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Polly & Bea on today’s walk with their hoomans ⁦@PandasPans⁩ ⁦Jo Joyner⁩ ⁦Helen Pearce⁩ ⁦Helen Skelton⁩ ⁦Dan Walker⁩ #ChooseYourChallenge 62 miles in July #StrongerTogether

The #Pans #Pandas #Lyme #LongCovid #B12 deficiency communities are amazing. The support, guidance and friendship our family have found during the past 7 years has made a huge difference on a daily basis. Thank you 💚 #InternationalWomensDay2025 #PansPandasHour

Inflamed brains don’t sleep. And without deep sleep, the inflammation never clears. Wired but exhausted. Wide-eyed at 3am. Snapping at bedtime. Too tired to rest. Too inflamed to switch off. This isn’t poor sleep hygiene. It’s neurological dysregulation. Deep sleep is when the

This message came from a mom who lives in the UK. An 8-year-old? FND? Again! “Hello there, I hope you don’t mind me reaching out. My 8 year old son has been suffering with long prolonged episodes of paralysis, full body rigidity, loss of voice, headaches and tummy aches. He was

Notes to my boy ✉️

Notes to my boy ✉️ Your awareness has helped so many🙏. I hope medics are listening carefully if this is the first time they have learned about #Pans #Pandas and how important it is that they consider it. Sending hope & healing to you all this week especially your boy. ❤️

@Hopesaxons Neurologist Mom Rene Sugar It's a disgrace 😔 so many #FND misdiagnoses for kids & adults. Complete lack of medical curiosity & tests & investigations. I was at an NHS pain clinic & a woman there who suddenly lost the use of her legs was told it was #FND that's it the end(!)

1/2 This survey will help us gather information to campaign for better healthcare services! It is open to all patients with diagnosed or suspected #PoTS or their parents/carers. (If applicable please complete separate surveys for each person). #PoTS #MECFS #LongCovid #EDS

BromAc® dismantles spike protein. Not just in the lab - in ICU patient samples. Tracheal aspirates. S1 subunit? Broken down. It’s a combo of bromelain + NAC. Together, they cleave, dissolve, disarm. Now here’s what matters for us: NAC often triggers flares in our kids. But

#WorldHealthDay I am a day late but your health is your wealth & don't forget to consider #PansPandasHour if a child changes abruptly with symptoms that are not better explained by a medical condition. Children should not end up on a #MentalHealth pathway they don't belong in.

Children misdiagnosed so that FND becomes a thing. 4 children under 12 I’ve read about in the last 24 hours. Medical professionals need to do better. I’d advise anyone with an FND diagnosis to read up about b12 deficiency, ME/CFS, EDS/HSD, PANs/PANDAs (for kids)

Mould exposure isn’t always obvious. But once it hits, it can light up the whole system. Rashes. Food reactions. Brain fog. Tics. Constant illness. Mast cells fire. Histamine builds. The gut slows to a crawl. You can treat symptoms endlessly - or you can find the leak.

A powerful story and a lesson to all medical professionals dealing with children. Please educate yourselves about PANS PANDAS, you can literally change the course of a child’s life.

🚨 Attention #PedsTwitter: Want to stay ahead of the curve in paediatric autoimmune neuropsychiatric disorders? Don’t miss out #PansPandasHour Follow fabulous PANS PANDAS UK and stay informed. Chris van Tulleken 🏳️‍🌈 Dr Mike II Thomas Round 💙 Carey Lunan Clemency Burton-Hill, MBE All Things Mental Health Podcast

Over 5 years since I saw my Sons face. Imagine that eh. And still in 2025 medical professionals tell me PANS PANDS is a “controversial” condition. How dare you do that ? I don’t even believe you believe that. I love you Son. The fight goes on for the beautifulist (?) boy 💪❤️

Notes to my boy ✉️ Yes, it's absolutely unexceptional medical malpractice. How much more evidence do the #NHS need to prove #PansPandas exists? Parents see it and are dealing with this cruel illness day in day out. Enough is enough 😌

Notes to my boy ✉️ They still call it controversial because they lack the knowledge & forward thinking. They keep the blinkers on because they didn't learn about it in med school. They lack the knowledge & devastation that WE see when our child changes abruptly. They lack & we lose. #GuidelinesNow

#PansPandasHour

What would you email your Son if you haven’t spoken to him in years ? Well, here’s mine. He gave his email address to his Mom. I could’ve written 50 pages to him but I decided short and sweet was best. So here’s what I wrote yesterday. Hi …… I hope you are ok. I love you,