Haemophilia Society (@haemosocuk) 's Twitter Profile
Haemophilia Society

@haemosocuk

We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.

ID: 124145512

linkhttp://www.haemophilia.org.uk calendar_today18-03-2010 11:58:06

6,6K Tweet

4,4K Followers

708 Following

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Last September, a team from the Haemophilia Society, including youth ambassadors, took on the Gozo-Malta swim - a gruelling 6km open-water sea swim. 'Making Waves: The Gozo-Malta Swim' tells their story and premieres on our YouTube channel at 5pm today. youtube.com/watch?v=2BNsGr…

Last September, a team from the Haemophilia Society, including youth ambassadors, took on the Gozo-Malta swim - a gruelling 6km open-water sea swim.

'Making Waves: The Gozo-Malta Swim' tells their story and premieres on our YouTube channel at 5pm today.

youtube.com/watch?v=2BNsGr…
Haemophilia Society (@haemosocuk) 's Twitter Profile Photo

Tomorrow at 5pm, we'll be premiering a new film chronicling the efforts of a team from the society taking on the Gozo-Malta swim. Here's a sneak peek of the action Subscribe to the channel and turn on notifications to be the first to know when it drops. youtube.com/@TheHaemophili…

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Today marks World Haemophilia Day with this year’s theme being ‘Access for all: women and girls bleed too’. A huge part of our work this year is going to be focused on women and girls as we look to highlight the shortcomings in care and treatment and push for genuine change.

Today marks World Haemophilia Day with this year’s theme being ‘Access for all: women and girls bleed too’. 

A huge part of our work this year is going to be focused on women and girls as we look to highlight the shortcomings in care and treatment and push for genuine change.
Haemophilia Society (@haemosocuk) 's Twitter Profile Photo

Marathon day is just a week away and we feel so lucky to have a team of inspirational individuals running. Each one is taking part for their own reasons. This is Luke's story haemophilia.org.uk/teamths-luke-m…

Marathon day is just a week away and we feel so lucky to have a team of inspirational individuals running. Each one is taking part for their own reasons. 

This is Luke's story

haemophilia.org.uk/teamths-luke-m…
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Today - 12 incredible individuals take to streets of London in the name of supporting the UK bleeding disorder community. Please join us in wishing Xan, Mark, Steve, Alfie, Isla, Maggie, Jo, Lauren, Amy, Mareska, Kate and Luke the very best of luck! We're with you all the way!

Today - 12 incredible individuals take to streets of London in the name of supporting the UK bleeding disorder community. 

Please join us in wishing Xan, Mark, Steve, Alfie, Isla, Maggie, Jo, Lauren, Amy, Mareska, Kate and Luke the very best of luck! We're with you all the way!
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Feeling inspired by last weekend's heroics? Don't miss your chance to be part of next year's race! The ballot for the 2026 London Marathon close today. Our charity places are extremely limited and make those who missed out on the ballot a priority. londonmarathonevents.co.uk/london-maratho…

Feeling inspired by last weekend's heroics? Don't miss your chance to be part of next year's race! The ballot for the 2026 London Marathon close today. Our charity places are extremely limited and make those who missed out on the ballot a priority.

londonmarathonevents.co.uk/london-maratho…
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Sports Day is an opportunity to bring your friends, family and community together to celebrate sport and exercise! What will you do? Let's get moving on Saturday 13 September! haemophilia.org.uk/sports-day

Haemophilia Society (@haemosocuk) 's Twitter Profile Photo

Last year, a group of our incredible youth ambassadors took on the Gozo-Malta swim. This was the latest in a series of impressive feats they've undertaken to prove what's possible with the right training, preparation and support. Watch the full film here. youtube.com/watch?v=2BNsGr…

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Kate Burt, our Chief Executive, will give evidence to the Infected Blood Inquiry today. The inquiry is reconvening for 2 days to examine government progress towards compensation payments.

Kate Burt, our Chief Executive, will give evidence to the Infected Blood Inquiry today. The inquiry is reconvening for 2 days to examine government progress towards compensation payments.
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This week, we've been in attendance and giving evidence at the Infected Blood Inquiry. The inquiry re-opened for two days of hearings to assess the timeliness and adequacy of the government’s response to compensation. Read more here. haemophilia.org.uk/pi_posts/minis…

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£40,565. £1 for every person in the UK with a bleeding disorder. That's our target for Sports Day and we need you to help us get there. Let us know what you want to do and our team will be there to help you make it a success. haemophilia.org.uk/sports-day

£40,565. £1 for every person in the UK with a bleeding disorder. That's our target for Sports Day and we need you to help us get there.

Let us know what you want to do and our team will be there to help you make it a success.

haemophilia.org.uk/sports-day
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A year ago, the Infected Blood Inquiry published its devastating report into the multiple failings that led to the contaminated blood scandal. The inquiry gave us the truth, but we’re still waiting for justice. Fair compensation must be paid to everyone impacted by this disaster.

A year ago, the Infected Blood Inquiry published its devastating report into the multiple failings that led to the contaminated blood scandal. The inquiry gave us the truth, but we’re still waiting for justice. Fair compensation must be paid to everyone impacted by this disaster.
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A year on from the Infected Blood Inquiry's report: Families, charities and campaigners call on government to honour its recommendations and deliver a fair compensations scheme for everyone who suffered. haemophilia.org.uk/pi_posts/a-yea…

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📢 Big news for the haemophilia community: the first under-the-skin treatment for severe haemophilia B has been approved in England. Pfizer’s marstacimab will be available to anyone aged 12+ without inhibitors — injected weekly via a pre-filled pen. haemophilia.org.uk/new-treatment-…

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Have your say on new guidelines which set the standards of care for all haemophilia centres in England. NHS England wants your feedback on its revised service specification for the treatment of people with bleeding disorders. Find out more here haemophilia.org.uk/have-your-say-…

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A nationwide festival of fitness and fun! What will you do to get involved on Sports Day? Get in touch and we'll help you make it happen. Let's get moving! haemophilia.org.uk/sports-day

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"There's no going back now..." Last year, a team of THS youth ambassadors took on the Gozo - Malta swim. A 6km sea swim in extremely challenging conditions. This is their story. youtu.be/2BNsGr7yBas

"There's no going back now..."

Last year, a team of THS youth ambassadors took on the Gozo - Malta swim. A 6km sea swim in extremely challenging conditions.

This is their story.

youtu.be/2BNsGr7yBas