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📢 Calling all Northeast London patients (12-14)! Join us on March 29, 2025 (11 AM - 12:30 PM, Online) for a Sickle Cell Transition Workshop with fun activities, expert advice, prizes & more! 🎉 Sign up now 👉 bit.ly/4hjtKCx #SickleCell #HealthWorkshop

Could you support people with Sickle Cell, Thalassemia & Rare Inherited Anaemias in East London & Essex with welfare & benefits advice? With recent changes, this role is more vital than ever. Apply now: buff.ly/3XNzuxR (Link in bio) Closes 31st March 2025. #JobOpportunity

🌿 Holistic Wellness Workshops for Sickle Cell 🌿 Join us for free sessions in North & East London: ✔️ Pilates – Mar 28 🏋️‍♂️ ✔️ Aromatherapy – Apr 25 🌿 ✔️ Yoga – May 30 🧘 A safe space to relax, learn, and connect. Register here 👉forms.office.com/pages/response… #SickleCell #Wellness

🎉 Bookings are OPEN for the Sickle Cell Family Retreat 2025! 🌟 Join us at Whitemoor Lakes 29th-31st Aug for a weekend of fun & connection for families with a child (6-15) with Sickle Cell. 📅 Apply here:docs.google.com/forms/d/e/1FAI… to secure your spot!💖 #SickleCellFamilyRetreat

Struggling with the emotional impact of sickle cell? 💙 Join the South East London Sickle Cell Psychology Workshops for support, coping strategies, & connection. Open to adults (18+) in select boroughs. Sign up 👉 bit.ly/sicklecellwork… #SickleCell #MentalHealthMatters #SelfCare

🚨 LAST CHANCE TO APPLY! 🚨 We're hiring a Welfare & Benefits Advisor to support those with Sickle Cell, Thalassemia & Rare Anaemias in East London & Essex. With recent welfare changes, this role is vital! 📅 Apply by 31st March 2025 🔗 More info: buff.ly/3XNzuxR

Happy Mother’s Day to all the incredible mums! 💕 Today, we celebrate your love, strength, and dedication. A special shoutout to those for whom this day feels different—you are seen and loved. Wishing you all a beautiful, joy-filled day! #MothersDay 💐

Help improve Sickle Cell care! A review of Barts University Hospital NHS Trust is happening on April 16th, 2025. Share your experience confidentially in a 30-min chat. Your feedback matters! 🖥️ Join via MS Teams. Register now—link in bio or scan the QR code.#SickleCell

The Ultra Challenge is back & better than ever for 2025! 💥 Walk, jog, or run to support the Sickle Cell Society. 15 epic routes, one powerful cause. 💪 Sign up now via the link below & make every step count! 🌟 👉 sicklecellsociety.org/ultrachallenge/ #UltraChallenge2025

A pensioner has received an honorary degree for dedicating her life to helping people w/ sickle cell after her own daughter died from it after being forced to wait 6hrs to be seen in 2002. At nearly 80, Cecilia who still gives support says she is ‘overwhelmed’ by the honour 🥺🙌🏾

✨ Huge thanks to nearly 500 of you who took part in our first #PSP survey — incredible! 💬 Next up: help us shape the research priorities that matter most. Launching this summer — stay tuned! #SickleCell #ResearchMatters #HaveYourSay #PatientVoice #HCPvoices

A new report commissioned by London Ambulance Service and led by the Sickle Cell Society reveals serious failings in ambulance care for sickle cell patients in London. LAS is developing an action plan to address the concerns. 🔗 bit.ly/3JZ3v1s #SickleCell #ACTNOW #NHS

The Emancipated Run Crew is back at the #LondonMarathon supporting the Sickle Cell Society! 🖤❤️💛 Catch them at Mile 7, 15/16, and their MAIN Cheer Zone at Mile 19 🎉 Post-race vibes from 6PM @ Market Halls Victoria! #WeAreERC #SickleCellAwareness

Thank you to everyone who ran the London Marathon yesterday in support of the Sickle Cell Society. This year we have had a record number of runners raising much needed funds and awareness for us and we are extremely grateful for all their hard work. Their support is vital to us.

Help improve Sickle Cell care! A review of Homerton Hospital is happening on May 28, 2025. Share your experience confidentially in a 30-min chat. Your feedback matters! 🖥️ Join via MS Teams. Register now—link in bio or scan the QR code. #SickleCell #Healthcare

Join us for the Sickle Cell Feedback Session with London Ambulance Service & the Sickle Cell Society. 🗓️ Sat 31 May 2025 | 🕐 1–2:30PM An open forum to share progress, feedback & next steps. Scan the QR code to sign up. All are welcome — we look forward to seeing you! #SickleCell

Are you 18–24, living in North-East London, and have experience with Sickle Cell? Join our RHO Transition Project Working Group to help improve the move from child to adult care. Apply by Fri 23 May 2025: bit.ly/RHOpatient-rep

Bring the energy to Mile 10.5 at the Hackney Half this Sunday! 🎉📍 Join us at Well Street Common to cheer on #TeamSickleCell 💪🏾 Running? Tag Sickle Cell Society & use #SickleCellStrong to share your race day moments! 📸 #HackneyHalf2025 #RunForACause #SickleCellStrong #HackneyHalf2025

📅 Join us on 7 June 2025, 11AM–1PM (online) for a fun & empowering Sickle Cell Transition Workshop! 🎮 Games, expert tips, nutrition advice, raffle prizes & more! 👥 For NE London patients aged 14–16. 🔗 Sign up: bit.ly/3YIB3xn #SickleCell #NHS #HealthWorkshop

🧵 20-40% of the population are living with multiple long-term conditions, this is a number that’s set to grow. But siloed funding flows and current models of care are set up to treat individual conditions, rather than taking a holistic view of a patient and their conditions.