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Ammar Al-Chalabi NICE Department of Health and Social Care MND Association My Name'5 Doddie Foundation MND Scotland It’s also scientifically illiterate.

To add to Ammar Al-Chalabi statement (also see MND Association post in his), it’s bizarre of NICE on Toferson. I have been to Neuroscience Institute who played a major role in the research. US / EU are ok, but a treatment developed in the UK, won’t likely be available for folks with #MND!

This decision is unbelievable, truly unbelievable and unforgivable. I can’t imagine how people with the SOD1 gene are feeling. I expect there are no words for the outrage and disbelief of being denied a life saving treatment

Don't miss the chance to engage at the NICE board meeting on Wednesday, 20th March! Have thoughts on the appraisal of tofersen via the Single Technology Appraisal route?Your input matters – let's ensure it's heard! nice.org.uk/event/pbmarch_…

The news of Rob Burrow CBE's passing deeply saddens us. His remarkable contributions to raising awareness and supporting the fight against #MND #ALS will remain unforgettable. Our heartfelt thoughts are with his friends, family, and fans during this difficult time.

Calling researchers to join our mission to find treatments for #ALS #MND! This is the first of several job openings at King's MND Centre Institute of Psychiatry, Psychology & Neuroscience as part of our program to validate treatment targets. More updates coming soon! #bioinformatics #bigdata

Deadline approaching… Five more days left if you are looking for a postdoc in the field of brain cancer immunotherapy and RNA therapeutics in our lab King's Faculty of Life Sciences & Medicine King’s jobs Brain Research UK

In aljamallab (Khuloud Al-Jamal FRPharmS FRSC), we are trying to develop a convenient and biocompatible sprayable nasal gel containing a therapeutic peptide to treat ALS. Come and see our poster Controlled Release Society meeting (no. 244). Work in collaboration with jemeen sreedharan, Jeff Davies

What a session at the Axon Degeneration Meeting. Former postdoc (now PI) ⁦Andrea Loreto⁩, current postdoc ⁦⁦Elisa Merlini⁩ , collaborator ⁦Dr. Vinod Sundaramoorthy and valued colleague ⁦Veselina Petrova⁩ all speaking/chairing on amazing work. Glowing inside as I listen!

Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease. It works. It can slow progression of their #MND. Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below. #PrescribeLife

Tofersen is first global proven transformational treatment for small part of our #mnd #als community & in UK we are having issues with NICE approving. It’s for about 100 people in UK. They matter! Please help us & sign the petition. #united2endmnd Please sign the petition

🧠 ⭐️PhD Opportunity!⭐️🧬 Are you interested in Brain Cancer and Neuroscience? Want to study in a world-leading university? Look no further than this #CR_UK studentship at #UCL colcc.ac.uk/2025-phd-proje…

Indeed this is an awful decision and makes a mockery of all of our science. I’ve signed and have been spreading the word. We have to fight this so we can fight MND

Please share and help shape LifeArc ‘s work in MND.

Welcome back to the MND annual conference. This event, a joint effort by us and King's College NHS features experts such as Dr Emma Hall, Dr Cathy Ellis & Dr Jemeen Sreedharan. We’re so excited hear the latest on genetics, nutrition & ethical issues! #mnd

Nagoya University jemeen sreedharan @MatthewHotopf Srivastava Lab Prof Srivastava showed the team around the Wohl Cellular Imaging Centre, where users can access cutting-edge light microscopy equipment, image analysis software and workstations for neuroscience and biomedical research.

On behalf of @KingsMND & the #MND Association team, we thank our guests & MPs for visiting today. It was a pleasure to showcase our cutting-edge research facilities and discuss the urgent need for collaboration to find treatments for #MND #ALS. Together, we can #EndMND

London Neurodegenerative Diseases Brain Bank