@healthprivacy (@healthprivacy) 's Twitter Profile
@healthprivacy

@healthprivacy

Health data privacy and security devotee; HIPAA myth buster; former fed (OCR & ONC); Terp fan; dog mom; Invitae Data Stewardship Lead; Personal twitter account.

ID: 117160142

calendar_today24-02-2010 18:41:43

10,10K Tweet

5,5K Followers

982 Following

Enlightening Results 💡 (@gracecordovano) 's Twitter Profile Photo

Aneesh Chopra dropping the hammer, PATIENTS FIRST about data access & patients rights to utilize their data when they need it. #VIVE2024 #PatientAccess #UnblockHealth

<a href="/aneeshchopra/">Aneesh Chopra</a> dropping the hammer, PATIENTS FIRST about data access &amp; patients rights to utilize their data when they need it. 

#VIVE2024 #PatientAccess #UnblockHealth
micky tripathi (@mickytripathi1) 's Twitter Profile Photo

I know, I know, the ink is barely dry on HTI-1. But we won't apologize for relentlessly advancing health IT to improve people's lives. 🇺🇸 healthit.gov/buzz-blog/inte…

I know, I know, the ink is barely dry on HTI-1.

But we won't apologize for relentlessly advancing health IT to improve people's lives.  🇺🇸

healthit.gov/buzz-blog/inte…
SynGAP Research Fund (SRF) (@curesyngap1) 's Twitter Profile Photo

Congratulations to Dr. Wiltrout, Elli Brimble & Epilepsy Genetics Program for this analysis of Ciitizen data collected with & supported by SRF! Comprehensive phenotypes of patients with #SYNGAP1-related disorder reveals high rates of #epilepsy & #autism pubmed.ncbi.nlm.nih.gov/38470175/

@healthprivacy (@healthprivacy) 's Twitter Profile Photo

OK, I had my head in e-mail and work all day and totally missed this! HHS OCR finalizes their proposed rule bolstering HIPAA protections in light of the Supreme Court decision in Dobbs.....

@healthprivacy (@healthprivacy) 's Twitter Profile Photo

I’m excited to participate in Alliance for Health Policy's 9th Annual Signature Series workshop tomorrow, coming together with a range of stakeholders to tackle these practical questions: What does a good AI advisory board look like? What should the AI curriculum be for policymakers?

@healthprivacy (@healthprivacy) 's Twitter Profile Photo

Way to go ⁦Brendan Keeler⁩! Measurement of and publicly reporting on outcomes leads to improvement - just ask the health care quality improvement experts. This will help patients get seamless, reliable access to payer data, regardless of their plan. open.substack.com/pub/flexpa/p/t…

Liz Salmi (@thelizarmy) 's Twitter Profile Photo

SUNDAY, JUNE 2: Find me in “When Bad News Comes through the Portal” at #ASCO24 I’m talking about all of your favorites: ✔️open notes ✔️open test results 🔥 ➕a bit of my oncology experience It’s all kicks off at 11:30am. #opennotes OpenNotes BIDMC Research

SUNDAY, JUNE 2: 
Find me in “When Bad News Comes through the Portal” at #ASCO24 

I’m talking about all of your favorites:
✔️open notes
✔️open test results 🔥
➕a bit of my oncology experience 

It’s all kicks off at 11:30am. 

#opennotes <a href="/myopennotes/">OpenNotes</a> <a href="/BIDMC_Research/">BIDMC Research</a>
John Lynn (@techguy) 's Twitter Profile Photo

We asked Enlightening Results 💡, PhD, about the regulations she believes are still missing and would like to see implemented... Learn how transparency and data sharing initiatives are tackling "friction points": healthcareittoday.com/2024/04/09/tra… DrFirst Unblock Health #AI #digitalhealth

Jan Oldenburg ☮️ (@janoldenburg) 's Twitter Profile Photo

I recently had the experience of being asked—with Enlightening Results 💡—of being asked to put together a patient advisory panel. We strongly recommended that they pay them & suggested means. They went to their ethics committee—without us—& decided paying patients was unnecessary.

Assistant Secretary for Technology Policy (@hhs_techpolicy) 's Twitter Profile Photo

Join the Office of the Assistant Secretary for Technology Policy in one of three positions: Chief Technology Officer (CTO); Chief Artificial Intelligence Officer (CAIO); Chief Data Officer (CDO). These Executive-level roles will help drive innovation and success at HHS – apply

Join the Office of the Assistant Secretary for Technology Policy in one of three positions: Chief Technology Officer (CTO); Chief Artificial Intelligence Officer (CAIO); Chief Data Officer (CDO). These Executive-level roles will help drive innovation and success at HHS – apply