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Oh look, the same outdated nonsense stuff that we heard on #POTS 20 years ago is now being promoted on #LongCOVID by the same authors. The Grinch syndrome and the evil Dr. Seuss are back. 🤣🤣🙄 onlinelibrary.wiley.com/doi/10.1086/68…

And "of course" there were presents for my birthday. I should've called this video the AfterPre PEMparty, because we all know PEM is often delayed. Atleast it got me to test my new toys. Thanks again for all the BD wishes. See you on the other (PEM) side. #pwme

Traumatic brain injuries (TBIs) result in an immune response that can become dysregulated, leading to neuroinflammation. Could the first ever licensed treatment for TBI be a nasal spray? Harvard scientists evaluated the efficacy of Foralumab delivered by nasal spray in a mouse

Rapsberry I am not promoting outdated nonsense on my account.

In my opinion, postpartum psychosis, depression and anxiety are brain disorders with pathophysiology of hormonal influence on the brain. I am sorry, but I can't see these as "psychiatric" illnesses as these are biologically and physiologically-based brain disorders.

A new study just revealed how psychologically damaging it is to tell a patient that their symptoms are in their head. Here is what they found...🧵

"More than 80% of [systemic autoimmune rheumatic disease] patients reported that having their symptoms dismissed as... psychological, along with comments like "it's in your head," harmed their self-worth. For 72%, the experience remained upsetting even decades later." Read more

The study included 3,396 patients later diagnosed with one or more of the following: Lupus Sjögren’s Vasculitis Systemic sclerosis Inflammatory arthritis Polymyalgia Rheumatica Mixed Connective Tissue Disease Undifferentiated Connective Tissue Disease Other inflammatory rheumatic

They found that patients who were gaslighted by their healthcare provider had higher rates of: - anxiety - depression - healthcare distrust

The lack of an accurate diagnosis can not only cause psychological damage but also physical damage.

Some patients fear they will upset their physician, so they remain silent.

Thankfully, some physicians will set their ego aside and listen without judgment.

To all the physicians out there, quick to tell a patient they are just anxious or depressed, here is a message to you. Just because a patient's physical symptoms are difficult to pinpoint does not mean they are psychosomatic. Please understand the consequences of writing

This research paper summarizes why the Brain Inflammation Collaborative exists. We are on a mission to create a world where these "invisible" conditions are widely recognized, promptly diagnosed, and effectively treated. Has this happened to you? Let us know by leaving a

EBV antibody test can predict MS years before symptom onset…body develops antibodies against a specific part of an EBV protein called EBNA-1- these antibodies then mistakenly cross-react with myelin-related proteins to drive MS. multiplesclerosisnewstoday.com/news-posts/202…

Early identification of individuals at risk for multiple sclerosis by quantification of EBNA-1381-452-specific antibody titers nature.com/articles/s4146…

“We have a number of studies underway trying to figure out which form of [SARS-CoV-2] persistence might be occurring in some patients,” said Dr. Amy Proal. These include: 1. Inert RNA persistence 2. Active translation of viral proteins 3. Active replication of virions,

Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."

Clip of Dr Binita Kane speaking on BBC Breakfast about the new #MECFS delivery plan. There is no commitment to a new service for severe ME. “If Maeve were still alive now, this plan doesn't actually mean anything would have changed and that will be very disappointing to people.”

5 Live Breakfast segment on the UK government's new #MECFS Delivery Plan (9 mins) Interview with Sarah Boothby “There is no expertise anywhere within the NHS and this plan is not going to provide any.” youtu.be/myisnymUcC0?si…