Hydrocephalus Assoc. (@hydroassoc) 's Twitter Profile
Hydrocephalus Assoc.

@hydroassoc

Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.

ID: 40049695

linkhttp://www.hydroassoc.org calendar_today14-05-2009 18:08:59

11,11K Tweet

6,6K Followers

1,1K Following

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Summer is here, and so is peace of mind šŸŒžšŸŒ“ HydroAssist makes it easy to keep all your important medical info in one place—accessible anytime, anywhere. hydroassoc.org/hydroassist/ Whether you’re at home or on the go, you’ve got what you need right in your pocket.

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What happens inside the brain with hydrocephalus? 🧠 Fluid buildup affects different areas, causing varied symptoms. Learn how brain anatomy shapes the experience and why research is crucial. Read more hydroassoc.org/neuroanatomy-b…

What happens inside the brain with hydrocephalus? 🧠 Fluid buildup affects different areas, causing varied symptoms. Learn how brain anatomy shapes the experience and why research is crucial.
Read more hydroassoc.org/neuroanatomy-b…
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Ready to go all in? šŸ”„ Complete 75 surveys by June 30th and you’ll be entered to win a Coleman Grill—customized with the HA logo! Every survey you complete helps raise money for the Hydrocephalus Association. Let’s finish strong! Text ā€œHYDROā€ to 90412 to start earning

Ready to go all in? šŸ”„
Complete 75 surveys by June 30th and you’ll be entered to win a Coleman Grill—customized with the HA logo! 
Every survey you complete helps raise money for the Hydrocephalus Association. Let’s finish strong!
 Text ā€œHYDROā€ to 90412 to start earning
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Catch up on what’s happening in D.C. in this month’s Scoop on Capitol Hill. There’s a lot in motion that could impact care, coverage, and research for our community. hydroassoc.org/the-hydrocepha…

Catch up on what’s happening in D.C. in this month’s Scoop on Capitol Hill. There’s a lot in motion that could impact care, coverage, and research for our community. hydroassoc.org/the-hydrocepha…
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Having to choose what to cook for every meal is exhausting 🄱 Meal prepping can help you save time, reduce stress, and make healthy eating easier especially on busy days! Ready to take the guesswork out of mealtime? Read our article here: hydroassoc.org/healthy-meal-p…

Having to choose what to cook for every meal is exhausting 🄱 Meal prepping can help you save time, reduce stress, and make healthy eating easier especially on busy days! Ready to take the guesswork out of mealtime? Read our article here: hydroassoc.org/healthy-meal-p…
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Happy Friday! There’s still time to complete 75 surveys before our deadline! Text HYDRO to 90412 or click here: bit.ly/HXC-HYDRO-25 to get started. Already participating? Share this with friends & family so they can help too. Let’s finish strong & hit our goal together! šŸ’™

Happy Friday! There’s still time to complete 75 surveys before our deadline! 

Text HYDRO to 90412 or click here: bit.ly/HXC-HYDRO-25 to get started.
Already participating? Share this with friends & family so they can help too.

Let’s finish strong & hit our goal together! šŸ’™
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We want to hear from you! Tell us what’s working, what’s missing, and how we can better support you and your family. It’s a quick survey - and the first 100 people to complete it get 30% off at the HA Store! bit.ly/4eln0Eo

We want to hear from you! Tell us what’s working, what’s missing, and how we can better support you and your family. It’s a quick survey - and the first 100 people to complete it get 30% off at the HA Store! bit.ly/4eln0Eo
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Jessica was diagnosed w/ congenital #hydrocephalus before birth & has had over 150 shunt surgeries. Despite tough school years, she found her purpose! Now a Community Network Leader, she’s giving back by raising awareness & helping othersšŸ’™ Read her story: hydroassoc.org/people-view/je…

Jessica was diagnosed w/ congenital #hydrocephalus before birth & has had over 150 shunt surgeries. Despite tough school years, she found her purpose! Now a Community Network Leader, she’s giving back by raising awareness & helping othersšŸ’™ Read her story: hydroassoc.org/people-view/je…
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Mark your calendars! šŸ—“ļø This Wednesday, July 2nd at 7 pm ET, join our July #Hydrocephalus Action Network Meetup. hydroassoc.org/event/grassroo…

Mark your calendars! šŸ—“ļø This Wednesday, July 2nd at 7 pm ET, join our July #Hydrocephalus Action Network Meetup. hydroassoc.org/event/grassroo…
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Know someone who runs marathons like it’s no big deal? šŸƒā€ā™€ļø We’ve got just the thing: the 50th Marine Corps Marathon - running for the Hydrocephalus Association! Only a few spots left! hydroassoc.org/endurance-fund… #MarineCorpsMarathon #Marathon #RunForACause #Hydrocephalus

Know someone who runs marathons like it’s no big deal? šŸƒā€ā™€ļø
We’ve got just the thing: the 50th Marine Corps Marathon - running for the Hydrocephalus Association!
Only a few spots left! hydroassoc.org/endurance-fund…

#MarineCorpsMarathon #Marathon #RunForACause #Hydrocephalus
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Good news - there's still time! ā° The deadline to complete surveys for our HundredX fundraiser has been extended to July 7 at 11:59pm CT. šŸ‘‰ Pick up where you left off or jump in now and help us reach our goal! Text ā€œhydroā€ to 90412 or click here: bit.ly/HXC-HYDRO-25

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Want research updates, resources, inspiring stories, and ways to get involved, delivered straight to your inbox? Our newsletter comes out next week! Sign up now so you don’t miss it: bit.ly/46niGlZ

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Whether you're traveling, grilling, or taking it easy—don’t forget: A few minutes of your time = real $$$ for hydrocephalus research, resources & hope for families facing hydrocephalus! Every response fuels progress & we’re so grateful for your support. šŸ’™ Text ā€œHYDROā€ to 90412

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It’s National Research Appreciation Day! šŸŽ‰ To the scientists, clinicians & families pushing hydrocephalus research forward—thank you! Your work brings hope, better treatments & one day, a cure. Explore the milestones we’ve made possible together: hydroassoc.org/research-miles…

It’s National Research Appreciation Day! šŸŽ‰
To the scientists, clinicians & families pushing hydrocephalus research forward—thank you! Your work brings hope, better treatments & one day, a cure.
Explore the milestones we’ve made possible together: hydroassoc.org/research-miles…
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Only 1ļøāƒ£ day left. Let’s make it count! Every survey you complete by Monday, July 7th at 11:59pm CT earns real dollars for the #Hydrocephalus Association—without costing you a thing. Text HYDRO to 90412 or tap the link: bit.ly/HXC-HYDRO-25

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Don’t wait any longer! Sign up for a WALK today and start fundraising to help us find a cure. Every step brings us closer! šŸ’™ hydroassoc.org/find-a-walk-ne…

Don’t wait any longer! Sign up for a WALK today and start fundraising to help us find a cure. Every step brings us closer! šŸ’™ hydroassoc.org/find-a-walk-ne…
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It’s National Video Game Day! šŸŽ® We’re celebrating with Games4Brains because gaming can do good! Check out how you can turn your screen time into support for the hydrocephalus community: hydroassoc.org/games-for-brai… #Hydrocephalus #GameForGood #VideoGames

It’s National Video Game Day! šŸŽ®
We’re celebrating with Games4Brains because gaming can do good!
Check out how you can turn your screen time into support for the hydrocephalus community: hydroassoc.org/games-for-brai…

#Hydrocephalus #GameForGood #VideoGames
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Thank you to the #hydrocephalus advocates who spoke out to protect Medicaid. šŸ’™ The One Big Beautiful Bill passed, but our fight for equitable, affordable healthcare continues. Read our full statement: hydroassoc.org/ha-statement-o… #MedicaidMatters #HealthEquity #AdvocacyMatters

Thank you to the #hydrocephalus advocates who spoke out to protect Medicaid. šŸ’™ The One Big Beautiful Bill passed, but our fight for equitable, affordable healthcare continues.
Read our full statement: hydroassoc.org/ha-statement-o…

#MedicaidMatters #HealthEquity #AdvocacyMatters
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We support Global Get-A-Head day because no matter where a baby is born, early detection matters! It’s time for global standards that protect every child! šŸŒŽšŸ’™ #GlobalGetAHead #HydrocephalusAwareness #Hydrocephalus #HarrysHAT #GetAHead

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Meet Hannah šŸ‘‹ Hannah’s mom shares their story with hydrocephalus, a journey that began at their 20-week scan. At just 4 days old, Hannah had her first brain surgery. She has multiple hospital stays, but she has defied the odds every step of the wayšŸ’™ hydroassoc.org/people-view/ha…

Meet Hannah šŸ‘‹ Hannah’s mom shares their story with hydrocephalus, a journey that began at their 20-week scan.
At just 4 days old, Hannah had her first brain surgery. She has multiple hospital stays, but she has defied the odds every step of the wayšŸ’™
hydroassoc.org/people-view/ha…