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Despite being preventable and highly treatable if detected early, noma has not yet been officially recognized by the WHO as a Neglected Tropical Disease. To eradicate this devastating disease, this needs to change. 👉bit.ly/NomaEvent

Today the APPG & Lord Trees held an event with MSF UK & Centre for Applied Human Rights to raise the profile of the neglected disease #noma which mainly affects children under the age of 7 living in conditions of poverty & which has a staggering untreated mortality rate of 90% in the first 2 weeks 🧵

Looking forward to the Irish Premiere of our film at Irish Film Institute to be followed by a discussion with Fidel Strub @sherlockmark and MSF Ireland on how to achieve @ZeroNoma and #BeatNTDs

An augmented reality photo project that captures the energy of DJ sets. petapixel.com/2023/04/24/pho…

📢#WHA76 World Health Organization (WHO) Side Event! We welcome you warmly to join MSF International Fidel Strub @CAHRYork Geneva Health Forum @SANTD ISNTD to address the imperative of neglected communities through the lens of #noma to drive #HealthForAll 👉May 23 8.30 CEST, online & in-person 👉forms.gle/a7AjctsFK6ywux…

It’s happening today! Join us and the noma coalition online and in person Geneva Press Club to discuss how we can achieve #ZeroNoma and #BeatNTDs with MSF International ISNTD Geneva Health Forum Drugs for Neglected Diseases initiative FDI World Dental Federation Link: tinyurl.com/NomaWHA76

‘We speak for the 90% of the victims who did not make it… We need to invest in social security, healthcare, education.’ Fidel Strub, #noma survivor, speaks about this devastating, disfiguring, and very neglected disease that mostly affects children. #ZeroNoma #WHA76

🤝 Partnerships are the key, thank you Marta Ribes and Fidel Strub for inspiring others to do more and get noma out of the neglect!

Kamran Rafiq ISNTD was an incredibly dedicated and passionate advocate for NTDs, we will miss him dearly. His dedication to #beatNTDs will continue to shape the landscape of NTD research and advocacy. Honoured to be part of this special tribute. speakingofmedicine.plos.org/2023/07/26/in-…

Following the landmark decision by World Health Organization (WHO) to officially recognize #noma as a neglected tropical disease, we share the words of Mulikat Okanlawon and Fidel Strub co-founders of @Elysium the first noma survivors' association, of which we are proud allies #ZeroNoma #beatNTDs

What a journey! We met Sakina and her mum 7 years ago in Nigeria and Hauwa insisted that we should share the story of her daughter with the world so no child has to endure the dramatic consequences of #noma. Today, we are one step closer to achieving #ZeroNoma

On #WorldNTDDay we are launching our blog ‘The Politics of Disease Framing’. Read the first post from colleagues Centre for Applied Human Rights, York Law School, Inediz, and Universidad Pontificia Comillas 👇 blogs.york.ac.uk/politics-of-di…

In late 2023, the World Health Organization (WHO) officially added #noma to the list of neglected tropical diseases. The Swiss TPH and University of Basel both played a key role in this. That decision could open new doors for funding research programs to understand the disease better. unibas.ch/en/News-Events…

📢Save the date: in Dec 2023, news went round the world that #noma was officially recognised as a Neglected Tropical Disease! Join us and learn: what is noma and what next to tackle this devastating disease? 👉Spotlight on Noma 👉Apr 18 | 13:00-14:30 UTC tinyurl.com/SpotlightNoma

📢What is #noma & what next now that it is officially classed as a Neglected Tropical Disease? Please join World Health Organization (WHO), Elysium Noma Survivors Association, Dr Gebretsadik (EUCLID University), Ms Elsig (Sentinelles), Inediz & ISNTD! 👉tinyurl.com/SpotlightNoma 👉Apr 18 | 13:00 UTC #NeglectedNoMore

TIME's list of the 100 Most Influential People in global health is out today. Mulikat Okanlawon and Fidel Strub are honored to be a part of this group: time.com/time100health Photo by Inediz

📢 Join us on 20 September for our symposium on #Noma, a devastating disease mainly affecting children in extreme poverty. Recently recognized as a #NTD by World Health Organization (WHO), we aim to unite experts & stakeholders to set a common research agenda. 🔗Register here: swisstph.ch/de/about/event…

Looking forward to presenting our documentary in Barcelona next week with Mulikat Okanlawon Elysium Noma Survivors Association! Thanks to ISGlobal and #NitRecerCat for hosting this event.

Mulikat Okanlawon co-founder Elysium Noma Survivors Association shared her ask: use this visit as opportunity to think deeply and do things differently to support all people affected by NTDs, who have dreams too. #noma #uniteacteliminate

Collaboration and determination are the only ways to create sustainable solutions for global health. Listen more. Build trust. 'Think deeply about what you can do to make a difference for others.' (Mulikat Okanlawon, Elysium Noma Survivors Association 2025)