
Jan Rynne
@janrynne
Wife, mother of 4, Chronic Lymphocytic Leukaemia patient and advocate. Volunteer co -founder of CLL Ireland.Views strictly my own.
ID: 1051192647753355264
13-10-2018 19:27:12
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On this World CLL Day, we highlight the importance of our dedicated research community who work to find better #CLL blood cancer treatments and bring us closer to a 'cure' Many of these advancements were highlighted at the Breakthrough Cancer Research event in Dublin this weekend.









We're really looking forward to welcoming members of the public to Systems Biology Ire in just two weeks time for this open-day event with our partners at Breakthrough Cancer Research Tickets are free and can be booked here bit.ly/UCDLabTour University College Dublin UCD Medicine UCD Research UCD Conway Institute

We are one of the wealthiest countries in Europe and have the second highest incidence of cancer, but Ireland only reimbursed 29% of EMA approved cancer drugs compared to 96% in Germany. We are failing cancer patients. Micheál Martin Simon Harris TD


Exploring the current treatment landscape of #CLL at #CLLHZ24! Prof Florence Cymbalista discusses 1st line treatment, @MiguelPavlovsk6 covers 2nd/3rd + Lines. Join experts including Prof Arnon Kater, Brian Koffman & Michael Rynne for insights into treatment sequencing.


69% of leukaemia patients experienced symptoms before diagnosis, but 89% did not know their symptoms could be leukaemia. Great presentation from AJ and Sarah from Picker. We need more awareness #CLLHZ24 CLL Ireland CLL Advocates Network



Another great presentation on how to bring access to better treatments to LMIC's countries. Anna Schuh @MiguelPavlovsk6 Prof Nora Akinola We need to to lobby for access to clinical trials and quicker approval


We were delighted to attend CLL Advocates Network #CLLHZ24 conference in Barcelona. Meeting our advocacy friends, hearing from leading clinical experts, and the advocacy workshops inspire us to work harder so no patients get left behind Jan Rynne CLL Society Inc. CLLSA LyLe Foreningen

Dr Amanda Kracen Associate Professor in Psychology at NCI & coordinator at IPSON Speaking at our event on communication with your medical team. #CLL #BloodCancer #leukaemia #leukemia CLL Society Inc. Brian Koffman Jan Rynne



Wow, what a talk from Brian Koffman of CLL Society Inc. on his amazing #CLL story. 20 years a blood cancer patient and five different treatments. Patients need access to clinical trials and better treatments Jan Rynne @DrRobertOConnor Breakthrough Cancer Research


CLL Ireland Jan Rynne Thank you CLL Ireland for inviting me to speak at this important event for patients with CLL and their care partners. It was a great day for all!