Aujourd’hui est la Journée de sensibilisation à l’#EncéphalomyéliteMyalgique #EMSFC, une maladie chronique invalidante causant fatigue extrême, douleur et symptômes accrus après un effort. ICanCME Research Network s’emploie à faire avancer la recherche sur l’EM. icancme.ca/fr/?hsid=b97fd…

Today is #MyalgicEncephalomyelitis #MECFSAwarenessDay. ME, a disabling chronic illness, causes extreme fatigue, pain, and worsened symptoms after exertion. ICanCME Research Network unites patients, researchers, and clinicians to advance ME research. icancme.ca/?hsid=bf5f1fa7…

This week, the project team reached a significant milestone: we are into the final analysis stage which tests millions of DNA variants for their association to ME/CFS. Completion of the write-up and announcement of the results will follow as soon as possible.

Case reports of 9 patients with upper cervical instability who had reverse cervical lordosis showed significant improvement in their symptoms & functionality when the lordosis was improved (non surgically)! pmc.ncbi.nlm.nih.gov/articles/PMC10… #mespine #longcovid

📢Patient Partners! Been asked to write a Letter of Support (LOS) and not entirely sure what that is? We co-created a resource with patient partners to explain about LOSs & offer some things you may think/ask about when approached: pxphub.org/a-resource-for… #PatientEngagement #PPI

Cytokines are small molecules produced by a number of cells, including immune cells, in response to external stimuli. Read more about cytokines and OMF's large-scale biomarker study, BioQuest: omf.ngo/cytokines/

🚨 Excited to share our new paper on neuropsychiatric disorders in #MCAS. There are many interesting findings here, but the most striking is: 📢 The most common comorbidity of MCAS was #POTS occurring in 50% of female patients and 16% of male patients. sciencedirect.com/science/articl…

Congratulations Todd. 👏👏👏

🌟A positive step forward! 👉A platform to test efficiently & simultaneously multiple different therapies 🔸Funding is £200K over 18m 🔸Open until 2 December 🔸NIHRIO have already done a rapid horizon scac (report included). 🖇️ tinyurl.com/m2akv6rm.

We are thrilled to announce that Dr. Rae Yeung, a world-leading expert in childhood inflammatory diseases The Hospital for Sick Children (SickKids) Temerty Medicine, has been appointed the new Scientific Director of the CIHR Institute of Musculoskeletal Health and Arthritis. canada.ca/en/institutes-…

New nature article shows immune & metabolic dysfunction drive #MECFS symptoms. Heightened immune activation + impaired energy pathways = fatigue & PEM. Read more: buff.ly/Nd1Bs7F #LongCOVID #ChronicIllness

RECOVER TLC clinical trials should include subgroup tracking and analysis for ME/CFS (using IOM criteria), POTS & other forms of dysautonomia, and MCAS. We joined several orgs in signing this letter to RECOVERY TLC leadership: …1-4a1f-95fe-04914f8004b2.usrfiles.com/ugd/7415c1_847… #LongCovid #pwME #NIH

#PxP25💜For anyone who missed joining us live, we have some 're-watch parties' happening in a few hours on the Zoom Events platform. Come and join us, and connect with others in the Chat!

Good news! Ireland is set to develop new guidelines for #MECFS, and Prof. Brian Hughes will join the steering group. He has long highlighted the neglect of people with ME/CFS and has been a vocal critic of flawed studies. hse.ie/eng/about/who/…

For students: How to quantify neurodegeneration using #microscopy? One way is to use a marker like 🟡 below (SMI32). It identifies a population of pyramidal neurons that is lost early in neurodegenerative diseases like Alzheimer and Parkinson. And after some viral infections👀👀