JIA-at-NRAS (@jia_nras) 's Twitter Profile
JIA-at-NRAS

@jia_nras

A new service launched by @NRAS_UK for families, children, young people and adults affected by Juvenile Idiopathic Arthritis #JIA

ID: 2615243582

linkhttp://www.jia.org.uk calendar_today10-07-2014 10:33:46

2,2K Tweet

1,1K Followers

220 Following

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

Today we welcome this important NCEPOD report about the quality of care provided to people with Juvenile Idiopathic Arthritis. The report highlights several key issues affecting the care of young people with JIA and makes a series of recommendations, that if adopted, could

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

Os ydych chi'n berson ifanc sy'n byw gydag arthritis idiopathig ifanc (JIA) neu eu rhiant, gall deall y cyflwr deimlo'n llethol – ond does dim rhaid iddo fod.πŸ’™ Dyna lle mae ein llyfryn AM DDIM πŸ“– β€œJIA Wedi’i Egluro” o ddefnydd! Mae'r adnodd hanfodol hwn yn llawn popeth sydd

Os ydych chi'n berson ifanc sy'n byw gydag arthritis idiopathig ifanc (JIA) neu eu rhiant, gall deall y cyflwr deimlo'n llethol – ond does dim rhaid iddo fod.πŸ’™

Dyna lle mae ein llyfryn AM DDIM πŸ“– β€œJIA Wedi’i Egluro” o ddefnydd!

Mae'r adnodd hanfodol hwn yn llawn popeth sydd
NRAS (@nras_uk) 's Twitter Profile Photo

πŸ“’ Coming soon! Our Movement & Exercise JoinTogether group kicks off in 2025 with 5 exciting sessions! πŸ‹οΈβ€β™€οΈβœ¨ Led by NRAS volunteer Gill Amos, each session will feature speakers covering everything from low-impact exercises and managing flares & fatigue to returning to high-impact

πŸ“’ Coming soon! Our Movement & Exercise JoinTogether group kicks off in 2025 with 5 exciting sessions! πŸ‹οΈβ€β™€οΈβœ¨

Led by NRAS volunteer Gill Amos, each session will feature speakers covering everything from low-impact exercises and managing flares & fatigue to returning to high-impact
BSR (@rheumatologyuk) 's Twitter Profile Photo

MDTs treating #JIA – we need your input! πŸ“Š Your responses will highlight differences in access and prescribing of #biologics and #tsDMARDs, helping to ensure better treatment pathways. Take the survey today: bit.ly/3QsJlos

MDTs treating #JIA – we need your input! 
πŸ“Š Your responses will highlight differences in access and prescribing of #biologics and #tsDMARDs, helping to ensure better treatment pathways. Take the survey today: bit.ly/3QsJlos
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸŒπŸ’™ WORD Day 2025: Raising Awareness for Childhood Rheumatic Diseases πŸ’™πŸŒ Today is #WORDDay2025, a global initiative dedicated to raising awareness about childhood-onset rheumatic diseases such as Juvenile Idiopathic Arthritis (JIA). Millions of children and young people

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

We're excited to let you know that #WearPurpleForJIA will be on Friday 23rd May - and this year we have added a fun, playful, purple twist to it! πŸͺ£πŸ™†β€β™€οΈ Introducing the Purple Gunge Challenge! Could your school, workplace or health centre take on the challenge and support the

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ’œ Did you know kids can get arthritis too? Meet 16-year-old Daniella, sharing how Juvenile Idiopathic Arthritis (JIA) affects her life. πŸ™‹β€β™€οΈπŸ’¬ Join us on 23rd May for #WearPurpleForJIA and show your support! πŸ’ͺπŸ‘ŸπŸŽ—οΈ πŸ‘‰ More info: jia.org.uk/event/wearpurp…

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ’œ #WearPurpleForJIA is tomorrow! πŸ’œ Thank you so much to everyone who's signed up to #WearPurpleForJIA this year! πŸ™Œ We've been loving hearing your purple plans – non-uniform days πŸ‘•, bake sales 🧁, chocolate tombolas 🍫🎟️, awareness days πŸ“£ – and finding out who's in your

πŸ’œ #WearPurpleForJIA is tomorrow! πŸ’œ
Thank you so much to everyone who's signed up to #WearPurpleForJIA this year! πŸ™Œ

We've been loving hearing your purple plans – non-uniform days πŸ‘•, bake sales 🧁, chocolate tombolas 🍫🎟️, awareness days πŸ“£ – and finding out who's in your
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ’œ #WearPurpleforJIA is tomorrow! πŸ’œ Thank you so much to everyone who's signed up to #WearPurpleforJIA this year! πŸ™Œ We've been loving hearing your purple plans – non-uniform days πŸ‘•, bake sales 🧁, chocolate tombolas 🍫🎟️, awareness days πŸ“£ – and finding out who's in your

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ’œ The Purple Gunge Challenge is in full swing! πŸ’œ Meet Daisy β€” she's only 4 and bravely living with Juvenile Idiopathic Arthritis (JIA). Diagnosed at just 2, she's faced more hospital visits and injections than most adults ever will. But today, she's all smiles gunging her

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

Thank you so much to everyone who got involved last week in #WearPurpleForJIA. Together you've helped us raise over £5,000 to support young people with JIA so far! 🀩 Our Purple Gunge Challenge has proved so popular - we've extended it until 30th September, so sign up today to

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ—“οΈ One month to go! JIA Awareness Week 2025 kicks off next month, and we’re getting ready to raise our voices for children and young people living with Juvenile Idiopathic Arthritis. πŸ’™πŸ’ͺ Let’s come together to spread awareness, share stories, and show that kids get arthritis

πŸ—“οΈ One month to go!

JIA Awareness Week 2025 kicks off next month, and we’re getting ready to raise our voices for children and young people living with Juvenile Idiopathic Arthritis. πŸ’™πŸ’ͺ

Let’s come together to spread awareness, share stories, and show that kids get arthritis
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ₯ AND THE WINNER IS... Congrats to Michelle from Liverpool! πŸ‘ The #WearPurpleForJIA purple goodies will be winging their way to you shortly. 🀩 Thank you so much to everyone who tagged your friends, liked & shared our post and have followed our page, we are so grateful to you

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

πŸ—“οΈ Just 1 week to go! JIA Awareness Week 2025 starts on 7th July πŸ’™ Join us in raising awareness of Juvenile Idiopathic Arthritis and showing support for every child and young person living with JIA. πŸ“£ Get involved, share your story, and help us make an impact. ➑️

πŸ—“οΈ Just 1 week to go!
JIA Awareness Week 2025 starts on 7th July πŸ’™

Join us in raising awareness of Juvenile Idiopathic Arthritis and showing support for every child and young person living with JIA.

πŸ“£ Get involved, share your story, and help us make an impact.
➑️
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

JIA Awareness Week 2025 starts TOMORROW!β€― 7th–11th July πŸ’œ Overβ€―10,000 children in the UKβ€―live with Juvenile Idiopathic Arthritis (JIA) β€” a painful, often misunderstood autoimmune condition that can affect not only joints, but also the eyes, organs, education, and mental

JIA Awareness Week 2025 starts TOMORROW!β€― 7th–11th July πŸ’œ 

Overβ€―10,000 children in the UKβ€―live with Juvenile Idiopathic Arthritis (JIA) β€” a painful, often misunderstood autoimmune condition that can affect not only joints, but also the eyes, organs, education, and mental
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

How would you define JIA? In one word, a sentence, or a feeling β€” tell us in the comments below. Let's raise awareness together this JIA Awareness Week! πŸ’™βœ¨ #JIAAW25

How would you define JIA? In one word, a sentence, or a feeling β€” tell us in the comments below. Let's raise awareness together this JIA Awareness Week! πŸ’™βœ¨ 

#JIAAW25
JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

How does JIA affect school life β€” and what can be done to help? 🏫🦴 Living with Juvenile Idiopathic Arthritis doesn’t stop when the school day ends. Children with JIA may struggle with fatigue, joint pain, mobility, and concentration. This video outlines practical steps

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

How do you treat Juvenile Idiopathic Arthritis? πŸ’ŠπŸ‘§ Treating JIA means calming down an overactive immune system while managing painful symptoms. This video breaks down the most common medications: βœ…β€―Immunosuppressantsβ€―(like methotrexate or biologics) reduce the immune

JIA-at-NRAS (@jia_nras) 's Twitter Profile Photo

Here’s a look back at JIA Awareness Week 2025! πŸŽ₯🌟 Thank you to everyone for joining us in raising awareness, engaging in our content, sharing stories, and supporting the JIA community. You all make a massive difference to everything we do! πŸ’ͺπŸ’œ #JIAAW25