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A6: Can we have child life & music therapy for adults please! There is power in doing crafts with your hands when in a hospital bed that is if your hands are not full of PIVs #ShortBowelSyndrome

A6: Hospital staff should keep in mind that patients often know own needs extremely well. Engaging in active listening and response goes a long way. #ShortBowelSyndrome

A6: Patients and staff should also keep in mind that the psychological wellbeing and psychosocial challenges during hospital stays may vary not only during the course of admission, but from one admission to the next.#ShortBowelSyndrome

A6: Regularly assess wellbeing & offer solutions. Sometimes we want a visit from Childlife or to step outside for a few minutes, but don’t know how to ask. If you (clinicians) would want it for yourself, we patients and caregivers probably do, too. #shortbowelsyndrome

A1: #ShortBowelSyndrome is often seen as a “pediatric” disease. This may mean limited availability for knowledgeable healthcare for adults which can feel scary & overwhelming. Using resources like @NORD and The Oley Foundation and joining online support groups on socials can help

#finishelizasrun

Inspirational Friday! Join our panel on 9/22 in partnership with South Fulton Ministerial Alliance. We will be talking about dementia caregiving and mental health. The link: tinyurl.com/SFMAFacebookLi… #atlerdementia #mentalhealth #caregiving #Alz #supportdementia

Calling all dementia #biomarker researchers! #NIA is #funding applications to establish a transdisciplinary network to explore #dementia biomarkers in people with multiple chronic conditions. Check out the FOA here: bit.ly/3KlK1rJ

Such a pleasure meeting @anjalifp and King Cohen at the Horizons School yesterday! What a testament she gave to advocacy and research in disability populations across the lifespan!

Looking forward to a fabulous day of presentations on patient-centered research and healthcare! #pcori22 The Patient-Centered Outcomes Research Institute

We must save hospice. statnews.com/2022/12/14/hos… Recent article by Ava Kofman has sparked heated discussion w/in hospice & palliative care. Much of it defensive. My MD colleagues seem the exception. General sense among HPC docs is: Enough! Time for clinicians to take back our field.

So excited to see our long-term #NEC outcomes paper up! This project stemmed from the NEC Society's 2019 Symposium & was a patient-led effort! Thank you to everyone who made this work possible! Erin Pryor MPH, RDN, LD Linseigh✨ @JHarrisonPhD Ravi Mangal Patel Susan R Hintz MD doi.org/10.1016/j.semp…

Friends! As part of #ForwardEverDay, following exciting news from BSC Board of Trustees, I am excited to share that the College has chosen to highlight the Embodied Labs VR software subscription as part of its fundraising initiatives. More here: givecampus.com/schools/Birmin…

Many of the Birmingham-Southern College students say professors are fundamental in shaping their success, concern and care for others, and staying in AL for contributing to the state. We decided it was time to share our story. al.com/opinion/2023/1… #bsc #youngboozer