We are supporting the Kidney Care Partners Research Project project & are looking for family, partners & friends of people living with a kidney condition to take part in an interview! Share your experiences of getting support & views about online support programs. See the below poster for further info.

Looking forward to attending #UKKW2023 next week! Keen to catch up in person with many of the healthcare professionals, patients and carers we’ve supported over the last year! See you there! 🤩

Apologies to anyone currently trying to access our website. We are experiencing some technical difficulties and hope to be back online again soon.

PatientView has now closed. The viewing of test results for kidney patients has moved to a system called Patients Know Best: bit.ly/3QDddQo For FAQs about the switch: bit.ly/3sez4na For info about the break in service for NI & Scotland: bit.ly/47zp6g3

A study funded by the NIHR at the University of Leicester is investigating the role of pharmacists in managing chronic kidney disease. They are looking for people living with chronic kidney disease and their carers to participate in a short online survey 🙏🙏leicester.onlinesurveys.ac.uk/cosp-kd

Has your #kidney centre received a PREM resource pack yet? Keep an eye out for posters, business cards & stickers 🙌 It’s time to get your team involved: help us by distributing the resources & raising awareness of PREM 2023 opening soon. Learn more ➡️ bit.ly/45vL0zJ

Had a great weekend attending my first KDIGO event in Madrid, a CKD-MBD Controversies Conference. Great to see patient involvement happening internationally & at this level. Kidney Patient Involvement Network (KPIN) Smeeta Sinha Sharon Huish

If you have experience of both #ChronicKidneyDisease & #HeartFailure then you may be interested in the below opportunity, led by a researcher from St George’s University NHS Foundation Trust. #GetInvolvedKPIN kpin.org.uk/impact-of-at-h…

Brilliant! Thanks for including KPIN members in this research! #GetInvolvedKPIN

If you have had experience of #Calciphylaxis, or you care/have cared for someone who does, we'd like to hear from you regarding a research study aiming to better understand what it's like to live with this condition. kpin.org.uk/calciphylaxis-…

We're currently supporting a researcher to set up a PPI group to help develop a point-of-care kidney function testing pathway, which will allow rapid optimisation of medications. Visit our website for further information & contact info: kpin.org.uk/point-of-care-…

We are currently supporting Currie Moore in setting up this group, and she is especially interested in hearing from male carers. If you or someone you know is interested, please contact her via the email address below. #GetInvolvedKPIN

Are you living with a kidney transplant and prescribed immunosuppressants? We need you! 📢 Help us better understand your experiences of taking medication. Visit linktr.ee/summ_kdstudy to get involved🧐

Kidney Research UK Kidney Patient Involvement Network (KPIN) Calling women living with kidney disease! Please share widely, we need to hear your thoughts and experiences to help women like you. Contact Leah : [email protected] Looking forward to hearing from you!

If you’re between 11-20 years old and live in the UK, please have a read about the work Silene is doing and get in touch with her if you’d like to help design her research project! #exercise #mentalhealth #ckd Kidney Patient Involvement Network (KPIN) Maddy Warren Kidney Beam

Colleagues please can you share. We have an exciting face-to-face meeting in Leicester. We are keen to promote to women with kidney disease who may want to attend. Get in touch for more information Popham Kidney Support National Kidney Foundation Kidney Research UK PKD Foundation Kidney Wales Kidney Care UK @kidneycareuk.bsky.social

We are currently supporting Researchers from University Hospital Southampton 💙 who are looking for people who have experienced acute kidney injury (or who have cared for someone who has) who would be willing to share their experiences of their care after hospital discharge. kpin.org.uk/post-discharge…

Get involved now! Visit our page for more information