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Endobronchial optical coherence tomography (EB-OCT) presentation by Lida Hariri at #iclaf2024 - super interesting and futuristic way of doing bronchoscopy to diagnose #ILD. Still being validated but imagine doing a simple bronchoscopy to just "look around" and get a diagnosis

Endobronchial optical coherence tomography (EB-OCT) presentation by Lida Hariri at #iclaf2024 - super interesting and futuristic way of doing bronchoscopy to diagnose #ILD. Still being validated but imagine doing a simple bronchoscopy to just "look around" and get a diagnosis

2 potential interventions in #ILD may be to fix gut dysbiosis (bad gut bacteria) and sex hormone levels (if abnormal). Could be influenced by diet, lifestyle changes and existing medication so potentially very actionable now. Very interesting research work coming out #iclaf2024

This presentation really made me think about the need to study what happens in people living with IPF who are "non-progressors" (carry a diagnostic label of IPF but are not really getting worse). Very interesting Vasilios Tzilas

This was a great talk at #iclaf2024. So much to learn from researchers in other fields of medicine

An often taboo topic, but glad we are talking more about the impact of #pulmonaryfibrosis on quality of life and enjoying life

Great talk! The ILD research community is slowly but surely figuring out the causes of #pulmonaryfibrosis which opens doors for personalized therapies (hopefully in the near future!)

Nice summary Also almost looks like a confused or slightly angry half moon

How often do you think lung function testing should be done as part of ILD follow-up? (would be interested in both the patient and healthcare provider perspective)

On screening for pulmonary fibrosis - still is an important role for listening to a person's chest with a stethoscope for "velcro" crackles. Especially in unselected patients who don't have a previous CT scan with risk factors (rheumatological disease, family history of ILD)

Some thoughts on screening for Pulmonary Fibrosis / ILD youtu.be/NR2fmlCRZkE

Interstitial lung abnormalities (ILA) are changes found on chest CT scans that may represent an early form of interstitial lung disease / pulmonary fibrosis. These interstitial abnormalities may be detected before the onset of respiratory symptoms. The definition of these

Important to consider how cough monitoring is implemented as a research outcome in pulmonary fibrosis trials. Especially as cough is such a MAJOR problem in pulmonary fibrosis, we should be putting more thought into this, to make sure that we are indeed capturing real

Important points related to acute exacerbations of interstitial lung disease / OR when people diagnosed with ILD are admitted to ICU for other reasons. Also, need to highlight the unmet need+++ of research into the optimal management of acute exacerbations of ILD

Love to see success stories in the media, where advanced research lead to incredible health outcomes -- hope to have something similar for pulmonary fibrosis soon! theguardian.com/science/2025/f…

Interstitial lung diseases pose unique and very interesting diagnostic and treatment challenges! Really hoping to attract more clinicians to this emerging field, as we certainly need more capacity for seeing patients in clinics, supportive care, handling admin tasks and

Adequate funding for ILD / pulmonary fibrosis services really helps to support patients affected by these conditions. Outcomes certainly improve. This is nothing new. However, unless there is more awareness of the challenges that ILD patients are going through, and the need for

58 - Interstitial lung abnormalities in familial pulmonary fibrosis What is the risk of worsening (progression) of interstitial lung abnormalities (ILA) in relatives of familial cases of pulmonary fibrosis / ILD? Also, is the current definition for ILA the right one in familial

If you wish to donate for pulmonary fibrosis research, please consider this call from a group of researchers and patient representatives I work with in Exeter, UK: exeter.hubbub.net/p/pulmonary-fi… Thank you!