Hope4chromosome6 (@hope4chromo6) 's Twitter Profile
Hope4chromosome6

@hope4chromo6

Follow us on Bluesky bsky.app/profile/chromo… Chromosome 6 disorders awareness and research fundraising

ID: 2328767609

linkhttps://www.chromosome6foundation.org/English/Donate-options-Ambassadors/Donate-options/ calendar_today06-02-2014 20:11:00

405 Tweet

270 Followers

172 Following

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🤩Kees, whose son has a very rare Chromosome 6 disorder, made a wish via the wish tree at his work which resulted in a very nice donation to our foundation!🧬 Thank you very much 🫶 for your initiative Kees!👏

🤩Kees, whose son has a very rare Chromosome 6 disorder, made a wish via the wish tree at his work which resulted in a very nice donation to our foundation!🧬 Thank you very much 🫶 for your initiative Kees!👏
Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

Support us on Valentine’s day to reach the final goal of chromosome6.org via: •PayPal / Card: paypal.com/donate/?hosted… or •Whydonate: Donate or start a global fundraiser and share it on your social media: whydonate.com/nl/fundraising… #chromosome6 Chromosome 6 Project🧬

Support us on Valentine’s day to reach the final goal of chromosome6.org via:
•PayPal / Card:
paypal.com/donate/?hosted…
or
•Whydonate: Donate or start a global fundraiser and share it on your social media:
whydonate.com/nl/fundraising…
#chromosome6 
<a href="/c6study/">Chromosome 6 Project🧬</a>
Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

February 28th #RareDiseaseDay is about awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. #Chromosome6 Follow us on facebook.com/share/1CPdZERd… and Bluesky bsky.app/profile/chromo…

February 28th 
#RareDiseaseDay is about awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
#Chromosome6
Follow us on facebook.com/share/1CPdZERd…
and Bluesky bsky.app/profile/chromo…
Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🌟A step closer to the final #Chromosome6 #Research #Project goal! 🤩🧬 ‘Presenting Clinical Information on Rare Chromosome 6 Disorders via a Parent-Centered Website: Parental and Professional Views’ onlinelibrary.wiley.com/doi/10.1002/aj…

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🤩Heb je de collecte gemist van de ‘Chromosome 6 Foundation’ ouders 🧬voor het ‘Chromosome 6 Project’ om het interactieve websitesysteem dichterbij te brengen dan kan dat alsnog via de QR code of de link! 🥰🙏🏻 ing.nl/payreq/m/?trxi… Meer informatie: chromosome6foundation.org/Nederlands/Ons…

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🤩🙌 Thank you volunteers and donors of the local collection in Utrecht (NL) for your efforts! 🙏🏻🥰 This brings the interactive website, with customized patient-specific information, of the 🧬 ‘Chromosome 6 Project’ 🧬one step closer! chromosome6.org #chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

☀️Today, June 6, Launching ‘International Chromosome 6 Awareness Day’. 🧬 Join us in spreading knowledge. #chromosome6awarenessday #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Filip’ Did you know that? By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Roeland’ Did you know that…? By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Julian’ Did you know that…? By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Anne & Laura’ By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Samantha’ By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Jack & Josie’ By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

‘Jack & Colleen’ By raising awareness we aim to stimulate research and give hope to families dealing with these rare conditions. #Chromosome6 #chromosome6foundation #chromosome6research #Chromosome6Project #Hope4chromosome6

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🧬Wist je datje🧬 Met op nr. 38 onze Professor ☀️Conny van Ravenswaaij. ☀️ ‘Wie heeft de grootste betekenis (gehad) voor de Nederlandse zorg?’ Leden droegen in totaal maar liefst 374 namen aan. artsenauto.nl/vvaatop100/?ut…

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🧬Did you know🧬 ☀️Our Professor Conny van Ravenswaaij nr. 38 on the top 100 list according to the members of the VvAA. ☀️ ‘Who has made the greatest contribution to Dutch healthcare?’ artsenauto.nl/vvaatop100/?ut…

Hope4chromosome6 (@hope4chromo6) 's Twitter Profile Photo

🤩Thank you!❤️ A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder. They raised a wonderful amount. Congratulations ‘family Jol’!! #Chromosome6 #Chromosome6Project

🤩Thank you!❤️
A huge thank you to ‘Grandpa and Grandma Jol’ who dedicated their 70th birthdays and 50th wedding anniversary to their grandson Owen, who has a Chromosome 6 disorder.
They raised a wonderful amount.
Congratulations ‘family Jol’!!
#Chromosome6
#Chromosome6Project