iganfoundation (@iganfoundation) 's Twitter Profile
iganfoundation

@iganfoundation

IgA Nephropathy Foundation

ID: 154986016

linkhttp://www.igan.org calendar_today12-06-2010 19:56:20

696 Tweet

1,1K Followers

539 Following

AKF Advocacy (@akf_advocacy) 's Twitter Profile Photo

The #kidneycommunity needs your voice! Hear from AKF Ambassadors as they share how joining the advocacy program has impacted their lives and consider joining us! Learn more: bit.ly/3Jcdy7a

iganfoundation (@iganfoundation) 's Twitter Profile Photo

PSA: Just in case you forgot, tomorrow is Valentine’s Day AND National Donor Day! Don't worry, we’ve got you covered with some neph-tastically funny, shareable Valentine’s cards! #IgANLove #KidneyBeMine #NephronAndChill #ValentinesDay #NationalDonorDay

PSA: Just in case you forgot, tomorrow is Valentine’s Day AND National Donor Day! 

Don't worry, we’ve got you covered with some neph-tastically funny, shareable Valentine’s cards! 

#IgANLove #KidneyBeMine #NephronAndChill #ValentinesDay #NationalDonorDay
iganfoundation (@iganfoundation) 's Twitter Profile Photo

❤️💙 DON’T MISS OUT ON YOUR OPPORTUNITY TO CONNECT ⁠ ⁠[Virtual] Patient Support Group⁠ Mon, Feb 17th 7PM ET⁠ ⁠ ⁠[Virtual] Caregiver|CarePartner Support Call⁠ Tues, Feb 18th 7PM ET⁠ ⁠ ⁠Full schedule at igan.org/events⁠ ⁠

❤️💙 DON’T MISS OUT ON YOUR OPPORTUNITY TO CONNECT ⁠

⁠[Virtual] Patient Support Group⁠
Mon, Feb 17th 7PM ET⁠
⁠
⁠[Virtual] Caregiver|CarePartner Support Call⁠
Tues, Feb 18th  7PM ET⁠
⁠
⁠Full schedule at igan.org/events⁠
⁠
iganfoundation (@iganfoundation) 's Twitter Profile Photo

SPARK is the ONLY patient advocacy conference 100% dedicated to IgAN. Join us in Chicago this July. Speakers include: David Rush – Patient advocate and storyteller Jennifer Miller – Incurable Optimist author, four transplants in 20 years Learn More l8r.it/V9Hj ❤️💙

SPARK is the ONLY patient advocacy conference 100% dedicated to IgAN. Join us in Chicago this July. Speakers include:
David Rush – Patient advocate and storyteller
Jennifer Miller – Incurable Optimist author, four transplants in 20 years
Learn More l8r.it/V9Hj ❤️💙
iganfoundation (@iganfoundation) 's Twitter Profile Photo

“Women in medicine & research bring a unique perspective to healthcare. We must advocate for patients & advance research for a better world.” – Dr. Areefa Alladin-Karan, pediatric nephrologist & IgAN researcher, working to find safer treatments for children. #WomensHistoryMonth

“Women in medicine & research bring a unique perspective to healthcare. We must advocate for patients & advance research for a better world.” – Dr. Areefa Alladin-Karan, pediatric nephrologist & IgAN researcher, working to find safer treatments for children. #WomensHistoryMonth
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Protect NIH & FDA Funding We are proud to raise awareness with NORD to urge Congress to prioritize rare disease health. The deadline is March 14th—make your voice heard! Send a message to your Senators and Representative today. 📢 Act now: l8r.it/VwYu

Protect NIH & FDA Funding
We are proud to raise awareness with NORD to urge Congress to prioritize rare disease health. The deadline is March 14th—make your voice heard! Send a message to your Senators and Representative today.

📢 Act now: l8r.it/VwYu
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event! l8r.it/oByn #iganephropathy

Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event!

l8r.it/oByn

#iganephropathy
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Pi Day just got a little sweeter! 🥧 Our friends at @CukebookOrg have the perfect kidney-friendly, low-sodium pie crust—flaky, delicious, and easy to make! Dairy-free, egg-free, & low-sodium l8r.it/Udqp #PiDay #KidneyFriendly #BakeForYourHealth

Pi Day just got a little sweeter! 🥧 Our friends at @CukebookOrg have the perfect kidney-friendly, low-sodium pie crust—flaky, delicious, and easy to make! Dairy-free, egg-free, & low-sodium

l8r.it/Udqp

#PiDay #KidneyFriendly #BakeForYourHealth
iganfoundation (@iganfoundation) 's Twitter Profile Photo

🚨 It’s Official – SPARK CHICAGO 2025 is SOLD OUT! 🚨 Missed your chance to register? Don’t worry—you can still join the waitlist, and we’ll do our best to get you in! 130 days away ⏰️ 🗓️ Learn More iganspark.org

🚨 It’s Official – SPARK CHICAGO 2025 is SOLD OUT! 🚨
Missed your chance to register? Don’t worry—you can still join the waitlist, and we’ll do our best to get you in! 

130 days away ⏰️ 🗓️

Learn More iganspark.org
iganfoundation (@iganfoundation) 's Twitter Profile Photo

After her 2019 IgAN diagnosis, Dr. Lina Wong turned to culinary medicine to manage her health & slow disease progression. Now, she empowers others to use nutrition as a tool for healing. We celebrate her dedication this Women’s History, Kidney & Nutrition Month! ❤️💙#KidneyMonth

After her 2019 IgAN diagnosis, Dr. Lina Wong turned to culinary medicine to manage her health & slow disease progression. Now, she empowers others to use nutrition as a tool for healing. We celebrate her dedication this Women’s History, Kidney & Nutrition Month! ❤️💙#KidneyMonth
iganfoundation (@iganfoundation) 's Twitter Profile Photo

⏰Reminder Webinar: How best to eat for IgA Nephropathy⁠ Wednesday, April 2, 2025 | 2:00 PM ET⁠ ⁠ This webinar is in partnership with American Kidney Fund ⁠ Visit IgAN.org/events to RSVP ⁠ #iganephropathy

⏰Reminder

Webinar: How best to eat for IgA Nephropathy⁠
Wednesday, April 2, 2025 | 2:00 PM ET⁠
⁠
This webinar is in partnership with American Kidney Fund
⁠
Visit IgAN.org/events to RSVP
⁠
#iganephropathy
iganfoundation (@iganfoundation) 's Twitter Profile Photo

📢 Raise Your Voice for Rare Kidney Disease❤️💙🦓⁠ We’re heading back to Washington, D.C., for our 2nd Hill Day on September 10-11, 2025! ⁠ Apply now—space is limited! ⁠ l8r.it/MqSK ⁠ #IgANAdvocacy #HillDay2025 #RareKidneyDisease #AdvocateForChange

📢 Raise Your Voice for Rare Kidney Disease❤️💙🦓⁠
We’re heading back to Washington, D.C., for our 2nd Hill Day on September 10-11, 2025! 
⁠
Apply now—space is limited! 
⁠
l8r.it/MqSK 
⁠

#IgANAdvocacy #HillDay2025 #RareKidneyDisease #AdvocateForChange
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Our future looks bright. You are not alone. ❤️💙 As soon as we receive patient facing materials we will update this post and share with our IgAN Community. Learn More l8r.it/mhep

Our future looks bright. You are not alone. ❤️💙 As soon as we receive patient facing materials we will update this post and share with our IgAN Community. 

Learn More
l8r.it/mhep
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Join us on Wed, April 16 @7PM ET for our special webinar on how to find a living donor, where we'll share insights and resources to help you navigate the process. l8r.it/PQaW #DonateLifeMonth #TheGiftOfLife #IgANFoundation

Join us on Wed, April 16 @7PM ET for our special webinar on how to find a living donor, where we'll share insights and resources to help you navigate the process. 

l8r.it/PQaW

#DonateLifeMonth #TheGiftOfLife #IgANFoundation
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Secure your spot and register here: l8r.it/ADUU iganfoundation is hosting this webinar on behalf of Novartis Pharmaceuticals. As a leader in the IgAN community, Novartis Pharmaceuticals is proud to sponsor the IgA Nephropathy Foundation and this webinar.

Secure your spot and register here: l8r.it/ADUU

<a href="/iganfoundation/">iganfoundation</a>  is hosting this webinar on behalf of Novartis Pharmaceuticals. As a leader in the IgAN community, Novartis Pharmaceuticals is proud to sponsor the IgA Nephropathy Foundation and this webinar.
iganfoundation (@iganfoundation) 's Twitter Profile Photo

As part of our Caregiver/Carepartner Night Out & Summit on September 27, 2025, in Jersey City, NJ, we are hosting a special Caregiver Roundtable—a small, dedicated discussion to share insights, challenges, and support. Learn More l8r.it/X1Fa

As part of our Caregiver/Carepartner Night Out &amp; Summit on September 27, 2025, in Jersey City, NJ, we are hosting a special Caregiver Roundtable—a small, dedicated discussion to share insights, challenges, and support.

Learn More 
l8r.it/X1Fa
iganfoundation (@iganfoundation) 's Twitter Profile Photo

l8r.it/N385 RSVP TODAY Can't make the time. RSVP to receive a recording of the webinar. 💙💚 #BlueGreenSpiritWeek #kidneydonor #kidneytransplant #IganTransplant #iganephropathy #livingkidneydonor #bigaskbiggive #giftoflife #shareyourspare

l8r.it/N385

RSVP TODAY

Can't make the time. RSVP to receive a recording of the webinar. 
💙💚 #BlueGreenSpiritWeek #kidneydonor #kidneytransplant #IganTransplant #iganephropathy #livingkidneydonor #bigaskbiggive #giftoflife #shareyourspare
iganfoundation (@iganfoundation) 's Twitter Profile Photo

Meet Amanda She’s navigating life as a post-transplant IgAN warrior with grit, grace—and a splash of creativity. Hailing from Bensalem, PA, Amanda is not only an artist but also an axe and knife thrower. (Yes, you read that right!) #IgANWarrior #IgANephropathy #DonateLifeMonth

iganfoundation (@iganfoundation) 's Twitter Profile Photo

Why does salt matter in IgAN? 🧂 Swelling, protein in the urine, and high blood pressure are common in IgA Nephropathy—and sodium plays a major role. Learn More l8r.it/iKHI #IgAN #KidneyHealth #SodiumAwareness #LowSodiumLiving #IgANAwareness #NutritionAndKidneys

Why does salt matter in IgAN? 🧂
Swelling, protein in the urine, and high blood pressure are common in IgA Nephropathy—and sodium plays a major role. 

Learn More
l8r.it/iKHI

#IgAN #KidneyHealth #SodiumAwareness #LowSodiumLiving #IgANAwareness #NutritionAndKidneys
iganfoundation (@iganfoundation) 's Twitter Profile Photo

For more than a decade, Stuart Miller navigated IgA Nephropathy without meeting another patient like him. That changed in 2019 — and everything shifted. Read his story l8r.it/7InN

For more than a decade, Stuart Miller navigated IgA Nephropathy without meeting another patient like him. That changed in 2019 — and everything shifted. 

Read his story
l8r.it/7InN