J Roberts (@jonrob08) 's Twitter Profile
J Roberts

@jonrob08

Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own

ID: 1203536539327840256

linkhttp://www.ilbcdi.org calendar_today08-12-2019 04:47:39

1,1K Tweet

769 Followers

727 Following

lynn malec (@malecly) 's Twitter Profile Photo

Montgomery Educational Symposium on Hemostasis (MESH) was a huge success thanks to the incredibly bright minds and warm hearts that gathered to honor ‘Montgomery, Milwaukee’s’ amazing career Versiti Blood Research Institute

Montgomery Educational Symposium on Hemostasis (MESH) was a huge success thanks to the incredibly bright minds and warm hearts that gathered to honor ‘Montgomery, Milwaukee’s’ amazing career <a href="/VersitiResearch/">Versiti Blood Research Institute</a>
J Roberts (@jonrob08) 's Twitter Profile Photo

Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!

Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!
J Roberts (@jonrob08) 's Twitter Profile Photo

Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi when F8 prophylaxis alone was insufficient. Emi may treat some #VWD Bleeding and Clotting Disorders Institute Kristin Ansteatt #hemophilia journals.lww.com/bloodcoagulati…

Michael Makris (@profmakris) 's Twitter Profile Photo

I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the World Health Organization (WHO) to have cryoprecipitate and pathogen reduced cryoprecipitate (rather than FVIII concentrate) for the treatment of #hemophilia in the list of essential

I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the <a href="/WHO/">World Health Organization (WHO)</a> to have cryoprecipitate and pathogen reduced cryoprecipitate (rather than FVIII concentrate) for the treatment of #hemophilia in the list of essential
Brian O Mahony (@brianhemophilia) 's Twitter Profile Photo

Centessa have discontinued development of their rebalancing agent, Serpin PC despite encouraging Phase 2 PREScent clinical trial results Decision due to competition from marstacimab and possibly concizumab. This leaves these 2 plus Fitusiran in trials or licenced Michael Makris

Centessa have discontinued  development of their rebalancing agent, Serpin PC despite encouraging Phase 2 PREScent clinical trial results Decision due to competition from marstacimab and possibly concizumab. This leaves these 2 plus Fitusiran in trials or licenced <a href="/ProfMakris/">Michael Makris</a>
National Bleeding Disorders Foundation (@nbd_foundation) 's Twitter Profile Photo

With 70% of bleeding events linked to identified or suspected causes, this study highlights the pressing need for better strategies, including long-term VWD factor (VWF) prophylaxis, to reduce hospitalizations and improve quality of life. Read More: bit.ly/3UWiu6Z

With 70% of bleeding events linked to identified or suspected causes, this study highlights the pressing need for better strategies, including long-term VWD factor (VWF) prophylaxis, to reduce hospitalizations and improve quality of life. Read More: bit.ly/3UWiu6Z
Ben Samelson-Jones, MD, PhD (@drsamelsonjones) 's Twitter Profile Photo

Here is our just published review in #Blood focusing on how new biological insights into #FVIII are setting the stage for new #hemophilia therapies. #hemesky #medsky authors.elsevier.com/a/1k8Qn1UYwnF7k

Here is our just published review in #Blood focusing on how new biological insights into #FVIII 
are setting the stage for new #hemophilia therapies. 

#hemesky #medsky

authors.elsevier.com/a/1k8Qn1UYwnF7k
Brian O Mahony (@brianhemophilia) 's Twitter Profile Photo

A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors representing a global mixture of expertise, all united in their serious concerns about these guidelines which were already outdated on publication 1/3

A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors representing a global mixture of expertise, all united in their serious concerns about these guidelines which were already outdated on publication 1/3
Mark Skinner (@mskinnerdc) 's Twitter Profile Photo

Contrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and VWD. onlinelibrary.wiley.com/doi/abs/10.111… This article developed by a global team of 48 experts and international organizations rigorously examines a number of GRADE methodology adaptations.