
@healthprivacy
@healthprivacy
Health data privacy and security devotee; HIPAA myth buster; former fed (OCR & ONC); Terp fan; dog mom; Invitae Data Stewardship Lead; Personal twitter account.
ID: 117160142
24-02-2010 18:41:43
10,10K Tweet
5,5K Followers
982 Following



Aneesh Chopra dropping the hammer, PATIENTS FIRST about data access & patients rights to utilize their data when they need it. #VIVE2024 #PatientAccess #UnblockHealth





Congratulations to Dr. Wiltrout, Elli Brimble & Epilepsy Genetics Program for this analysis of Ciitizen data collected with & supported by SRF! Comprehensive phenotypes of patients with #SYNGAP1-related disorder reveals high rates of #epilepsy & #autism pubmed.ncbi.nlm.nih.gov/38470175/


I’m excited to participate in Alliance for Health Policy's 9th Annual Signature Series workshop tomorrow, coming together with a range of stakeholders to tackle these practical questions: What does a good AI advisory board look like? What should the AI curriculum be for policymakers?

Way to go Brendan Keeler! Measurement of and publicly reporting on outcomes leads to improvement - just ask the health care quality improvement experts. This will help patients get seamless, reliable access to payer data, regardless of their plan. open.substack.com/pub/flexpa/p/t…


We asked Enlightening Results 💡, PhD, about the regulations she believes are still missing and would like to see implemented... Learn how transparency and data sharing initiatives are tackling "friction points": healthcareittoday.com/2024/04/09/tra… DrFirst Unblock Health #AI #digitalhealth




I recently had the experience of being asked—with Enlightening Results 💡—of being asked to put together a patient advisory panel. We strongly recommended that they pay them & suggested means. They went to their ethics committee—without us—& decided paying patients was unnecessary.
