At this year's conference, Aimee presented on the importance of fundraising, how donations are put to use and the TEAMWORK it takes to support our small but mighty KAT6 family. Every dollar counts, we appreciate your continued support and we THANK YOU! youtu.be/qL-YE0e8WDk

Tune in as KAT6 Foundation CEO Emile presents on the KAT6 Patient Registry, hosted by National Organization for Rare Disorders (NORD). Emile discusses registry goals, how parents and caregivers can support these goals and how the information provided helps guide research initiatives. youtu.be/Doyj2bklckY

At this year's conference, Drs. Jacqueline Harris and Rowena Ng, PhD of Johns Hopkins University presented "Cognitive and Behavioral Features of KAT6A and KAT6B Disorders", in which they discuss features of KAT6, management, development, cognition and more! Watch: youtu.be/RyrizOsH6MA

Join us this September for our biggest fundraising event of the year - the 8th Annual KATwalk! Be part of something meaningful as we walk together to raise awareness and funds for KAT6 families. Learn more about how you can get involved at the link! donate.kat6a.org/katwalk2025

At the 2025 KAT6 Conference, MD/PhD candidate Sandeep Sreerama presented "The KAT6 Epigenetic Fingerprint: What KAT6 Blood Cells Reveal about Development and Disease Course at Serrano Lab". Watch at the link below! Angie Serrano youtu.be/ko-5EYNiGRI

We're excited to debut a new design for #KATwalk2025! In-person walkers can order tees by purchasing a KATwalk Admission with T-shirt. Walking from ANYWHERE? No problem! Order a general KATwalk t-shirt via our Custom Ink fundraiser. donate.kat6a.org/event/katwalk-…

Dr. Jill Fahrner presented "KAT6 Syndromes & Mendelian Disorders of the Epigenetic Machinery: Perspectives from the Bedside and the Bench" at this year's KAT6 conference. Watch it here: youtu.be/z0NQKdN15SQ

Q&A Friday ✍🏼 How can occupational therapy help your child? Occupational therapists work on fine motor activities required for daily living, aiming to improve a child's motor, cognitive, sensory processing and play skills, using a wide range of equipment to make progress.

Zoe Goldstone-Joubert, BSc and Paul C. Marcogliese, PhD joined us at the 2025 KAT6 Conference to present "Understanding the Spectrum of KAT6A and B Variants using Fruit Flies". Paul Marcogliese Watch it here: youtu.be/UvmHD2yBDV4

At this year's KAT6 Conference, Paulina Varela Castillo joined us to present "Highly Efficient Mutagenesis Methods to Engineer KAT6 and Other Variants for Functional Analyses in vitro". Watch it here: youtu.be/959jfKGYcP4

NCAA Athlete and KAT6 Sibling Lusia Langi joined us at this year's KAT6 Conference to present "Sibling Bonds", sharing her story as a RARE sibling and the incredible bond she has with her brother Cannon. Watch it here: youtu.be/-79esnP-ggA

The KAT6 community came together in Baltimore, MD for the 6th International Conference - two powerful days of connection, research, and inspiration. Click the link to watch the highlight video created for us by Jeff Worden: youtu.be/p1hqdczwwZg

#KATwalk2025 is off to a great start, with over $20,000 raised! Team Luke is hosting their second in-person walk to raise funds and awareness for our foundation, which supports KAT6 families around the world. donate.kat6a.org/katwalk2025

Our "Understanding KAT6" infographic is available on the Family Resources page of our website as a part of our fundraising materials, including brochures, logos and more. Visit us here to download: kat6a.org/fundraising-ma…

Join us for the 8th annual KATwalk and make a difference in the lives of KAT6 families! Sign up for an in-person walk event, register to KATwalk Anywhere or make a donation. Early bird discount available until August 8th with promo code: KAT6 donate.kat6a.org/katwalk2025

Q&A Friday ✍🏼 How can feeding therapy help my child? Feeding therapy improves oral motor and underlying feeding skills by assessing swallowing, chewing, diet and behavior. Many KAT6 kids have feeding delays due to hypotonia, acid reflux, motor planning and sensory issues.

We invite you to support KATwalk2025 by signing up for an in-person walk event, register to KATwalk Anywhere, or make a donation! Receive $5 off registration with our early bird discount, available until Aug 8th using promo code KAT6. 👈🏼 donate.kat6a.org/katwalk2025

We're fundraising to make a difference in the lives of KAT6 families! Support the cause by joining an in-person walk, fundraising virtually or donating! Mattie and Everson are teaming up to raise awareness and look forward to celebrating at their KATwalk! donate.kat6a.org/katwalk2025

We're excited to share a blog post written by Mir Ahmed: "Empowering Families Through the Empowered Grant." Dive into stories of families who’ve gained hope and independence thanks to adaptive equipment and therapies made possible by the Empowered Grant. kat6a.org/empowering-fam…

Team Peter's KATwalk features live music, fishing and a walk in the park! This year features a new t-shirt design, available with the purchase of a "KATwalk Admission with T-shirt" ticket. KATwalk Anywhere teams can order thru our Custom Ink fundraiser. customink.com/fundraising/ka…