Helen Goss (@helenmmgoss) 's Twitter Profile
Helen Goss

@helenmmgoss

🏴󠁧󠁢󠁳󠁣󠁴󠁿@longcovidkids
❤️‍🔥Parent/carer #LongCovidKids
🤘🏼Advocate #LongCovid
😻x5
🪐Space nerd
🌪️Chronically persistent force of nature

ID: 1629460692070744067

linkhttp://www.longcovidkids.org calendar_today25-02-2023 12:38:17

6,6K Tweet

1,1K Followers

1,1K Following

Cat in the Hat 🐈‍⬛ 🎩 🇬🇧 (@_catinthehat) 's Twitter Profile Photo

I suspect that the very large wave of Covid that hit the UK last Summer may be a key driver in the subsequent wave of chronic illness. More Covid infections = more Long Covid. (Data in bottom chart is from Scotland, the only UK nation still undertaking wastewater surveillance).

I suspect that the very large wave of Covid that hit the UK last Summer may be a key driver in the subsequent wave of chronic illness.

More Covid infections = more Long Covid.

(Data in bottom chart is from Scotland, the only UK nation still undertaking wastewater surveillance).
Pete 😷 #COVIDisAirborne (@peteuk7) 's Twitter Profile Photo

People need to understand that masks/respirators are accessibility aids. They allow vulnerable people to take part in activities they'd otherwise choose to avoid. In healthcare, it should be a given. In society, they should be accepted as normal, like any other accessibility aid.

Long Covid Kids / longcovidkids@bsky.social (@longcovidkids) 's Twitter Profile Photo

"Since the pandemic you have people suffering from Long Covid" The World at One discussing #PIP We are concerned about the future support for children and young people with Long Covid and are keen to help UK Covid-19 Inquiry understand bbc.co.uk/sounds/play/m0… #WelfareReformBill

Long Covid Kids / longcovidkids@bsky.social (@longcovidkids) 's Twitter Profile Photo

the impact on children and young people to ensure future recommendations consider the needs of children and young people dealing with health changes. Listen to the full discussion on #PIP here. bbc.co.uk/sounds/play/m0… #WelfareReformBill Jane Ryan

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 Harry Spoelstra Leslie Kasza Dr. Alice 💕 I have been running specialist Long Covid Cardiovascular Clinic for 5 years. I think I have probably treated far more LC patients than many cardiologists. I’ve seen athletes go from peak fitness to unable to stand in the space of afew weeks. With horrific POTS & PEM. Thats NOT 1/

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 Harry Spoelstra Leslie Kasza Dr. Alice 💕 2/because of cardiac deconditioning causing “many of the symptoms of LC” because it’s happened too quickly. Furthermore we have the research showing the abnormalities demonstrated are NOT the same as deconditioning. Will an element of cardiovascular deconditioning occur over 2/

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 Harry Spoelstra Leslie Kasza Dr. Alice 💕 3/time if you are bedridden from long covid? Absolutely yes. Is that the primary pathophysiology causing their multiple debilitating symptoms? No How do we know that? We have 500,000 peer reviewed published research papers & 5years experience treating these patients

Dr Claire Taylor (@drclairetaylor) 's Twitter Profile Photo

Neuroinflammation. Brains on fire. 🔥 I see the consequences of Covid-19 infection every day. How many studies do we need before we say it’s unethical to pretend Covid-19 is no longer an issue? Scans help us to ‘see’ the damage. In real life to ‘see’ this is heartbreaking.

Erin M (@erinapn1) 's Twitter Profile Photo

I weep for the twilight of childhood my daughter will never experience. 17, she’s never been anything other than 13. Age 14, 15, 16, has been lost in this purgatory. This illness eats joy. #longcovidkids

James Throt MBBS, MD, PhD, FRCPath (@jamesthrot) 's Twitter Profile Photo

Covid damages the part of your brain (frontal lobe) which is responsible for empathy, emotional regulation & overcoming self-centeredness. This will facilitate immorality. Each & every infection you have causes damage. Many are on infection 4 (or more). Signed, a neurologist.

Long Covid Kids / longcovidkids@bsky.social (@longcovidkids) 's Twitter Profile Photo

“#Publichealth researchers say strong evidence suggests preventing infection is key to preventing Long Covid, after they found more than a fifth of #children and young people were suffering ongoing symptoms following Covid-19.” rnz.co.nz/news/national/…

“#Publichealth researchers say strong evidence suggests preventing infection is key to preventing Long Covid, after they found more than a fifth of #children and young people were suffering ongoing symptoms following Covid-19.”

rnz.co.nz/news/national/…
Colin Pidgeon SAME HANDLE ON BLUE SKY (@baldypidge) 's Twitter Profile Photo

The world needs to see Storm playing Uno Stako. Photo credit: Rosie Pidgeon, balancing-things-on-cats Maestro. Helen Goss #CatsOfTwitter #CatsOnTwitter #CatsOnX

The world needs to see Storm playing Uno Stako.

Photo credit: Rosie Pidgeon, balancing-things-on-cats Maestro.

<a href="/HelenMMGoss/">Helen Goss</a> 
#CatsOfTwitter 
#CatsOnTwitter 
#CatsOnX
Harriet Carroll: Long Covid Scientific Consultancy (@angryhacademic) 's Twitter Profile Photo

Reminder that *in my lifetime* women were not required to be included in clinical research: "Between 1989 & 1993, inclusion of women in clinical research was NIH policy, but it was not law. In 1993, Congress wrote the NIH inclusion policy into Federal law" orwh.od.nih.gov/toolkit/recrui…

Harriet Carroll: Long Covid Scientific Consultancy (@angryhacademic) 's Twitter Profile Photo

"Studies have found that 76 out of 86 commonly used drugs exhibit sex-based pharmacokinetic differences, yet dosing guidelines often fail to account for this. The result? Women experience adverse drug reactions at nearly twice the rate of men" nature.com/articles/d4415…

Harriet Carroll: Long Covid Scientific Consultancy (@angryhacademic) 's Twitter Profile Photo

Papers in men-only studies often "justify" womens exclusion by making out we are too complex to study (usually followed by a lie that theyll repeat the study in women) (I do love how scientists think they're so clever but fluctuating hormones are simply TOO much 🙄)

Long Covid Kids / longcovidkids@bsky.social (@longcovidkids) 's Twitter Profile Photo

This new paper on metabolic abnormalities in Children with COVID and #MISc shows a clear elevation of the plasma ApoB/A1 ratio - a well established cardiovascular risk marker. Journal of Proteome Research Reducing infections remain a priority. pubs.acs.org/doi/10.1021/ac…. #PIMS #Longcovidkids

This new paper on metabolic abnormalities in Children with COVID and #MISc  shows a clear elevation of the plasma ApoB/A1 ratio - a well established cardiovascular risk marker. 
<a href="/JProteomeRes/">Journal of Proteome Research</a>
Reducing infections remain a priority. 

pubs.acs.org/doi/10.1021/ac….

#PIMS #Longcovidkids