We are grateful for companies like Synlogic that are pursuing new treatments for #PKU! 💙

We've teamed up with ZOIA Pharma in the United States to make Promin products available throughout the States. Contact them today about how they can help you get Promin products via your insurance billing. Sample boxes also available! more info here ➡️ zoiapharma.com

We’re #hiring a Community Engagement Coordinator! We're looking for a dynamic team member for event development, community engagement & camp management. #nonprofitrockstars #fierceadvocates #communicationswizards please apply! Pheed.me/cecjob

Our support groups are happening this Tuesday (12/14) and we would love to see you there. Sign up at the link below #raredisease ow.ly/6V9W50GYWQ9

Congrats to Christine Brown of the NPKUA for receiving the Rare Voice Award for Federal Advocacy for her work to pass the #MNEA. #PKU #medicalfoods Patients & Providers for Medical Nutrition Equity Christine Brown

Historic day for #RareDiseases! The United Nations General Assembly just adopted a #resolution4rare addressing challenges of persons living with a rare disease & their families. Based on UN #SDGs, key asks for human rights, appropriate care & national strategies call to leave no one behind.

Congratulations to the 2021 RareVoice Award recipients! #rarevoice2021 In case you missed it, please enjoy #RareVoice2021 show here: bit.ly/329BJkI To view full list of awardees visit: rarevoiceawards.org

Restocked with wheat starch! Our emergency essentials food containers come in handy for this essential #lowprotein baking ingredient! Now, what shall we bake?🍪🍩🍰🧁 #PKU #IMD

Looks delicious!😋

Happy New Year from your friends at Intermountain PKU! We wish you a healthy 2022 filled with low phe levels!

If you have ever used the NORD PKU assistance program, we need your help! It will only take a few minutes and will make a big difference.

Exciting news about a potential new treatment for #PKU

Just posted a photo instagram.com/p/CkgOwT5Lnis/…

Just posted a photo instagram.com/p/CkinpkGuJyZ/…

Just posted a photo instagram.com/p/ClW4g24PbU0/…

Just posted a photo @ Washington D.C. instagram.com/p/CmM6_83vIdC/…

Just posted a photo instagram.com/p/CnizVcZrQop/…

conta.cc/3WFEz7K #PKUCamp