Jeanette Andersen (@jeanette_lupus) 's Twitter Profile
Jeanette Andersen

@jeanette_lupus

Chair @lupuseurope
#lupus #SLE

ID: 1627690953338232834

calendar_today20-02-2023 15:26:52

210 Tweet

159 Followers

103 Following

Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🦋 Lupus Europe, @lupusreference, & Daniel G. Oliveira are thrilled to unveil LUPUS-ALERT! 🌍   A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.   Thank you to all the Doctors & patients driving this key project forward!

🦋 Lupus Europe, @lupusreference, &amp; <a href="/G_O_Daniel/">Daniel G. Oliveira</a> are thrilled to unveil LUPUS-ALERT! 🌍
 
A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
 
Thank you to all the Doctors &amp; patients driving this key project forward!
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ One of the most useful - pragmatic - research project I can think of ⬇️ Systematically screening for #vulnerabilities of those living with #Lupus as a way to adjust #SLE care to individual characteristics 💪 #Socioeconomic determinants of health are KEY for long-term outcomes

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ Levels of #physical #activity in a large cohort of patients with #lupus, showing that #SLE patients with LOWER PHYSICAL ACTIVITY have MORE #pain, #fatigue, #stress, and #depression 😭 Open-access download: lupus.bmj.com/content/lupuss…

✅ Levels of #physical #activity in a large cohort of patients with #lupus, showing that #SLE patients with LOWER PHYSICAL ACTIVITY have MORE #pain, #fatigue, #stress, and #depression 😭
Open-access download: lupus.bmj.com/content/lupuss…
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

😃We are at the ERN ReCONNET 🇪🇺 International Congress on rare and low prevalence connective tissue disease! 🦋Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

😃We are at the <a href="/ern_reconnet/">ERN ReCONNET 🇪🇺</a> International Congress on rare and low prevalence connective tissue disease!

🦋Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🌍 BIG NEWS for Lupus Europe and the #lupus community! 🎉 We are thrilled to announce that #LupusGPT has been named a FINALIST for the 2025 Made with Patients Awards! 🔥 This is so huge that we’ve created this thread to help you understand the full scope of this achievement. 👇

🌍 BIG NEWS for Lupus Europe and the #lupus community!

🎉 We are thrilled to announce that #LupusGPT has been named a FINALIST for the 2025 Made with Patients Awards!

🔥 This is so huge that we’ve created this thread to help you understand the full scope of this achievement. 👇
Roxana González (@roxosler) 's Twitter Profile Photo

Great talk by Dr. Morand on the future of drug trial design in SLE. TRM-SLE is a promising multi-domain outcome measure that integrates patient input and defines meaningful clinical thresholds. Towards more inclusive and realistic trials #LUPUS2025

Great talk by Dr. Morand on the future of drug trial design in SLE. TRM-SLE is a promising multi-domain outcome measure that integrates patient input and defines meaningful clinical thresholds. Towards more inclusive and realistic trials #LUPUS2025
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

Laurent ARNAUD 🌈 This work wouldn’t have been possible without Prof Laurent ARNAUD and Alain Cornet! Special thanks to Dr Daniel G. Oliveira, & big thanks to Sarah Dyball, Dr Cristiana Sieiro Santos & Dr elisabetta chessa — with Jeanette Andersen et al. 👉 Share & help raise awareness sciencedirect.com/science/articl…

<a href="/Lupusreference/">Laurent ARNAUD</a> 🌈 This work wouldn’t have been possible without Prof <a href="/Lupusreference/">Laurent ARNAUD</a> and Alain Cornet!

Special thanks to Dr <a href="/G_O_Daniel/">Daniel G. Oliveira</a>, &amp; big thanks to <a href="/sarahdyball1/">Sarah Dyball</a>, Dr <a href="/cristianasieiro/">Cristiana Sieiro Santos</a> &amp; Dr <a href="/elis_chessa/">elisabetta chessa</a>
— with <a href="/Jeanette_Lupus/">Jeanette Andersen</a> et al.

👉 Share &amp; help raise awareness sciencedirect.com/science/articl…
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ This is the last opportunity to contribute to this research on #Lupus #brainfog ⬇️ as we will soon close this 1st step. We will then analyze your contributions, let you know what we found and move forward with the development of the Lupus Brain Fog Severity Scale (#LBFSS) 👍

Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🏆 This Wednesday, we'll find out if #LupusGPT wins the Made WITH Patients #MadeWithPatients Award! 👉 Still don’t know what this huge achievement means? Read our blog post, where you will also find the link to register for the live ceremony at the PEOF. lupus-europe.org/lupusgpt-made-…

Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🌍 Tomorrow EULAR Congress kicks off! ✅ At Lupus Europe, everything is ready to make the most of one of the year's top events, and our Board & some of our PAN members will cover all the #lupus sessions🦋. If you are attending #EULAR2025, don't forget to visit our booth!

🌍 Tomorrow <a href="/eular_org/">EULAR</a> Congress kicks off!

✅ At Lupus Europe, everything is ready to make the most of one of the year's top events, and our Board &amp; some of our PAN members will cover all the #lupus sessions🦋.

If you are attending #EULAR2025, don't forget to visit our booth!
Alessia Alunno (@alessia_alunno) 's Twitter Profile Photo

Good morning Barcelona! Annals of the Rheumatic Diseases is fully operational onsite at #EULAR2025 with an enthusiastic team of guest Social Media Editors. Follow along for live updates!

Good morning Barcelona! <a href="/eular_ARD/">Annals of the Rheumatic Diseases</a> is fully operational onsite at #EULAR2025 with an enthusiastic team of guest Social Media Editors. Follow along for live updates!
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🔔Don’t miss this session that our Chair, Jeanette Andersen, will deliver today at #EULAR2025! 🎤“Developing new AI resources: #Lupus100 & #LupusGPT” 🕝14:30- Room C3 💡Discover how patient-led innovation can shape #lupus education lupusgpt.org lupus100.org

🔔Don’t miss this session that our Chair, <a href="/Jeanette_Lupus/">Jeanette Andersen</a>, will deliver today at #EULAR2025!

🎤“Developing new AI resources: #Lupus100 &amp; #LupusGPT”
🕝14:30- Room C3

💡Discover how patient-led innovation can shape #lupus education

lupusgpt.org
lupus100.org
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

#LupusGPT is finalist for the prestigious #MadeWithPatients award!! Our Chair, @Jeanette_lupus, shares the great news at #EULAR2025! Today we will find out if we are the winners ☺️

#LupusGPT is finalist for the prestigious #MadeWithPatients award!! 

Our Chair, @Jeanette_lupus, shares the great news at #EULAR2025!

Today we will find out if we are the winners ☺️
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

👏Excellent session by our Chair, Jeanette Andersen, on #LupusGPT & #Lupus100: multilingual AI-powered tools offering free, validated & accessible info. Want to learn more or replicate it in other diseases? Visit us at Booth O15- NPO area, glass walkway, near Hall 8.1! #EULAR2025

👏Excellent session by our Chair, <a href="/Jeanette_Lupus/">Jeanette Andersen</a>, on #LupusGPT &amp; #Lupus100: multilingual AI-powered tools offering free, validated &amp; accessible info.

Want to learn more or replicate it in other diseases? Visit us at Booth O15- NPO area, glass walkway, near Hall 8.1!

#EULAR2025
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

😍We love seeing so much interest in #LupusGPT and EasyLupus! Our Chair, @Jeanette_lupus, is answering attendees’ questions and sharing how these tools can support people living with lupus. Visit us at booth O15 in the NPO area and we’ll be delighted to meet you! #EULAR2025

😍We love seeing so much interest in #LupusGPT and EasyLupus! 

Our Chair, @Jeanette_lupus, is answering attendees’ questions and sharing how these tools can support people living with lupus.

Visit us at booth O15 in the NPO area and we’ll be delighted to meet you!

#EULAR2025
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

“Can #LupusGPT be replicated for other diseases?” — a great question from the audience to our Chair, Jeanette Andersen! The answer is YES! 🙌 Visit us at booth O15 or 📧 [email protected] & we’ll be happy to have a chat! 😃 #EULAR2025 http:[email protected]

“Can #LupusGPT be replicated for other diseases?” — a great question from the audience to our Chair, <a href="/Jeanette_Lupus/">Jeanette Andersen</a>!

The answer is YES! 🙌

Visit us at booth O15 or 📧 secretariat@lupus-europe.org &amp; we’ll be happy to have a chat! 😃

#EULAR2025 http:secretariat@lupus-europe.org
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

We did a live survey at #EULAR2025 to find out the difference between the notion of lupus under control for patients and doctors — and the results are shocking! 🚨Patients & drs have very different views. Great talk by Elfriede! Thank you to Jeanette Andersen for her support!

We did a live survey at #EULAR2025 to find out the difference between the notion of lupus under control for patients and doctors — and the results are shocking!

🚨Patients &amp; drs have very different views.

Great talk by Elfriede! Thank you to <a href="/Jeanette_Lupus/">Jeanette Andersen</a> for her support!
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🏆We’re thrilled to announce that hashtag #LupusGPT has won @pfmdwithpatient #MadeWithPatients Award 2025! 🌍A huge moment for Lupus Europe & the #lupus community —proving what’s possible through true patient collaboration. Celebrating at #EULAR2025! Come join us at booth O15!

Lupus Europe (@lupuseurope) 's Twitter Profile Photo

Happy to see so many people stopping by our poster, presented by our Chair, Jeanette Andersen!  Come to poster L340 and learn about some of the insights of our Living with Lupus Survey about doctor-patient relationship from the patient's perspective. #EULAR2025

Happy to see so many people stopping by our poster, presented by our Chair, <a href="/Jeanette_Lupus/">Jeanette Andersen</a>! 

Come to poster L340 and learn about some of the insights of our Living with Lupus Survey about doctor-patient relationship from the patient's perspective.

#EULAR2025
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🤩What an amazing #EULAR2025 Congress!! 🔝Congratulations to EULAR & the whole team for the outstanding organisation and speaker line-up! Happy with our performance and extra proud this year— #LupusGPT won the #MadeWithPatients Award 2025! See you in London at #EULAR2026!

🤩What an amazing #EULAR2025 Congress!!

🔝Congratulations to <a href="/eular_org/">EULAR</a> &amp; the whole team for the outstanding organisation and speaker line-up!

Happy with our performance and extra proud this year— #LupusGPT won the #MadeWithPatients Award 2025!

See you in London at #EULAR2026!