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New paper: How can seriousness be framed in a meaningful way in the context of genomics? Unpacking the notion of “serious” genetic conditions: towards implementation in reproductive decision-making?rdcu.be/dRq2M Erika Kleiderman

Are you heading to BSA medsoc at Warwick next week? If so, stop by at our SERG meeting for a free and fascinating discussion of the social and ethical aspects of genomics :) 11th Sept 10am at Warwick or remotely. Register here warwick.ac.uk/serg BSA Medsoc AKA @[email protected]

New paper: Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13 Parth Narendran Matthew J Randell dx.doi.org/10.1111/hex.70…

New Paper: Parents' views of wider genomic screening as part of newborn Cystic Fibrosis screening doi.org/10.1016/j.ssmq…

📢Less than a week to go to the next SERG meeting!📢Hybrid event, so if you can't get to Warwick, join us online, we can't wait to chat social science, ethics and genomics with you! warwick.ac.uk/serg

SERG is a great place for relaxed discussion. You don't need a 'polished'/finished study to present at SERG, we revel in the uncertainty, messiness and realities of research! Works in progress, 'failed' grant applications, field work stories & future dreams are all supported :)

Use of remote methods in qualitative research has various impacts; for participants, for researchers, and for the data produced. Careful study design and delivery are so important. See new guidance, available from today:

New paper involving IF team: Full article: Neurologists’ understanding of reproductive medicine options for genetic forms of motor neuron disease tandfonline.com/doi/full/10.10…

📣Save the date! Next SERG meeting Mon 25th Nov 10:00am, Friend's House, Euston Rd, London. Hybrid available. Focus: Newborn screening for rare diseases. Speakers Celine Lewis (generation study) Jane Chudleigh (SCID pilot) sign up details to follow📣

SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… SERGNetwork Imagining Futures Jane Chudleigh

New article on the QRDC guidance: ncrm.ac.uk/news/show.php?… NCRM Dr. Julie Roberts Imagining Futures Sophie Staniszewska Chinwe Onuegbu, PhD

New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. preprints.jmir.org/preprint/59686 #digitalhealth via JMIR Publications

New paper: comparing in-person and remote qualitative data collection Dr. Julie Roberts Sophie Staniszewska Corinna Clark Frances Griffiths

New Paper: Special Issue in EJHG on Severity. What started as a Fondation Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: doi.org/10.1038/s41431…

How to use the QRDC guidance for remote qualitative studies 👇

📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies onlinelibrary.wiley.com/doi/10.1111/dm…

Great time presenting IF study findings at #ESHG2025 today :)

📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢 onlinelibrary.wiley.com/doi/10.1002/jg…

📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library onlinelibrary.wiley.com/doi/10.1111/dm…