🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

IDFA member and dad of 3-year-old Ebony, Leigh Derby, tells Win News News Bendigo why more awareness for rare diseases is important. Thank you to Win News Bendigo for featuring this on #RareDiseaseDay. You can view the story here: leadstory.com/v/calls-for-mo… leadstory.com/v/calls-for-mo…

Check out these beautiful masterpieces submitted for our #RareDiseaseDay colouring competition. We received more than 100 entries! Stay tuned for the winners to be announced next Tuesday. #IDFA #RareDiseaseDay2023 #ColouringCompetition #ShareYourColours

Our next PI Education Webinar will be hosted on Tues 7 March, 7.00 pm. Jo Cameron from the National Blood Auth. will update us on the upcoming changes to Australian Produced Plasma Products. ow.ly/G6pz50N6HEy #PIAwareness #primaryimmunodeficiencydiseases #NationalCarersWeek

Meet our upcoming webinar guest, Jo Cameron. Jo will join us for our webinar on Tuesday night where she will discuss the upcoming changes to some Plasma Products. Register now: us02web.zoom.us/webinar/regist… #IDFA #PIAwareness

Today we celebrate International Women’s Day. Collectively, we can all help forge positive change for #women Equity means creating an inclusive world. So give equity a huge embrace, and share your photos today! #EmbraceEquity

Last Tuesday, the 28th of February, IDFA celebrated Rare Disease Day - a global observance dedicated to raising public awareness for rare diseases. Remember that rare is many. Rare is strong. Rare is proud. #RareDiseaseDay #IDFA #RareDisease #PIAwareness

LAST CHANCE TO RSVP: SA Member Meet-up Tomorrow is the last day you can register for our High Tea social event for our members in South Australia. We hope to see you there! RSVP to: [email protected] #IDFA #MemberEvent #PICommunity #MemberMeetup

Hello from South Australia! We’re thrilled to be here at our member meet-up and to see so many individuals coming together to support one another. We’ve learnt from inspiring speakers and connected with like-minded advocates. #SouthAustralia #ImpactMaking #CommunityBuilding

Just attended the Illawarra Women in Business finalist lunch today, and we are thrilled that we were presented with the certificate for Finalist Outstanding Charity. Congratulations to all the finalists!. #womeninbusiness #charity #communityimpact #grateful

Today we launch our campaign to raise awareness about primary immunodeficiencies (PI) - in the lead-up to World Primary Immunodeficiency Week (22-29 April). Let's work together to make this year's World PI Week the most impactful one yet. #WorldPIWeek #PrimaryImmunodeficiencies #RareDisease

Meet Ruth, an IDFA Member with PI - Common Variable Immunodeficiency (CVID). World Primary Immunodeficiency Week is important to her as it raises awareness about CVID and other primary immunodeficiencies. Share your story for #WorldPIWeek2023 #IDFA #PI ow.ly/hTko50NLjIG

It's here! World PI Week has officially begun! 🎉 If you're looking for ways to show your support, consider a donation (by buying a raffle ticket) or sharing your own experiences. #WorldPIWeek #PIawareness #RareDisease #ChronicIllness #Immunodeficiency World Primary Immunodeficiency Week

Meet Megha, a student who has worked with us at the IDFA to research and develop a fatigue online resource. Volunteer with us: ow.ly/evov50Ol1Hh #NVW2023 #TheChangeMakers

Meet Daniel, a volunteer who regular donates blood for people in need. It's clear that Daniel has a strong sense of wanting to help others, and blood donation is one way in which he can. Volunteer with us: ow.ly/kqNR50Ol35q #NVW2023 #TheChangeMakers

It's National Volunteer Week, and here is a story about Linda and Ethan, whos volunteer work with IDFA has highlighted the impacts of COVID-19 on our members. Volunteer with us: ow.ly/m0Ws50Ol1tV #NVW2023 #TheChangeMakers

Today is International #YouthDay! We are hosting a webinar for our 'Youth' to help them navigate the transition to an adult member. Register here: ow.ly/3jRi50PwjL7

COMING SOON! We are excited to share that we are in the planning stages of our upcoming state-based member meet-ups. Keep an eye on social media and in your inbox for further details.

UPCOMING WEBINAR - Newborn Screening for SCID: A Brave New World Register: ow.ly/g7RW50PHCio

Survey: PI in the Post-COVID-19 Context We want to invite you to participate in the IPOPI survey to understand the impact that the COVID-19 pandemic has had and continues to have on individuals living with primary immunodeficiency. Survey link: ow.ly/CrUU50PHCoj

Today, Carolyn, IDFA CEO swam as part of the 32 person relay team to raise awareness for the need for plasma donations. 32 is significant in the fact that it takes that many people to donate their plasma, for just one treatment for Michael Klim ! #IPAW2023