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An important publication on the patients’ perspective of healthcare communication about weight management for Idiopathic Intracranial Hypertension (IIH), including recommendations from patients on how HCPs can improve their practice neurologyopen.bmj.com/content/5/2/e0… Dr Susan Mollan IIH UK

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group IIH UK Read more: bit.ly/3RnBWZl

Thank you!

Thank you for being a part of our IIH community! It’s a real privilege to help make a difference to the lives of people living with idiopathic intracranial hypertension. Here’s to 2024!

#PCOS in #IIH 1.5 fold increased #prevalence compared to age and BMI matched controls. Prevalence of 7.4% v. 4.9% from primary care dataset. Recognition could aid #fertility and weight management. ncbi.nlm.nih.gov/pmc/articles/P… Translational Brain Science Research Birmingham UK Dr Susan Mollan EUNOSsociety @IMSR_UoB University Hospitals Birmingham

Meta-analysis about #migraine-related stigma published Neurology Journal OVERCOME found that 31.7% of migraineurs experienced stigma often/very often and it was associated with more disability, greater interictal burden, and reduced quality of life. doi.org/10.1212/WNL.00…

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group IIH UK Read more: bit.ly/3RsgaBZ

Thank you BIOS for promoting the HOPE Programme for people with IIH in your newsletter! Hope For The Community CIC orthoptics.org.uk/hope-programme…

Coming soon! Today we joined 1FitLife at their studio in Christchurch for a day of filming for an exciting new project! More coming soon. #GetMovingWithIIH #Working2RelieveThePressure

Optic nerve course - Mon 3 June 24 (afternoon before EUNOS 2024). Update your knowledge on optic neuritis, optic neuropathy, IIH, inherited optic diseases, & OCT. Discount for those attending EUNOS. eunos2024.org/registration/ UKNOSoc EUNOSsociety NANOS Association of British Neurologists NANSIG (Neurology and Neurosurgery Interest Group)

My #IIH study showed that "normal" #BMI is uncommon at presentation 3.7% but should be considered. Patients had worse visual fields at baseline but similar papilloedema. Long term visual and headache outcomes were similar. IIH UK Translational Brain Science Research Birmingham UK Dr Susan Mollan tandfonline.com/doi/full/10.10…

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group IIH UK Read more: bit.ly/48QmA4x

#IIH has a Clear diagnostic pathway to exclude #CVST and #anaemia Mark IIH UK Translational Brain Science Research Birmingham UK Neurology Trainees Neurochecklists European Headache Federation #EHF future headache experts meeting. Great case based approach jnnp.bmj.com/content/89/10/…

A valauable one-stop #IIH update symposium at the Royal College of Ophthalmologists annual congress, chaired by Dr Susan Mollan - wish it could have gone on for longer! #EyeConUK The art below, which featured in more than one of the talks, is by local Alister McCracken, whose mother suffers from idiopathic

Dr Nima Ghadiri Royal College of Ophthalmologists This was the winner of the IIH UK art competition and for me just is a phenomenal living image of what people with #IIH have to experience. It drives us all to work harder to find solutions for this challenging condition. uknos CEO of Lifter Tick NANOS

We’ve added an important message to the latest news section on our website today regarding the IIH Intervention trial. iih.org.uk

Awareness Month ~ Day 1 Today is the first day of IIH Awareness Month! We'll start the month off with this poem written by Rachel Turner, one of the founding members of IIH UK.

Tanya heard about the course from support group IIH UK National Charity where she found acommunity of people who were in the same situation. Read more: h4c.org.uk/hopestories/20… #LiveWellWithHope #FindYourHope

We're stronger together. 100+ orgs backed by thousands of people working to ensure every person affected by a neurological condition can access the right care at the right time. Thank you for being a strong voice for change. Learn more bit.ly/3oBTlhy #BackThe1in6

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group IIH UK Read more: h4c.org.uk/hopestories/20…