Jane L Edwards πŸ“š (@jane_l_edwards) 's Twitter Profile
Jane L Edwards πŸ“š

@jane_l_edwards

Author Chronic illness: learning to live behind my smile. #Vasculitis Love #books and #dogs. #raredisease #chronicillness #cev #immunosuppressed. Views my own

ID: 1161763689629999110

linkhttps://www.amazon.com/Jane-L-Edwards/e/B08KGX92VG?ref_=dbs_p_ebk_r00_abau_000000 calendar_today14-08-2019 22:17:02

3,3K Tweet

726 Followers

1,1K Following

RAIRDA (@rairda_org) 's Twitter Profile Photo

Today, RAIRDA has released the Rare Care Matters report, which reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK encounter major barriers in accessing care and treatment. Read the full report on our website πŸ‘‰rairda.org/publication/re…

Today, RAIRDA has released the Rare Care Matters report, which reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK encounter major barriers in accessing care and treatment. 
Read the full report on our website 
πŸ‘‰rairda.org/publication/re…
ZoiAn (@zoian2) 's Twitter Profile Photo

Vasculitis Awareness Month! Vasculitis is a rare rheumatic autoimmune illness and it can present in different ways. #vasculitis #vasculitisawareness #raredisease #livingwithvasculitis #visualisevasculitis _ERNRITA RAIRDA UKIVAS VIA Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š

Vasculitis Awareness Month!
Vasculitis is a rare rheumatic autoimmune illness and it can present in different ways. 
#vasculitis #vasculitisawareness #raredisease #livingwithvasculitis #visualisevasculitis
<a href="/_ERNRITA/">_ERNRITA</a> <a href="/RAIRDA_org/">RAIRDA</a> <a href="/ukivas/">UKIVAS</a> <a href="/VasculitisIA/">VIA</a> <a href="/vascuk/">Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š</a>
Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š (@vascuk) 's Twitter Profile Photo

During May 2025, #VasculitisUK will share what it is like to live with #Vasculitis We also ask those affected by vasculitis or their family members to hold an event on the 15th or 31st May (or any day that works for you) to celebrate the month of awareness vasculitis.org.uk/news/visualisi…

During May 2025, #VasculitisUK will share what it is like to live with #Vasculitis
We also ask those affected by vasculitis or their family members to hold an event on the 15th or 31st May (or any day that works for you) to celebrate the month of awareness vasculitis.org.uk/news/visualisi…
ZoiAn (@zoian2) 's Twitter Profile Photo

Vasculitis Awareness Month! One common initial symptom of vasculitis is joint pain, many times so severe it makes moving impossible. #vasculitis #vasculitisawareness #visualisevasculitis _ERNRITA RAIRDA UKIVAS Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š VIA

ZoiAn (@zoian2) 's Twitter Profile Photo

Vasculitis Awareness Month! One common initial symptom of vasculitis is joint pain, many times so severe it makes moving impossible. #vasculitis #vasculitisawareness #visualisevasculitis _ERNRITA RAIRDA VIA Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š Jane L Edwards πŸ“š

Vasculitis Awareness Month!
One common initial symptom of vasculitis is joint pain, many times so severe it makes moving impossible. 
#vasculitis #vasculitisawareness #visualisevasculitis <a href="/_ERNRITA/">_ERNRITA</a> <a href="/RAIRDA_org/">RAIRDA</a>  <a href="/VasculitisIA/">VIA</a>  <a href="/vascuk/">Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š</a> <a href="/Jane_L_Edwards/">Jane L Edwards πŸ“š</a>
Stamford All Saints' Peregrines (@saintsperegrine) 's Twitter Profile Photo

The 3rd chick hatched at around 2.30 am this morning, but the first confirmation by visual was at 7.30 am when the falcon left to retrieve 'breakfast' - the tiercel then tried to sneak a peek at them but was quickly evacuated by the falcon returning.

The 3rd chick hatched at around 2.30 am this morning, but the first confirmation by visual was at 7.30 am when the falcon left to retrieve 'breakfast' - the tiercel then tried to sneak a peek at them but was quickly evacuated by the falcon returning.
Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š (@vascuk) 's Twitter Profile Photo

#VolunteersWeek! Just want to say thank you to everyone who supports #VasculitisUK Everyone makes such a difference, all #volunteer in their own time - Trustees, #Volunteers, doctors, #vasculitis online support team, #helpline, #fundraisers, #newsletter vasculitis.org.uk/about

#VolunteersWeek! Just want to say thank you to everyone who supports #VasculitisUK Everyone makes such a difference, all #volunteer in their own time  - Trustees, #Volunteers, doctors, #vasculitis online support team, #helpline, #fundraisers,  #newsletter vasculitis.org.uk/about
Vasculitis - In memory of John Mills MBE πŸ’™πŸ’š (@vascuk) 's Twitter Profile Photo

#CarersWeek #Vasculitis a #raredisease does not just affect the patient. It has consequences for #carers & families. Carers also face difficulties and problems. These vary depending on the stage at which the #patient is at any particular time. vasculitis.org.uk/living-with-va…

#CarersWeek #Vasculitis a #raredisease does not just affect the patient. It has consequences for #carers &amp; families. Carers also face difficulties and problems. These vary depending on the stage at which the #patient is at any particular time. vasculitis.org.uk/living-with-va…