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95% of hEDS patients are misdiagnosed with a psychiatric disorder per new research Among 429 patients, 405 (94.4%) were misdiagnosed — only 24 (5.6%) were not misdiagnosed with psychiatric illnesses Medicine has a major psych bias problem mdpi.com/2227-9067/12/6…

Mark Vink, MD And yet people continue to be gaslit

Clear, robust, evidence-based, up to date & devastating in its scientific truth (not based on opinion or n=1 dubious experience) The fact this & other replies are still needed, in 2025, to counter achingly out of date opinion is dazzling Thanks Mark Vink, MD as ever #MECFS #ME

.Paul Garner Have you read Mark Vink, MD's article yet? I don't understand why The BMJ commissioned another article from you alleging NICE has damaged patients by stating the truth that evidence to support biopsychosocial approaches to treating ME/CFS is absent

King's College London *World-renowned for being one of the major players in the 'greatest medical scandal of the 21st century' - George Monbiot His worked has prolonged & intensified the suffering of so many millions with ME/CFS. youtu.be/RiwX9Y0NbiQ?si…

Researchers developed a 23-amino acid peptide that mimics ACE2 and effectively binds the SARS-CoV-2 spike protein, preventing viral entry. 1/

'Reframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe ME/CFS. Analysis of the BMJ article by Miller et al.' by Mark Vink, MD papers.ssrn.com/sol3/papers.cf… Image is from the latest Science for ME weekly update #MEcfs #CFS

Dillon is almost finished his marathon swim. Yes, he's swimming 42km today for ME Research UK! That's 18hrs of swimming. This isn't getting the coverage it deserves. Does anyone in the ME community have any contacts in the MSM who could help us get more coverage?? #ME #MECFS

„Es ist mir völlig unverständlich, warum an ME/CFS erkrankte Menschen nicht adäquat versorgt werden und betroffene Familien die hohen Behandlungskosten selbst tragen müssen“, sagt Wissenschaftler Marco Bohnhoff, Neils Onkel. „Wie kann das sein – mitten in Deutschland?“

the science around ME is at a tipping point, the government must fund further research⬇️ thetimes.com/uk/healthcare/…

Our latest review on "Neuroimmune pathophysiology of long COVID" is out today! Amazing work of janna moen, phd is still masking 😷 and Christopher A. Baker 👏🏼👏🏼👏🏼 It is open-access; please share widely. #Neuroimmune #PAIS #LongCovid onlinelibrary.wiley.com/doi/10.1111/pc…

Und der Vortrag von Prof Fluge zu den ermutigenden Daten der CD38-Daratumumab-Pilotstudie: 6 von 10 MECFS-Pat. sprachen sehr gut an. Das Medikament richtet sich gegen Auto-Antikörper produzier. Plasmazellen. Ab Min. 8, norw. mit engl. UT. Die Placebo-kontr. Studie ist angelaufen.

Sarah Buckel Also Ärztin fühle ich mich hilflos, mitschuldig und auch wütend, weil das kein unabwendbares Schicksal sein müsste. Zu wenig wird für Menschen wie Sarah getan, zu wenig geforscht, zu wenig investiert. Meist junge Frauen, deren Leiden oft als psychosomatisch abgetan wird.

🦋 Zur Erinnerung an Sarah 1994 - 2025 Sarah Buckel

What to do if you do not have any arguments? Then just continue your unfounded accusations of gaslighting, label it disgusting, make sure that your accusations get even sillier and that you also direct them at others who don’t agree with you #MEcfs x.com/ixabil/status/…

Ich greife hier die Idee von Lisa auf: Wir sollten wirklich alle ( soweit es der körperliche Zustand zulässt), an unsere Abgeordneten schreiben. Diesen Text habe ich an den Landtagsabgeordneten des Landkreises Regensburg geschickt ( siehe auch angehängte Posts).