HOPEoutcomes (@hopeoutcomes) 's Twitter Profile
HOPEoutcomes

@hopeoutcomes

400+ people, from 50+ countries, have developed a minimum data set for future #preeclampsia research

Summary report: dropbox.com/s/vwg27ru0edq4…

ID: 1254754395956416514

linkhttps://www.dropbox.com/s/vwg27ru0edq46ly/%40HOPEoutcomes.pdf?dl=0 calendar_today27-04-2020 12:49:03

43 Tweet

9 Followers

9 Following

Dr James M N Duffy (archived) (@jamesmnduffy) 's Twitter Profile Photo

topics include: (1) Realising there is a high blood pressure problem in pregnancy (2) Experiences of self-monitoring blood pressure in pregnancy (3) Making decisions about labour, induction and birth (4) Emotions during and soon after pre-eclampsia

topics include:

(1) Realising there is a high blood pressure problem in pregnancy

(2) Experiences of self-monitoring blood pressure in pregnancy

(3) Making decisions about labour, induction and birth

(4) Emotions during and soon after pre-eclampsia
Action on Pre-eclampsia (APEC) (@apec_uk) 's Twitter Profile Photo

Good morning - today is World Pre Eclampsia day - please check out resources page with lots of new information action-on-pre-eclampsia.org.uk/world-pre-ecla…

Good morning - today is World Pre Eclampsia day - please check out resources page with lots of new information action-on-pre-eclampsia.org.uk/world-pre-ecla…
Action on Pre-eclampsia (APEC) (@apec_uk) 's Twitter Profile Photo

You might find this resource from Dipex Charity useful @kaytuna2 and Dr James M N Duffy (archived) have been instrumental in this and APEC are pleased to support it healthtalk.org/pre-eclampsia-… #WorldPreeclampsiaDay #CheckKnowShare

Group B Strep Support (@gbssupport) 's Twitter Profile Photo

#WorldPreEclampsiaDay 22 May 2020 BJOG publishes the HOPEoutcomes study: obgyn.onlinelibrary.wiley.com/doi/10.1111/14… The CROWN Initiative, a minimum data set for pre‐eclampsia research. #CheckKnowShare

#WorldPreEclampsiaDay 22 May 2020

<a href="/BJOGTweets/">BJOG</a> publishes the <a href="/HOPEoutcomes/">HOPEoutcomes</a> study: obgyn.onlinelibrary.wiley.com/doi/10.1111/14… <a href="/CoreOutcomes/">The CROWN Initiative</a>, a minimum data set for pre‐eclampsia research.

#CheckKnowShare
BJOG (@bjogtweets) 's Twitter Profile Photo

Today is #WorldPreeclampsiaDay2020 Published in BJOG from HOPEoutcomes: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38e7J #PreeclampsiaAwareness #preeclampsia

Today is #WorldPreeclampsiaDay2020
Published in BJOG from <a href="/HOPEoutcomes/">HOPEoutcomes</a>: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38e7J
#PreeclampsiaAwareness
#preeclampsia
BJOG (@bjogtweets) 's Twitter Profile Photo

Today is #WorldPreeclampsiaDay2020 Published in BJOG from HOPEoutcomes: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38enD #PreeclampsiaAwareness

Today is #WorldPreeclampsiaDay2020
Published in BJOG from <a href="/HOPEoutcomes/">HOPEoutcomes</a>: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38enD
#PreeclampsiaAwareness
Dr James M N Duffy (archived) (@jamesmnduffy) 's Twitter Profile Photo

" What can be done to facilitate data sharing? The first step is mindset. Very few investigators in the past have performed studies with the consideration that the value of their findings would be increased if they could be shared.

Dr James M N Duffy (archived) (@jamesmnduffy) 's Twitter Profile Photo

" Further, institutions and funding agencies have not rewarded sharing data and in fact, being one author of many in a large study has been considered of minimal value

Dr James M N Duffy (archived) (@jamesmnduffy) 's Twitter Profile Photo

" It is becoming increasingly evident that sharing data demands the collection of appropriate data, standardized outcomes and is greatly facilitated by harmonized datasets

Dr James M N Duffy (archived) (@jamesmnduffy) 's Twitter Profile Photo

The standardised definitions for the #preeclampsia core outcome set (HOPEoutcomes) have been published today by ISSHP Pregnancy Hypertension: sciencedirect.com/science/articl…

The standardised definitions for the #preeclampsia core outcome set (<a href="/HOPEoutcomes/">HOPEoutcomes</a>) have been published today by <a href="/ISSHP1/">ISSHP</a> Pregnancy Hypertension:

sciencedirect.com/science/articl…