Discover how CURE ID fosters collaboration among researchers and uncovers new applications for existing treatments in this article featuring the story of a family's experience with a rare disease that had no real options without their help. washingtonpost.com/opinions/inter…

So grateful for Michael Lewis’s continued showcasing of #CUREID and why there is a need for such a platforrm. Check out this clip from Fareed Zakaria on CNN here: google.com/url?q=https://…. Visit CURE ID today to share your treatment experience: cure.ncats.io!

CURE ID is an FDA & NIH platform that collects real-world treatment experiences for rare diseases like sarcomas. Sharing your experience can make a difference! U.S. FDA NIH NCATS Submit your case at cure.ncats.io

Physicians – Your off-label treatment experiences – both successes and failures – could help others. CURE ID makes it easy to share rare cancer cases on a trusted platform – hosted by U.S. FDA and NIH NCATS Start now at cure.ncats.io/therapeutic-ar…

CURE ID is an FDA & NIH platform that collects real-world treatment experiences for rare diseases like sarcomas. Sharing your experience can make a difference! U.S. FDA NIH NCATS Submit your case at cure.ncats.io

We’re excited to share the initial public release of the #BiomedicalData Translator! Translator is an #ArtificialIntelligence tool that harmonizes data sources & interprets them, empowering researchers to explore evidence-based strategies for both understanding & treating

Physicians – Your off-label treatment experiences – both successes and failures – could help others. CURE ID makes it easy to share rare cancer cases on a trusted platform – hosted by U.S. FDA and NIH NCATS Start now at cure.ncats.io/therapeutic-ar…

CURE-ID is reopening the #LongCovid treatment survey! Please make a new report if you haven’t, or update your existing one. They particularly need: a) Treatments that *haven’t* worked b) Newer treatments (monoclonals etc) c) More data overall, to find significance in analysis 1/

To update your previously submitted report, click "Log in" here: cure.ncats.io/pilot-overview… Then go to the “My submissions” section of your account and click the three vertical dots, then click “edit.” 2/

To make a new report, go to cure.ncats.io/pilot-overview… and click “Share treatment.” You may have to make a new account if you haven’t already. You can always email [email protected] for assistance entering or updating your case! 3/

To reiterate, they need: a) reports on what hasn’t worked (dataset is currently skewed towards medications that did help) b) reports on newer drugs/treatments from recent years (existing dataset is often on older treatments) c) more cases! 4/

Providers can also enter case reports for patients. Please circulate to as many patients, providers, and support & advocacy groups as possible! And thank you!! 5/

If you'd like to help with outreach, we've put together a toolkit here. Please feel free to use it! #LongCovid 6/ docs.google.com/document/d/1IZ…

Please consider adding a report if you haven’t already, or updating your existing one! This is a great way to formally document treatments that are/aren’t working for #LongCovid, that will inform future work and candidate selection for clinical trials.

Dr Anna Maria Bombardieri is not on social media, but I still want to praise her here. I'm so grateful to know her and that she's on our team investigating #stellateganglionblock for #longCOVID. She's a principled scientist and peak badass. This study will be sound. #RECOVERTLC

If you haven't filled in this survey or updated your previously submitted one, please do!! This is really meaningful data that will directly impact what treatments are looked at for #LongCovid trials, as well as clinical care. Aiming for 100 new cases by the end of the month!