Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile
Hope for HIE ☀️

@hopeforhie

Hope for HIE is the global charity improving quality of life for families impacted by neonatal & pediatric acquired HIE through awareness, education and support

ID: 2398655292

linkhttp://www.hopeforhie.org/donate calendar_today20-03-2014 01:27:27

7,7K Tweet

3,3K Followers

3,3K Following

Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on June 18 at 12:00 PM ET for a LIVE #ChildLife Q&A with Annie Gunning, CCLS, as we explore how to talk with your child about their #HIE diagnosis in an age-appropriate way. Tune in LIVE on our Facebook, Instagram, or YouTube channels! #HIEDiagnosis

Join Hope for HIE on June 18 at 12:00 PM ET for a LIVE #ChildLife Q&A with Annie Gunning, CCLS, as we explore how to talk with your child about their #HIE diagnosis in an age-appropriate way. 

Tune in LIVE on our Facebook, Instagram, or YouTube channels!

 #HIEDiagnosis
Newborn Brain Society (@newbornbrains) 's Twitter Profile Photo

🧠✨ New Release on Volpe’s View! Read the newest commentary by Dr. Joseph Volpe: Cerebral Visual Impairment (CVI): Important Challenge for Neonatology 🔗 bit.ly/3ts9Sun

🧠✨ New Release on Volpe’s View! 

Read the newest commentary by Dr. Joseph Volpe: Cerebral Visual Impairment (CVI): Important Challenge for Neonatology 🔗 bit.ly/3ts9Sun
NeoCardioLab - Gabriel Altit (@cardioneo) 's Twitter Profile Photo

New NeoCardioLab Personality of the Week: Dr. Georg Schmölzer Research4Babies/CSAR/RETAIN —a visionary in neonatal resuscitation, a generous mentor, and a scientific leader. His guidance shaped my path. Grateful for his impact on my career and future of neonatology. neocardiolab.com/team-%C3%A9qui…

Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Some of us don’t get that golden hour. We don’t get the snuggles or the skin to skin. Some of us don’t even get to meet our babies until hours… or days… after they’re born. Instead, we meet them through wires and alarms. Through incubator windows. We memorize their faces from

Some of us don’t get that golden hour.

We don’t get the snuggles or the skin to skin.
Some of us don’t even get to meet our babies until hours… or days… after they’re born.

Instead, we meet them through wires and alarms.
Through incubator windows.
We memorize their faces from
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on June 17 @ 12:00 PM ET for our HIE Peer Perspectives Panel where #HIE parents will share personal insights and practical tips on #traveling and #vacationing with a #medicallycomplex child. Watch on our main social or YouTube channels! #ADA

Join Hope for HIE on June 17 @ 12:00 PM ET for our HIE Peer Perspectives Panel where #HIE parents will share personal insights and practical tips on #traveling and #vacationing with a #medicallycomplex child.

Watch on our main social or YouTube channels! 
 
#ADA
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

We are thrilled to welcome Maggie Jalowsky to our team in the Clinical Research Program Manager role! Maggie comes to us with exceptional experience in building research and advocacy platforms with organizations like Children's National Hospital 🏥, The Patient-Centered Outcomes Research Institute, and most recently Sick Cells. Maggie

We are thrilled to welcome Maggie Jalowsky to our team in the Clinical Research Program Manager role! 

Maggie comes to us with exceptional experience in building research and advocacy platforms with organizations like <a href="/ChildrensNatl/">Children's National Hospital 🏥</a>, <a href="/PCORI/">The Patient-Centered Outcomes Research Institute</a>, and most recently <a href="/SickCells/">Sick Cells</a>.

Maggie
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

We are excited to announce our new Medical Advisory Board leadership effective June 1, 2025 serving two year terms each: Dr. Alexa Craig serving as Chair Dr. Brian Kalish, MD serving as Vice Chair Both have been members of the MAB since 2022, advising and accelerating Hope for

We are excited to announce our new Medical Advisory Board leadership effective June 1, 2025 serving two year terms each:

Dr. Alexa Craig serving as Chair
Dr. <a href="/briankalishMD/">Brian Kalish, MD</a> serving as Vice Chair

Both have been members of the MAB since 2022, advising and accelerating Hope for
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

🏅 Drumroll, please... 2025 #HustleforHope #5K Awards are here! ✨ We're shining a spotlight on the incredible hosts, fundraisers, sponsors, and supporters who went above and beyond to make this year’s event unforgettable! 🎉 Tinyurl.com/2025HustleAwar… #HIEAwareness

🏅 Drumroll, please... 2025 #HustleforHope #5K Awards are here! ✨

We're shining a spotlight on the incredible hosts, fundraisers, sponsors, and supporters who went above and beyond to make this year’s event unforgettable! 

🎉 Tinyurl.com/2025HustleAwar… 

#HIEAwareness
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Trauma-informed care in the NICU — let’s talk about it. Last night, I had a longtime HIE mom friend message me and send me a video she came across on social media that she found incredibly hurtful. “Hey — can you respond to this video on Hope’s platform? These parents are

Trauma-informed care in the NICU — let’s talk about it. 

Last night, I had a longtime HIE mom friend message me and send me a video she came across on social media that she found incredibly hurtful. 

“Hey — can you respond to this video on Hope’s platform? These parents are
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join us on Tuesday, June 24, @ 10 AM ET to meet Maggie Jalowsky, Hope’s #ClinicalResearch Program Manager, who will share insights on the new #HIE registry work and partnerships pushing #HIEresearch and #care forward. Tune in LIVE on our Facebook, Instagram, or YouTube channels.

Join us on Tuesday, June 24, @ 10 AM ET to meet Maggie Jalowsky, Hope’s #ClinicalResearch Program Manager, who will share insights on the new #HIE registry work and partnerships pushing #HIEresearch and #care forward.

Tune in LIVE on our Facebook, Instagram, or YouTube channels.
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

In our recent #HIE #PeerPerspective Series, #PeerSupport Mentors Allison Moise and Stephanie Linde share personal insights and practical tips on #traveling and #vacationing with a #medicallycomplex child. 🔗 Watch the replay & explore key takeaways: Tinyurl.com/NavigatingVaca…

In our recent #HIE #PeerPerspective Series, #PeerSupport Mentors Allison Moise and Stephanie Linde share personal insights and practical tips on #traveling and #vacationing with a #medicallycomplex child.

🔗 Watch the replay &amp; explore key takeaways: Tinyurl.com/NavigatingVaca…
Alexis Davis (@alexisdneomd) 's Twitter Profile Photo

Bravo Colorado!⛰️👏On account of simple biology, NICU stays can be long and this bill assures that parents don’t have to choose between work and supporting their baby in the hospital: axios.com/2025/06/04/col…

Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

June SOAR Digital Drop is HERE! 🎉 Packed with new activities and fresh ways to connect, express yourself, and engage with peers—all in a space that celebrates YOU! ✅ Already a member? Log in to Canvas! 🔗 Sign up: Tinyurl.com/SOARforHIE #SOAR #PeerSupport #Advocacy

Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

“How do I talk to my child about their #HIE diagnosis?” is one of the most common questions we hear. Annie Gunning, #CCLS, shares how to begin this conversation and let your child's curiosity lead the way. 🔗 Tinyurl.com/ExplainingHIEt… #ChildLife #HIEDiagnosis

“How do I talk to my child about their #HIE diagnosis?” is one of the most common questions we hear. Annie Gunning, #CCLS, shares how to begin this conversation and let your child's curiosity lead the way.

🔗 Tinyurl.com/ExplainingHIEt…

#ChildLife #HIEDiagnosis
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Save the date for #HopeforHIE’s July virtual #support group sessions! For more details and registration links, visit our Instagram, website, and Facebook event pages. #HIESupport #SupportbyHope #ConnectedbyHope #NeuroTwitter #HIE #NICUSupport #PICUSupport #ChildNeurology

Save the date for #HopeforHIE’s July virtual #support group sessions! For more details and registration links, visit our Instagram, website, and Facebook event pages.

#HIESupport #SupportbyHope #ConnectedbyHope #NeuroTwitter #HIE #NICUSupport #PICUSupport #ChildNeurology
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on Tuesday, July 1, at 10:00 AM ET for our video support group designed for #extendedfamily members of children with #HIE to connect, learn, and discuss ways to support their loved ones on their HIE journey. 🔗 Register: Tinyurl.com/HIEExtendedFam… #HIESupport

Join Hope for HIE on Tuesday, July 1, at 10:00 AM ET for our video support group designed for #extendedfamily members of children with #HIE to connect, learn, and discuss ways to support their loved ones on their HIE journey.

🔗 Register: Tinyurl.com/HIEExtendedFam… 

#HIESupport
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on Thursday, July 10, at 8:00 PM ET for our video support group designated for parents and legal guardians who have lost their children due to #HIE, either at birth or in childhood. 🔗 Register: Tinyurl.com/HIELossSupport #HIESupport #HIELossSupport

Join Hope for HIE on Thursday, July 10, at 8:00 PM ET for our video support group designated for parents and legal guardians who have lost their children due to #HIE, either at birth or in childhood. 

🔗 Register:  Tinyurl.com/HIELossSupport 

#HIESupport #HIELossSupport
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on July 21 @ 12 PM ET for Peer Mentor Office Hours! Connect 1:1 with Peer Support Mentor - Brandon - for real-time support, guidance, and connection. 🔗 Register: Tinyurl.com/HIEOfficeHours… #PeerSupport #HIESupport #HIE #NICUSupport #PICUSupport

Join Hope for HIE on July 21 @ 12 PM ET for Peer Mentor Office Hours! Connect 1:1 with Peer Support Mentor - Brandon - for real-time support, guidance, and connection.

🔗 Register: Tinyurl.com/HIEOfficeHours… 

#PeerSupport #HIESupport #HIE #NICUSupport #PICUSupport
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on Tuesday, July 29, at 12:00 PM ET for a virtual support group session for parents and legal guardians to explore #HIE & back-to-school readiness. 🔗 Register: Tinyurl.com/HIEBacktoSchoo… #IEP #504Plan #BacktoSchool #SchoolReadiness #HIESupport #SchoolInclusion

Join Hope for HIE on Tuesday, July 29, at 12:00 PM ET for a virtual support group session for parents and legal guardians to explore #HIE &amp; back-to-school readiness.

🔗 Register: Tinyurl.com/HIEBacktoSchoo… 

#IEP #504Plan #BacktoSchool #SchoolReadiness #HIESupport #SchoolInclusion
Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

Join Hope for HIE on Thursday, July 3, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to #HIE (within one year of diagnosis). 🔗 Register: Tinyurl.com/NewtoHIE #NICU #NeoTwitter #NeuroTwitter #PatientAdvocacy #NewtoHIE

Join Hope for HIE on Thursday, July 3, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to #HIE (within one year of diagnosis). 

🔗 Register: Tinyurl.com/NewtoHIE

#NICU #NeoTwitter #NeuroTwitter #PatientAdvocacy #NewtoHIE