I’m very pleased with the progress being made Loyola Marymount University The Coelho Center newsroom.lmu.edu/community/firs…

Grateful to Disability Rights Education & Defense Fund Bazelon Center for Mental Health Law COPAA The Arc of the United States National Disability Rights Network & others that submitted an amicus brief to the court in A.J.T. v. Osseo Area Schools. #ADA not intended to make #disability claims so hard to prove that struggling families not compensated! thearc.org/blog/national-…

When HHS enforced #ADA to protect people w/ disabilities & older adults from being devalued in Crisis Standards of Care contrary to countries that embrace rationing using #QALY, we found a shared goal with Trump administration. Let's move forward not back! pipcpatients.org/news/pipc-call…

It is a step backward for the U.S. to import the same measures used to devalue disabled lives in other countries. I said it then and will say it over and over again. #IPIHurtsPatients #Disability

Refresher: @NatCounDis recommended against #IPI. “...importing the IPI will most certainly reduce access to quality healthcare for Americans by limiting or restricting access to medications.” #IPIHurtsPatients ncd.gov/2020/08/05/ncd…

Disability view: “...by referencing the policies underpinning coverage & reimbursement of foreign governments, it effectively endorses the use of discriminatory cost-effectiveness standards used by foreign governments here in the U.S.” #MFNHurtsPatients pipcpatients.org/uploads/1/2/9/…

Experts in patient & #disability communities opposed importing #QALY and similar measures from other countries when #MFN proposed in 2020 - and will oppose it in the future! #MFNHurtsPatients #ValueOurHealth pipcpatients.org/news/pipc-call…

As Congress and the administration seek policies to improve patient care and health care affordability, we urge all policymakers to again reject any policy that relies on QALYs or similar measures.

We, and the American Council of the Blind, American Foundation for the Blind, and the National Disability Rights Network applaud the introduction of the Websites and Software Applications Accessibility Act into the House of Representatives. This seeks to eliminate persistent digital accessibility barriers: buff.ly/uR531y0

We commend Representative Pete Sessions (Texas) and lead cosponsor Representative Steny Hoyer (Maryland) for introducing the Websites and Software Applications Accessibility Act into the House of Representatives.

Medicaid cuts are an immediate threat to millions, stripping over 13M of health coverage and devastating access to care, jobs, & services. Disabled Americans will be hit hardest. Your voice has the power to effect change! Contact your representatives, share your story, and make

Another bill #S1818 referencing foreign use of #QALYs introduced by Bernie Sanders ❁ including support from Elizabeth Warren Chris Murphy - both on the record opposing QALYs! You can't support health rationing tools devaluing disability without impacting access! warren.senate.gov/imo/media/doc/…

Thank you U.S. Senator Bill Cassidy, M.D. for objecting to #S1818 referencing foreign Rx prices set using tools created to ration care. The bill devalues people w/ #disabilities & older adults by importing their use of #QALYs & similar measures. We will continue to oppose discriminatory tools.

Must see: MSNBC reported on the impact of Medicaid cuts in this interview with National Down Syndrome Society & advocates with Down syndrome. They provided a thoughtful run-down of what it means for people with #disabilities underscoring the danger of what Congress is proposing. msnbc.com/ana-cabrera-re…

SCOTUS: “We hold today that ADA and Rehabilitation Act claims based on educational services should be subject to the same standards that apply in other disability discrimination contexts” - good outcome for people w/ #disabilities & #epilepsy! Epilepsy Foundation of America motherjones.com/politics/2025/…

Nearly 90 organizations & counting signed an Open Letter urging policymakers to reject policies that devalue & ration care for any American whether modeled after foreign or domestic value assessment methodologies. #ValueOurHealth #MFNHurtsPatients

Heed the warning - when a patient in Canada has to purposely get sicker in order to be deemed “cost effective” for the treatment needed to get better we should be fighting against importing their values. #MFNHurtsPatients #ValueOurHealth youtu.be/OZsYeSfjPnE

A new analysis by the Office of Health Economics – the world’s oldest independent health economics research organization – sheds light on how the discriminatory #QALY metric is used to limit access. #ValueOurHealth #MFNHurtsPatients

Thank you Rep. Cammack Press Office & Congressman Kevin Hern for introducing Protecting Health Care for All Patients Act to ban #QALYs & similar measures across federal programs. Let's work together to ensure no patient denied treatment because a formula decided their life is worth less.

URGENT ACTION ALERT! 🚨 The Senate is gearing up to ram Medicaid cuts through. If this bill passes, it will take away food and healthcare from millions of Americans and force millions more into poverty. Read our update and contact your Senators NOW: aapd.com/reconciliation…