C. van der Vleuten (@hecovannijmegen) 's Twitter Profile
C. van der Vleuten

@hecovannijmegen

Associate Professor 🎓 Vascular Anomalies Dermatoloog@Radboudumc & Amalia 🧡Infantiel hemangioom 🍓 Klippel Trenaunay PROS 🧬 Hevas VASCERN 🇪🇺 ISSVA 🚴🏻‍♀️

ID: 587810817

linkhttp://www.hecovan.nl calendar_today22-05-2012 20:34:10

1,1K Tweet

484 Followers

1,1K Following

VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

a year ago

🎄Wishing you a joyful #holiday season from the VASCERN team! We’re so grateful for our incredible members, patient advocates, and partners. Let’s keep making strides in #raredisease care in 2025!💙 ➡️Catch our end-of-year newsletter: bit.ly/4gm6jJp #HAPPYHOLIDAYS

VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

10 months ago

👶 What should you do if your baby’s #InfantileHemangioma ulcerates? We’ve got expert-backed DO's✅and DON'Ts❌to help your baby heal safely. Swipe through to learn more, and download the full factsheet here➡️bit.ly/4gA1yMh #RareDiseases #InfantCare #VascularHealth

👶 What should you do if your baby’s #InfantileHemangioma ulcerates? We’ve got expert-backed DO's✅and DON'Ts❌to help your baby heal safely. Swipe through to learn more, and download the full factsheet here➡️bit.ly/4gA1yMh #RareDiseases #InfantCare #VascularHealth
VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

9 months ago

👩‍🔬 Today, we celebrate the women transforming rare disease research & care! On this #InternationalDayofWomenandGirlsinScience, we honour the female scientists & healthcare professionals advancing research & care for rare vascular diseases. #WomenInScience #IDWGIS #RareDisease

👩‍🔬 Today, we celebrate the women transforming rare disease research & care! On this #InternationalDayofWomenandGirlsinScience, we honour the female scientists & healthcare professionals advancing research & care for rare vascular diseases. #WomenInScience #IDWGIS #RareDisease
VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

8 months ago

#ResearchHighlight: Our Vascular Anomalies Working Group has published a new paper detailing the patient pathway for diagnosing & managing capillary malformations (CMs). Read more 👉bit.ly/4bpNP8V #CapillaryMalformations #RareDiseases #VascularHealth

#ResearchHighlight: Our Vascular Anomalies Working Group has published a new paper detailing the patient pathway for diagnosing & managing capillary malformations (CMs). Read more 👉bit.ly/4bpNP8V #CapillaryMalformations #RareDiseases #VascularHealth
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

8 months ago

Preparing my talk… nvdv.nl/professionals/…

Preparing my talk… nvdv.nl/professionals/…
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

8 months ago

Good news! Our article received enough citations to be a Top Cited Article. Read it here onlinelibrary.wiley.com/doi/full/10.11… #TopCitedArticle Wiley in research

ISSVA (@issva_org) 's Twitter Profile Photo
ISSVA
@issva_org

7 months ago

One week left to register and join #ISSVA in Paris for Debates & Updates in person! Registration is filling quickly - act now to secure your spot either in-person or online. issva.org/2025

One week left to register and join #ISSVA in Paris for Debates & Updates in person! Registration is filling quickly - act now to secure your spot either in-person or online. issva.org/2025
Mind Essentials (@mind_essentials) 's Twitter Profile Photo
Mind Essentials
@mind_essentials

7 months ago

Mind Essentials (@mind_essentials) on Twitter photo
VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

7 months ago

🆕The first VASCA Magazine online article is here! How do gene mutations challenge century-old names like #KlippelTrenaunay syndrome & #Sturgeweber syndrome? Read how Dr. van der Vleuten explores the shift from eponyms to genetics 👇 bit.ly/3XNOTht #Genetics #KTS #SWS

🆕The first VASCA Magazine online article is here! How do gene mutations challenge century-old names like #KlippelTrenaunay syndrome & #Sturgeweber syndrome? Read how Dr. van der Vleuten explores the shift from eponyms to genetics 👇 bit.ly/3XNOTht #Genetics #KTS #SWS
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

7 months ago

Proud of this booklet VASCERN ! vascern.eu/news/pregnancy…

Proud of this booklet <a href="/vascern/">VASCERN</a> ! vascern.eu/news/pregnancy…
VASCERN (@vascern) 's Twitter Profile Photo
VASCERN
@vascern

7 months ago

Planning for #pregnancy with a vascular anomaly (VA)? You don’t have to navigate it alone. 🤰 Our new patient-friendly booklet covers everything from #contraception to delivery written for people living with a VA. Download here ➡️ bit.ly/4jDwqwB #RareDiseases

Planning for #pregnancy with a vascular anomaly (VA)? You don’t have to navigate it alone. 🤰 Our new patient-friendly booklet covers everything from #contraception to delivery written for people living with a VA. Download here ➡️ bit.ly/4jDwqwB #RareDiseases
HEVAS (@hevas_nl) 's Twitter Profile Photo
HEVAS
@hevas_nl

7 months ago

De VASCERN Vascular Anomalies (VASCA) Werkgroep heeft een nieuwe brochure voor patiënten gepubliceerd over zwangerschap, gezinsplanning en vaatafwijkingen. hevas.eu/vasca-brochure…

C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

7 months ago

#vascern ⁦ISSVA⁩ great vibe 🤩 in Paris

#vascern ⁦<a href="/ISSVA_org/">ISSVA</a>⁩ great vibe 🤩 in Paris
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

7 months ago

Caroline van ⁦HEVAS⁩ ⁦ISSVA⁩ about the very important theme of patient-advocacy in medical societies

Caroline van ⁦<a href="/hevas_nl/">HEVAS</a>⁩ ⁦<a href="/ISSVA_org/">ISSVA</a>⁩ about the very important theme of patient-advocacy in medical societies
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

6 months ago

Nog plannen voor aanstaande zaterdag? ⁦HEVAS⁩ 🤩

Nog plannen voor aanstaande zaterdag? ⁦<a href="/hevas_nl/">HEVAS</a>⁩ 🤩
C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

6 months ago

Samen Laura Janssen onze Hecovan-PA ⁦⁦Radboudumc⁩ de medische lezingen verzorgd voor ⁦HEVAS⁩ op de Ontmoetingsdag 2025 in ⁦Ouwehands Dierenpark⁩ Rhenen… met ❤️🩵🧡voor de zaak!

Samen Laura Janssen onze Hecovan-PA ⁦⁦<a href="/radboudumc/">Radboudumc</a>⁩ de medische lezingen verzorgd voor ⁦<a href="/hevas_nl/">HEVAS</a>⁩ op de Ontmoetingsdag 2025 in ⁦<a href="/Ouwehand_Zoo/">Ouwehands Dierenpark</a>⁩ Rhenen… met ❤️🩵🧡voor de zaak!
Journal of Vascular Anomalies (@jovajournal) 's Twitter Profile Photo
Journal of Vascular Anomalies
@jovajournal

5 months ago

Characteristics and Outcomes of Infantile Hemangioma With Non, Poor, and Partial Response to Standard-Dose Systemic Beta-Blocker Therapy dlvr.it/TLGTF4

Journal of Vascular Anomalies (@jovajournal) 's Twitter Profile Photo
Journal of Vascular Anomalies
@jovajournal

5 months ago

Updated Classification of Vascular Anomalies: A living document from the International Society for the Study of Vascular Anomalies Classification Group dlvr.it/TLGTK3

Updated Classification of Vascular Anomalies: A living document from the International Society for the Study of Vascular Anomalies Classification Group dlvr.it/TLGTK3
ISSVA (@issva_org) 's Twitter Profile Photo
ISSVA
@issva_org

5 months ago

Official publication now available of the #ISSVA 2025 Updated Classification in #JoVA: journals.lww.com/jova/fulltext/…

C. van der Vleuten (@hecovannijmegen) 's Twitter Profile Photo
C. van der Vleuten
@hecovannijmegen

a month ago

Yesterday our SAVE team won the Venture Challenge ZonMw aiming at registration of a safe formulation of sirolimus for vascular anomalies in Europe and beyond zonmw.nl/nl/nieuws/nieu… Radboudumc

Yesterday our SAVE team won the Venture Challenge <a href="/ZonMw/">ZonMw</a> aiming at registration of a safe formulation of sirolimus for vascular anomalies in Europe and beyond zonmw.nl/nl/nieuws/nieu… <a href="/radboudumc/">Radboudumc</a>