We are pleased to #announce the #launch of the #INOPSU-Website refresh. Go to inopsu.com and #follow us to stay up to date! #inopsu #childhooddiseases #raredeseases #newwebsite #refresh #national #international 🌍

Happy #easter from #INOPSU. We wish a #healthy development to all #children from all over the #world. 🥚🐇❤️

“Annual Meeting of #ESPID coming up next week! Great conference for #paediatric #diseases in general. If you can’t make it to #Ljubljana, you can follow the live streams of some key lectures." Live stream: espidmeeting.org/live-streamed-…

Very important to increase and strengthen existing disease registers. If @BPSUtweet or INOPSU can help publicise please get in contact

Interesting article on "Duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA) incidence calculations for <24 yr olds inGermany". Open source published in BMC on Monday 24 June, 2019. ojrd.biomedcentral.com/articles/10.11…

Our friends at the The Royal Society of Medicine are holding a free webinar on Monday 22 June from 12.30-1.35pm to discuss the risks and opportunities posed by the #COVID19 pandemic on #rarediseases. To book your place visit rsm.ac/36wfoMo #daretothinkrare

The annual rare Disease showcase from findacure will take place online for the first time ever! The virtual rare Disease showcase is from the 17th - 19th of November 2020 findacure.org.uk/rare-disease-s…