Best of luck to Ed Swain and Ian Macbeth who will run from Dublin to Galway, 217 km, non-stop to raise funds for ILFA Ireland The brave duo will start their run on Ed's birthday 11th June and finish the following day 🎂 You can donate online⬇️ justgiving.com/page/ed-swain-…...

"Let's Talk Money and Budget Advice” from ILFA Ireland and Gerard O’Brien, National Development Officer with the Money Advice and Budgeting Service (@mabsinfo) will take place on 22nd July at 2pm. Please email [email protected] or call 086 057 0310 to register.

International Men’s Health Week Lung fibrosis typically affects more males than females. If you or someone you know is feeling short of breath, has an ongoing cough and feels unwell, please make an appointment with a GP for an urgent health review ilfa.ie

📣Calling all respiratory healthcare professionals! ILFA Ireland will an in-person Mental Health Training Day for healthcare professionals on 18th June 2025 from 9am to 5pm. CPD accreditation will be available for attendees. To register your interest, please email [email protected]

A great article from Roscommon Herald about Ed Swain and Ian Macbeth's epic run to raise pulmonary fibrosis awareness after diagnosis of Ballintubber man. Thank you to everyone involved for their help raising awareness and funds for ILFA Ireland roscommonherald.ie/news/epic-run-…

Attending this morning at Leinster House briefing to support ⁦ILFA Ireland⁩ important advocacy work on #LungFibrosis care.

Ivana Bacik ILFA Ireland Thanks for your time Ivana

Lung Fibrosis patients call for investment in regional services. Read the report on Activelink news. activelink.ie/node/116143 Michael D Macauley 🍉 Jennifer Carroll MacNeill TD Bernard Gloster

Lung Fibrosis patients call for investment in regional services and supports – watch short video before presentation at Leinster House this week. Jennifer Carroll MacNeill TD Bernard Gloster Dr Colm Henry, CCO HSE Ireland Ivana Bacik

🚨 NEW REPORT: Over 80 million people live with chronic respiratory diseases (CRDs) in the WHO European Region—and many more without a diagnosis. A new WHO/ERS report calls for urgent, integrated action. bit.ly/43U5NNA

The next meeting of the ILFA Ireland Patient and Public Involvement (PPI) Research Advisory Group will take place on Monday 23rd June online at 5pm. We look forward to seeing you there!

Irish Medical Times: Lung Fibrosis patients have called for a radical overhaul of services – including a nationwide clinical programme, investment in community services and a national registry of patients. Jennifer Carroll MacNeill TD Dr Colm Henry, CCO HSE Ireland Bernard Gloster imt.ie/news/lung-fibr…

#HappyFathersDay from the Irish Lung Fibrosis Association! Today we celebrate and remember fathers, grandfathers, husbands, fathers in law, step-fathers, brothers, and uncles who have a special place in our hearts and minds. Enjoy your special day!

The next meeting of the ILFA Ireland Patient and Public Involvement (PPI) Research Advisory Group will take place this evening, Monday 23rd June online at 5pm. We look forward to seeing you there!

Congratulations to Dr Niamh Logan who was the winner of the 2025 Terence Moran Memorial Award for the best case presentation at the joint Irish Thoracic Society and ILFA Ireland ILD Study Day in February. Niamh was presented with her Dublin Crystal award by ILFA CEO, Maureen O'Donnell.

The 1st Sligo Pulmonary Fibrosis support group met on 30th June. We had a very successful 1st meeting with a fantastic group of enthusiastic individuals. Keep an eye on ILFA Ireland social media pages for details of the next meeting in August. Maura Heffernan Kerri Manning

A message from Dr Colm Henry on the importance of organ donation and the opt-out register. youtube.com/watch?v=gePXi9… odt Irish Kidney Association ILFA Ireland Irishliverfoundation

Information on the opt-out register available on the HSE website www2.hse.ie/services/organ… Please tell your next of kin if you want to be an organ donor Organ Donation Transplant Ireland ODNM-Organ Donation Nurse Manager Irish Kidney Association ILFA Ireland Irish Hepatology Nurses Association (IHNA)

Recently ILFA Ireland held a "Let’s Talk Money and Budget Advice" with Gerard O’Brien, National Development Officer, Money Advice and Budgeting Service (MABS - The Money Advice and Budgeting Service The Money Advice and Budgeting Service). A recording is now available to watch youtube.com/watch?v=o3RTJ1…