HypoPARA Association (@hypoparaassoc) 's Twitter Profile
HypoPARA Association

@hypoparaassoc

Independent non-profit devoted to helping those with ALL forms of hypoparathyroidism.

ID: 1332527011

linkhttps://www.hypopara.org/ calendar_today06-04-2013 21:18:30

869 Tweet

455 Followers

240 Following

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

Chronic #hypoparathyroidism is associated with low bone turnover & abnormally dense bone structure but new study finds 35% of postmenopausal women have #osteoporosis and recommends skeletal monitoring in postmenopausal women and men over 50 with hypopara link.springer.com/article/10.100…

Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Columnist Heather Novak says that building good habits helps her stay on track with her hypoparathyroidism treatment. buff.ly/YKb8pkv

Columnist Heather Novak says that building good habits helps her stay on track with her hypoparathyroidism treatment. buff.ly/YKb8pkv
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

Sallee Hobbs, founder and leader of the rare disease charity Hypoparathyroidism New Zealand (Hypopara NZ) shares her rallying cry to help “crank up the volume” on the story of many living with a rare disease in New Zealand. rarerevolutionmagazine.com/were-not-here-…

Sallee Hobbs, founder and leader of the rare disease charity Hypoparathyroidism New Zealand (Hypopara NZ) shares her rallying cry to help “crank up the volume” on the story of many living with a rare disease in New Zealand.
rarerevolutionmagazine.com/were-not-here-…
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

In her columns debut, Bari Vapnek describes how she came to be diagnosed with what's commonly called hypopara, and how it's been treated. buff.ly/b7vMN64

In her columns debut, Bari Vapnek describes how she came to be diagnosed with what's commonly called hypopara, and how it's been treated. buff.ly/b7vMN64
BridgeBio Pharma (@bridgebiopharma) 's Twitter Profile Photo

Jessica shares her inspiring journey of living with autosomal dominant hypocalcemia type 1 (ADH1), a common genetic form of hypoparathyroidism. Explore her experience and discover the challenges and triumphs she faces along the way. Learn more about Jessica’s story here:

Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

With her physical therapist leaving the practice, columnist Heather Novak worries about losing other care providers on her team. buff.ly/dPJx0GE

With her physical therapist leaving the practice, columnist Heather Novak worries about losing other care providers on her team. buff.ly/dPJx0GE
IFUMSA Quiz and Debate Club OAU (@ifumsaquizclub) 's Twitter Profile Photo

🔥 FEBRILE STUFF🔥 Basic Clinicals Wednesday 👨🏾‍⚕🧑🏾‍⚕🩺 PSEUDOHYPOPARATHYROIDISM 🎯 A very rare inborn error presenting with features of hypoparathyroidism 🎯 It is due to an impaired response of both kidneys and bone to parathyroid hormone

🔥 FEBRILE STUFF🔥

Basic Clinicals Wednesday 👨🏾‍⚕🧑🏾‍⚕🩺

PSEUDOHYPOPARATHYROIDISM

🎯 A very rare inborn error presenting with features of hypoparathyroidism

🎯 It is due to an impaired response of both kidneys and bone to parathyroid hormone
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Everything changed for columnist Bari Vapnek in 2016, when she had a major hypocalcemia episode that nearly claimed her life. hypoparathyroidismnews.com/columns/life-b…

Everything changed for columnist Bari Vapnek in 2016, when she had a major hypocalcemia episode that nearly claimed her life. hypoparathyroidismnews.com/columns/life-b…
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Columnist Bari Vapnek shares what she's learned from her sister's cancer diagnosis. She admires how her sister faced it with head held high. buff.ly/vPfhDmS

Columnist Bari Vapnek shares what she's learned from her sister's cancer diagnosis. She admires how her sister faced it with head held high. buff.ly/vPfhDmS
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Treatment with encaleret normalized calcium levels for most people with chronic hypoparathyroidism in a small proof-of-principle study. buff.ly/D5LBWJc

Treatment with encaleret normalized calcium levels for most people with chronic hypoparathyroidism in a small proof-of-principle study. buff.ly/D5LBWJc
BJS Open (@bjsopen) 's Twitter Profile Photo

Quality of life in patients with permanent hypoparathyroidism after thyroidectomy for benign thyroid disease: population-based study with long-term follow-up ➡️doi.org/10.1093/bjsope… This population-based study aimed to provide a comprehensive understanding of the effects of

Quality of life in patients with permanent hypoparathyroidism after thyroidectomy for benign thyroid disease: population-based study with long-term follow-up
➡️doi.org/10.1093/bjsope…

This population-based study aimed to provide a comprehensive understanding of the effects of
Elena Tsourdi (@elena_tsourdi) 's Twitter Profile Photo

Such a full house on the presentation of the new European Society of Endocrinology (ESE) Guidelunes on chronic hypoparathyroidism, one has to follow from a screen outside the Hall 😎Still, great presentation of management including novel aspects of PTH replacement therapy!

Such a full house on the presentation of the new <a href="/ESEndocrinology/">European Society of Endocrinology (ESE)</a> Guidelunes on chronic hypoparathyroidism, one has to follow from a screen outside the Hall 😎Still, great presentation of management including novel aspects of PTH replacement therapy!
BridgeBio Pharma (@bridgebiopharma) 's Twitter Profile Photo

At this year’s Pediatric Endocrine Society Annual Meeting, we are thrilled to share insight into the planned pediatric study design for autosomal dominant hypocalcemia type 1 (ADH1). Learn more about the genetic form of hypoparathyroidism here: bridgebio.com/what-is-adh1/

Rare Diseases (@checkorphan) 's Twitter Profile Photo

New 4-Year Data Shows Sustained Response to TransCon® PTH (Palopegteriparatide) Therapy in Adults with Hypoparathyroidism - Check the Link for More shorturl.at/RXViX AscendisPharma #PTH #Rare_Diseases #Hypoparathyroidism #Orphan_Drugs #Drug_Development #ESPE

New 4-Year Data Shows Sustained Response to TransCon® PTH (Palopegteriparatide) Therapy in Adults with Hypoparathyroidism - Check the Link for More  shorturl.at/RXViX  <a href="/AscendisPharma/">AscendisPharma</a>  #PTH  #Rare_Diseases  #Hypoparathyroidism  #Orphan_Drugs  #Drug_Development  #ESPE
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Columnist Bari Vapnek, who has hypopara, shares how she offered resources and the gift of hope to someone whose child has the same condition. buff.ly/7a3YQxn

Columnist Bari Vapnek, who has hypopara, shares how she offered resources and the gift of hope to someone whose child has the same condition. buff.ly/7a3YQxn
Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

Hypoparathyroidism doesn't come with a road map, but columnist Bari Vapnek perseveres with the help of a supportive family. buff.ly/apvweLc

Hypoparathyroidism doesn't come with a road map, but columnist Bari Vapnek perseveres with the help of a supportive family. buff.ly/apvweLc
Bari Gordon Vapnek (@gratefulbari) 's Twitter Profile Photo

Treasure every moment knowing anything is attainable with determination. I am thankful for each day, the ones that pushed me, the ones that hurt me and the ones that enlightened me. Forever grateful 🩷 hypoparathyroidismnews.com/columns/suppor… #hypoparathyroidism #bethechange #BraveButterfly🦋

Hypoparathyroidism News (@hypoparanews) 's Twitter Profile Photo

On the anniversary of her hypoparathyroidism diagnosis, columnist Heather Novak is acknowledging her anger while focusing on gratitude. buff.ly/nlSBfzz

On the anniversary of her hypoparathyroidism diagnosis, columnist Heather Novak is acknowledging her anger while focusing on gratitude. buff.ly/nlSBfzz
MBX Biosciences (@mbxbio) 's Twitter Profile Photo

This week, Richard DiMarchi, Ph.D., Indiana University Prof., MBX co-founder & will present on the discovery process for our novel investigational parathyroid hormone replacement therapy at the 2nd Annual Hypoparathyroidism Summit. endocrine.org/-/media/endocr…

This week, Richard DiMarchi, Ph.D., <a href="/IndianaUniv/">Indiana University</a> Prof., MBX co-founder &amp; will present on the discovery process for our novel investigational parathyroid hormone replacement therapy at the 2nd Annual Hypoparathyroidism Summit.

endocrine.org/-/media/endocr…