Daily Dose (@karen_pinachyan) 's Twitter Profile
Daily Dose

@karen_pinachyan

Shaping the #Future of #Healthcare. MD, ENT surgeon #HealthCareIndustry #DigitalHealth #GeneTherapy #PatientAdvocacy #IBD. PERSONAL ONLY

ID: 36387470

calendar_today29-04-2009 15:39:48

5,5K Tweet

909 Followers

3,3K Following

EAHAD (@eahadnews) 's Twitter Profile Photo

Discover the complexities of diagnosis, genetics, and management of Congenital Fibrinogen Disorders and dive into a compelling case study on severe hypofibrinogenemia with Dr Samin Mohsenian and Dr Saskia Schols. 🎥 Now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e-l…

Discover the complexities of diagnosis, genetics, and management of Congenital Fibrinogen Disorders and dive into a compelling case study on severe hypofibrinogenemia with Dr Samin Mohsenian and Dr Saskia Schols. 🎥 Now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e-l…
Wolfgang Miesbach (@miesbach) 's Twitter Profile Photo

EAHAD statement on transforming patient care and the advancement in #genetherapy for #haemophilia: Collaborative efforts, hub&spoke model and educational initiatives eahad.org/the-role-of-ge…

Cihan Ay (@cihan_ay_md) 's Twitter Profile Photo

Exited to share our paper on biological aging in #hemophilia, an inherited bleeding disorder with significant improvements in life expectancy over the last decades. Our results indicate an accelerated biological aging in people with hemophilia. ➡️ doi.org/10.3324/haemat…

Exited to share our paper on biological aging in #hemophilia, an inherited bleeding disorder with significant improvements in life expectancy over the last decades. 
Our results indicate an accelerated biological aging in people with hemophilia.
➡️ doi.org/10.3324/haemat…
Wolfgang Miesbach (@miesbach) 's Twitter Profile Photo

Happy to share our paper that has identified clear predictors for recurrence in acquired #haemophilia A (AHA): Initial FVIII activity <1 IU/dl and failure to achieve initial complete remission. RPTH doi.org/10.1016/j.rpth…

ISTH (@isth) 's Twitter Profile Photo

Good morning ☀️☀️ #ISTH2025 is FINALLY here! Review the program on our mobile app to plan your day. Let us know what you are looking forward to the most today! isth2025.org/program

ISTH (@isth) 's Twitter Profile Photo

Signed, sealed, delivered! We’re thrilled to announce our collaboration agreement with EAHAD to improve outcomes for global bleeding disorders around the world. We look forward to our continued partnership! Read more: isthcongressdaily.org/Articles/ArtMI…

Signed, sealed, delivered! We’re thrilled to announce our collaboration agreement with <a href="/EAHADnews/">EAHAD</a> to improve outcomes for global bleeding disorders around the world. We look forward to our continued partnership! Read more: isthcongressdaily.org/Articles/ArtMI…
Brian O Mahony (@brianhemophilia) 's Twitter Profile Photo

Chowdary #ISTh2025 views on factors influencing Gene Therapy uptake. This has been slower than anticipated. Organisational requirements, need for detailed decision making process for each patient and need for new payment models in my view are big issues

Chowdary #ISTh2025 views on factors influencing Gene Therapy uptake. This has been slower than anticipated. Organisational requirements, need for detailed decision making process for each patient and need for new payment models in my view are big issues
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

The EHC attended #ISTH2025, where Maria Elisa Mancuso & Mark Skinner presented manuscripts we co-authored opposing the ISTH Guidelines. Thanks, Maria Elisa Mancuso (EHC Medical Advisory Group Chair), for representing our community at this pivotal moment! 🙏

The EHC attended #ISTH2025, where Maria Elisa Mancuso &amp; Mark Skinner presented manuscripts we co-authored opposing the ISTH Guidelines. Thanks, Maria Elisa Mancuso (EHC Medical Advisory Group Chair), for representing our community at this pivotal moment! 🙏
EAHAD (@eahadnews) 's Twitter Profile Photo

👏 A truly encouraging session today at the #ISTHCongress on the ISTH haemophilia guidelines. The open and constructive dialogue reflects the progress we’ve made collectively as a global community. This evolving landscape highlights the value of ongoing collaboration and mutual

ISTH (@isth) 's Twitter Profile Photo

See you in Paris! 🗼Mark your calendars for ISTH 2026, taking place July 11–15, 2026 at the stunning Paris Expo Porte de Versailles! 📅 Registration opens November 2025—start planning now! #ISTH2026 #SaveTheDate #Thrombosis #Hemostasis #GlobalHealth #Paris2026

BloodStream Media (@bloodstrmmedia) 's Twitter Profile Photo

Dr. Erik Berntorp joins us to discuss something special related to vWD and Matthew Zachary sits down with Patrick James Lynch to chat all things advocacy and media! bit.ly/thebloodstream… Presenting Sponsor: #Takeda #bloodstreammedia #raredisease #podcast

Dr. Erik Berntorp joins us to discuss something special related to vWD and Matthew Zachary sits down with <a href="/pjlynch/">Patrick James Lynch</a> to chat all things advocacy and media!
bit.ly/thebloodstream…

Presenting Sponsor: #Takeda
#bloodstreammedia #raredisease #podcast
Wolfgang Miesbach (@miesbach) 's Twitter Profile Photo

ISTH 2025 Highlight: Our HOPE-B study results were brilliantly presented by Dr. Steven Pipe at ISTH 2025, showcasing 4-year durability data in haemophilia B gene therapy 🧬. Study Overview 📊 The phase 3 HOPE-B trial evaluated a single IV dose of etranacogene dezaparvovec

ISTH 2025 Highlight: Our HOPE-B study results were brilliantly presented by Dr. Steven Pipe at ISTH 2025, showcasing 4-year durability data in haemophilia B gene therapy 🧬.
Study Overview 📊
The phase 3 HOPE-B trial evaluated a single IV dose of etranacogene dezaparvovec
Wolfgang Miesbach (@miesbach) 's Twitter Profile Photo

Exciting News! 🧬 Our opinion paper on gene therapy qualification criteria has just been published! 🎉 It outlines comprehensive standards for hub-and-spoke centers delivering gene therapy for haemophilia, helping ensure safety and efficacy across Europe and beyond: 🗂️ Timely

Exciting News! 🧬 Our opinion paper on gene therapy qualification criteria has just been published! 🎉 It outlines comprehensive standards for hub-and-spoke centers delivering gene therapy for haemophilia, helping ensure safety and efficacy across Europe and beyond:

🗂️ Timely
Brian O Mahony (@brianhemophilia) 's Twitter Profile Photo

Our paper on Why uptake of haemophilia Gene Therapy has been slower than expected just published. Open access.rpthjournal.org/article/S2475-…

Our paper on Why uptake of haemophilia Gene Therapy has been slower than expected just published. Open access.rpthjournal.org/article/S2475-…
Wolfgang Miesbach (@miesbach) 's Twitter Profile Photo

🎉 "The Best Decision I Ever Made" – Celebrating 10 Years of Gene Therapy at Frankfurt University Hospital. 🗓️ 10 years ago today, on July 22, 2015, Frankfurt University Hospital set a groundbreaking milestone by enrolling the first participant in the AMT-060 gene therapy trial

🎉 "The Best Decision I Ever Made" – Celebrating 10 Years of Gene Therapy at Frankfurt University Hospital. 🗓️ 10 years ago today, on July 22, 2015, Frankfurt University Hospital set a groundbreaking milestone by enrolling the first participant in the AMT-060 gene therapy trial
EAHAD (@eahadnews) 's Twitter Profile Photo

#DidYouKnow? St. Patrick’s Cathedral stands as a testament to Ireland’s rich history, architectural beauty and cultural heritage. It's a must-visit landmark in #Dublin. #EAHADCongress #EAHAD2026

#DidYouKnow? St. Patrick’s Cathedral stands as a testament to Ireland’s rich history, architectural beauty and cultural heritage. It's a must-visit landmark in #Dublin. 
#EAHADCongress #EAHAD2026