Jan Rynne (@janrynne) 's Twitter Profile
Jan Rynne

@janrynne

Wife, mother of 4, Chronic Lymphocytic Leukaemia patient and advocate. Volunteer co -founder of CLL Ireland.Views strictly my own.

ID: 1051192647753355264

calendar_today13-10-2018 19:27:12

4,4K Tweet

939 Followers

1,1K Following

CLL Ireland (@cllireland) 's Twitter Profile Photo

On this World CLL Day, we highlight the importance of our dedicated research community who work to find better #CLL blood cancer treatments and bring us closer to a 'cure' Many of these advancements were highlighted at the Breakthrough Cancer Research event in Dublin this weekend.

On this World CLL Day, we highlight the importance of our dedicated research community who work to find better #CLL blood cancer treatments and bring us closer to a 'cure' 
Many of these advancements were highlighted at the <a href="/BreakthroCancer/">Breakthrough Cancer Research</a> event in Dublin this weekend.
Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

Today is World CLL Day In Ireland... Less than 2% of cancer patients access clinical trials After EMA approval, there is a two year delay in access. Combination treatments available in N.Ireland but access blocked in the ROI. #LetsLevelUp #WCLLD24

Today is World CLL Day 
In Ireland...
Less than 2% of cancer patients access clinical trials 
After EMA approval, there is a two year delay in access.
Combination treatments available in N.Ireland but access blocked in the ROI.
#LetsLevelUp #WCLLD24
World CLL Day (@wclld) 's Twitter Profile Photo

På denne Verdens CLL Dag er vores tema "Level Up" – for at sikre lige behandling for CLL-patienter. Lad os tage fat på indkomstforskelle, geografiske uligheder og adgang til støtte. Vi kæmper for bedre sundhedslitteratur og omfattende pleje. #WCLLD24 #LetsLevelUp #CLL

På denne Verdens CLL Dag er vores tema "Level Up" – for at sikre lige behandling for CLL-patienter. Lad os tage fat på indkomstforskelle, geografiske uligheder og adgang til støtte. Vi kæmper for bedre sundhedslitteratur og omfattende pleje. #WCLLD24 #LetsLevelUp #CLL
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

📢 Today is World CLL Day 2024! Join us in raising awareness and advocating for equal care and treatment opportunities for Chronic Lymphocytic Leukemia (#CLL) patients worldwide. #LetsLevelUp #WCLLD24

📢 Today is World CLL Day 2024! Join us in raising awareness and advocating for equal care and treatment opportunities for Chronic Lymphocytic Leukemia (#CLL) patients worldwide. #LetsLevelUp #WCLLD24
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Supporting CLL patients goes beyond medical care; emotional & psychological support are crucial. This #WCLLD24, we advocate for comprehensive care through counselling, support groups & resources. Addressing all aspects of well-being uplifts and empowers #CLL patients #LetsLevelUp

Supporting CLL patients goes beyond medical care; emotional &amp; psychological support are crucial. This #WCLLD24, we advocate for comprehensive care through counselling, support groups &amp; resources. Addressing all aspects of well-being uplifts and empowers #CLL patients #LetsLevelUp
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Geographical location shouldn’t affect #CLL care quality, but disparities persist. Rural & remote areas often face challenges in accessing specialised treatments. This #WCLLD24, let’s highlight these inequities & advocate for equal access to care. #LetsLevelUp

Geographical location shouldn’t affect #CLL care quality, but disparities persist. Rural &amp; remote areas often face challenges in accessing specialised treatments. This #WCLLD24, let’s highlight these inequities &amp; advocate for equal access to care. #LetsLevelUp
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

This #WCLLD24, let’s turn advocacy into action. Support policy reforms for fair access to healthcare, clinical trials & supportive services for all #CLL patients. Together, we can impact lives and create a more equitable healthcare system. Your voice matters! #LetsLevelUp

This #WCLLD24, let’s turn advocacy into action. Support policy reforms for fair access to healthcare, clinical trials &amp; supportive services for all #CLL patients. Together, we can impact lives and create a more equitable healthcare system. Your voice matters! #LetsLevelUp
Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

We are one of the wealthiest countries in Europe and have the second highest incidence of cancer, but Ireland only reimbursed 29% of EMA approved cancer drugs compared to 96% in Germany. We are failing cancer patients. Micheál Martin Simon Harris TD

We are one of the wealthiest countries in Europe and have the second highest incidence of cancer, but Ireland only reimbursed 29% of EMA approved cancer drugs  compared to 96% in Germany.
We are failing cancer patients.
 <a href="/MichealMartinTD/">Micheál Martin</a> 
<a href="/SimonHarrisTD/">Simon Harris TD</a>
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

Exploring the current treatment landscape of #CLL at #CLLHZ24! Prof Florence Cymbalista discusses 1st line treatment, @MiguelPavlovsk6 covers 2nd/3rd + Lines. Join experts including Prof Arnon Kater, Brian Koffman & Michael Rynne for insights into treatment sequencing.

Exploring the current treatment landscape of #CLL at #CLLHZ24! Prof Florence Cymbalista discusses 1st line treatment, @MiguelPavlovsk6 covers 2nd/3rd + Lines. Join experts including Prof Arnon Kater, <a href="/briankoffman/">Brian Koffman</a> &amp; <a href="/MichaelRynne1/">Michael Rynne</a> for insights into treatment sequencing.
Michael Rynne (@michaelrynne1) 's Twitter Profile Photo

69% of leukaemia patients experienced symptoms before diagnosis, but 89% did not know their symptoms could be leukaemia. Great presentation from AJ and Sarah from Picker. We need more awareness #CLLHZ24 CLL Ireland CLL Advocates Network

69% of leukaemia patients experienced symptoms before diagnosis, but 89% did not know their symptoms could be leukaemia.
Great presentation from AJ and Sarah from Picker.
We need more awareness 
#CLLHZ24 <a href="/CllIreland/">CLL Ireland</a> 
<a href="/CLLAdvocates/">CLL Advocates Network</a>
CLL Advocates Network (@clladvocates) 's Twitter Profile Photo

At #CLLHZ24 we are diving into the Global CLL Patient/Carer/PAG Experience Surveys. Sarah Gunn, Kathryn Huntley, Nick, Jan Rynne, Dr. Christina Karamanidou, Prof. Kostas Stamatopoulos, and Lorna Warwick discuss findings, unmet needs & impactful actions

At #CLLHZ24 we are diving into the Global CLL Patient/Carer/PAG Experience Surveys. Sarah Gunn, Kathryn Huntley, <a href="/NYLCandCLL/">Nick</a>, <a href="/JanRynne/">Jan Rynne</a>, Dr. Christina Karamanidou, Prof. Kostas Stamatopoulos, and <a href="/LornaWarwick/">Lorna Warwick</a> discuss findings, unmet needs &amp; impactful actions
Jan Rynne (@janrynne) 's Twitter Profile Photo

Another great presentation on how to bring access to better treatments to LMIC's countries. Anna Schuh @MiguelPavlovsk6 Prof Nora Akinola We need to to lobby for access to clinical trials and quicker approval

Another great presentation on how to bring access to better treatments to LMIC's countries.
<a href="/AnnaSchuh3/">Anna Schuh</a> @MiguelPavlovsk6 Prof Nora Akinola
We need to to lobby for access to clinical trials and quicker approval
CLL Ireland (@cllireland) 's Twitter Profile Photo

We were delighted to attend CLL Advocates Network #CLLHZ24 conference in Barcelona. Meeting our advocacy friends, hearing from leading clinical experts, and the advocacy workshops inspire us to work harder so no patients get left behind Jan Rynne CLL Society Inc. CLLSA LyLe Foreningen

CLL Ireland (@cllireland) 's Twitter Profile Photo

Dr Amanda Kracen Associate Professor in Psychology at NCI & coordinator at IPSON Speaking at our event on communication with your medical team. #CLL #BloodCancer #leukaemia #leukemia CLL Society Inc. Brian Koffman Jan Rynne

Dr Amanda Kracen Associate Professor in Psychology at NCI &amp; coordinator at <a href="/IRLpson/">IPSON</a>
Speaking at our event on communication with your medical team.
#CLL #BloodCancer #leukaemia #leukemia 
<a href="/CllSociety/">CLL Society Inc.</a> 
<a href="/briankoffman/">Brian Koffman</a> 
<a href="/JanRynne/">Jan Rynne</a>
CLL Ireland (@cllireland) 's Twitter Profile Photo

Wow, what a talk from Brian Koffman of CLL Society Inc. on his amazing #CLL story. 20 years a blood cancer patient and five different treatments. Patients need access to clinical trials and better treatments Jan Rynne @DrRobertOConnor Breakthrough Cancer Research

Wow, what a talk from <a href="/briankoffman/">Brian Koffman</a> of <a href="/CllSociety/">CLL Society Inc.</a> on his amazing #CLL story.
20 years a blood cancer patient and five different treatments.
Patients need access to clinical trials and better treatments
<a href="/JanRynne/">Jan Rynne</a>
@DrRobertOConnor 
<a href="/BreakthroCancer/">Breakthrough Cancer Research</a>