MyHemophiliaTeam (@hemophiliateam) 's Twitter Profile
MyHemophiliaTeam

@hemophiliateam

We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!

ID: 3236504189

linkhttp://MyHemophiliaTeam.com calendar_today05-05-2015 18:24:58

3,3K Tweet

985 Followers

578 Following

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Pain is a commonly overlooked symptom of hemophilia — joint pain due to bleeds can often slip under the hematologists' radar. How do you communicate your pain with your doctor? myhemophiliateam.com/resources/pain…

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What’s a new recipe you tried, that you loved? How would you change this dish to fit your dietary needs? Hear some of our members' favorite recipes: myhemophiliateam.com/resources/what…

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Menorrhagia (excessive or prolonged bleeding during your monthly cycle) can be a potential issue for people living with hemophilia. Read more: myhemophiliateam.com/resources/peri…

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Caring for a child or teen with hemophilia isn't easy. Gain support from other parents who understand on MyHemophiliaTeam: myhemophiliateam.com/resources/pare…

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While some people don't think twice about going to the dentist, those with #hemophilia must be aware of bleeding gums. Read more: myhemophiliateam.com/resources/goin…

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Ongoing infusions are a reality when you are living with hemophilia. Discuss common topics like learning to self-infuse, minimizing pain, and avoiding inhibitors with MyHemophiliaTeam: myhemophiliateam.com/resources/infu…

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"It feels good to know I'm not alone dealing with everyday struggles because of hemophilia." Find support and community with others who understand life with hemophilia: myhemophiliateam.com/resources/feel…

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"I notice my state of mind has an effect on my bleeds." How do you care for your mental health with hemophilia? myhemophiliateam.com/resources/depr…

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"I had complications with my coagulation team and ended up back in the hospital hemorrhaging....Don’t they read the charts?” Struggling to communicate with doctors is a common topic on MyHemophiliaTeam: myhemophiliateam.com/resources/talk…

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Surgery, dental work, & pregnancy can be especially daunting for people living with bleeding disorders. How do you prepare for these situations with hemophilia? myhemophiliateam.com/resources/hemo…

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When undergoing surgery with hemophilia, it's important to find a team of doctors who are knowledgeable and experienced with your condition. Read more: myhemophiliateam.com/resources/surg…

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Exercise offers many benefits that may help people with aspects of their #hemophilia. Share your favorite workout with members on MyHemophiliaTeam: myhemophiliateam.com/resources/exer…

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Hemophilia can seriously impact your mental health. One MyHemophiliaTeam member wrote, “Sometimes I feel extremely vulnerable and scared because of my hemophilia.” myhemophiliateam.com/resources/how-…

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Ongoing infusions are a reality when you are living with hemophilia. Discuss common topics like learning to self-infuse, minimizing pain, and avoiding inhibitors with MyHemophiliaTeam: myhemophiliateam.com/resources/infu…

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The pain that accompanies #hemophilia bleeds can often be excruciating. Learn from others facing the same symptoms: myhemophiliateam.com/resources/pain…

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Menorrhagia, excessive bleeding or prolonged bleeding during your period, can be a potential issue for people living with hemophilia. Read more: myhemophiliateam.com/resources/peri…

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Caring for a child or teen with hemophilia isn't easy. It can be lonely to have the responsibility of advocating for your family by yourself. Hear from caregivers who understand on MyHemophiliaTeam: myhemophiliateam.com/resources/pare…

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Going to the dentist with hemophilia requires special forethought and care. Even simple dental procedures may result in bleeding gums or trigger a bleed. Read more: myhemophiliateam.com/resources/goin…

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To determine how you can reduce your medical expenses, MyHemophiliaTeam sat down with Susan Null of Systemedic, a medical bill advocacy firm in New York: myhemophiliateam.com/resources/how-…

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Tip number 1 for coping with infusions with hemophilia: STAY HYDRATED! Infusion is easier when there is more fluid in the blood. Check out more tips for managing infusions shared by others living with hemophilia:fal.cn/3zmrp