorship; without their help, these events wouldn't be possible.

☀️🌊 Hello, July! ☀️🌊 Looking for your next summer read?? Lucky for you, the July HCU Herald is out now! 📖🏖 Read it here ➡️ bit.ly/July2025Herald LINK IN BIO #Research #newsletter #Homocystinuria #CobalaminDisorders #CblG #diagnosis #NewbornScreening #podcasts #HCU

🌊 🏖 Meet our July #HCUHero, Olive! 🏖 🌊 Talking to us from the United Kingdom is Olive's mom, Hannah. She tells a story of a mother's intuition and a fight for a diagnosis. ➡️ Read Olive's story here: hcunetworkamerica.org/olive/

📢 Important Product Update 📢 Vitaflo has announced that Vitaflo Gel will be discontinued. We encourage all patients and caregivers to connect with their metabolic care teams to find an alternative formula that works best for their needs.

Sprint to Sign-Up - Prices Climb! - mailchi.mp/hcunetworkamer…

🎓✨ Ready to level up your adulting game? Join us for Adulting 101: Find Your Path — a special event for individuals with HCU and MSUD! 🎓✨ 🗓️ September 11 at 6 PM ET 🔗 Register now: bit.ly/Adulting101-25 Let’s take on adulthood—together! 💪

🌿🪴 Magical Tip Tuesday – From the Greenhouses of Hogwarts 🌿🪴 Just like tending to magical plants, your Race for Research journey begins by planting a goal. 🌱 ✨ Register your team here: bit.ly/RaceForResearc… #MagicalTipTuesday #HerbologyClass #RaceForResearch