
Helen McAneney
@helenmcaneney
Researcher at @UCDDublin & @NIPHRN Ulster University. Interests in rare diseases, methodology, public health, medical statistics. Horticulture at @S_ERC
ID: 1444553898
20-05-2013 19:26:09
1,1K Tweet
486 Followers
375 Following



📢Renal HCPs required for an online focus group to discuss tips, advice or ideas with fellow staff members on how people can best spend their time during #dialysis. If interested, please contact us on [email protected] ❤️




Only 1% of the UK's working population are farmers, however an astonishing 17% of workplace deaths are in the farming sector. Thank you to Farm Safety Foundation for speaking up about this and taking strides to improve farmers mental health's.


UCD President Orla Feely opens the new state-of-art Clinical Simulation Suite. Special thanks Dara Byrne HSE Clinical Sim Lead, Jonathan McNulty UCD College of Health & Agricultural Science Dr Michael Connolly (He/Him) Siobhan Brereton & extended working group. Facility to benefit 1400+ students. 🔗More info bit.ly/4ka59CQ


So humbling to hear from our #RareDisease panellists who have contributed so much change. They are the reason why we do what we do… #RareDiseaseNI #RareDiseaseDay. NIRDP QUB Public Health Public Engagement MHLS RAiN #RARDTAC #RAiN


Key recommendations from a recently published article "Assessing the supportive care needs of parents of children with rare diseases in Ireland" (#SAMPI ) funded by Children's Health Ireland UCD School of Nursing, Midwifery & Health Systems UCD Research #RareDiseaseDay2025 Rare Diseases Ireland RARE Ireland RAiN


#PatientAndPublicInvolvement representatives met to discuss a priority setting project in partnership with James Lind Alliance Much group discussion was had on how health research involvement matters, aims and next steps of the project. Thank-you to all in this #PPI steering group.



Rare Disease 2025 - Join us at this upcoming Rare Disease event - 21st March, Assembly Buildings #RareDisease #RareDiseaseNI #RareDiseaseDay2025 #Strongertogether Southern Trust Western Trust South Eastern Trust events.humanitix.com/rare-disease-r…




Please share this with others who may be eligible — every story matters. #RareDisorders #Rarediseases Rare Diseases Ireland @rarerarely Prof AJ McKnight RAiN Helen McAneney Melissa Kinch Orla Doyle NIRDP 22Q11 Ireland Dr Carleen Walsh raising_rareness (Lyndsey Walsh) Spina Bifida & Hydrocephalus Paeds Advocacy#backus





