Kate 💙 #LetsTalkAboutNETs (@katencuk) 's Twitter Profile
Kate 💙 #LetsTalkAboutNETs

@katencuk

PROs (Lung NETs) Neuroendocrine Cancer UK Patient Support. INCA Research Committee Member. @TheChristieNHS Ask: - if not, why not?

ID: 839806433633894400

calendar_today09-03-2017 11:53:51

4,4K Tweet

710 Followers

974 Following

Histosonics Inc. (@histosonics) 's Twitter Profile Photo

Histosonics’ Histotripsy System Demonstrates 90% Local Tumor Control at 12 Months in #HOPE4LIVER Trials. Durable local control and favorable safety profile position histotripsy as a non-invasive alternative to standard of care locoregional therapy. tinyurl.com/ytv739am

Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Do you look after patients in the UK with Neuroendocrine Cancer / NETS / NECS? Check out our virtual patient handbook here for them - it provides support, information, resources and includes sections for families : neuroendocrinecancer.org.uk/neuroendocrine… UKONS UK Lead Cancer Nurses Cancer Nursing Today

kate (@katydearkate) 's Twitter Profile Photo

Today I ran 10 K !!!🏃🏻‍♀️🎊🏃🏻‍♀️🎊 we are raising awareness for Neuroendocrine Cancer UK #NotJustNECancer this is very close to my ❤️ as my beautiful friend has recently been diagnosed. Most of these cancers are diagnosed at stage 4...we must do better 🙏🏻 please take a look at the website.❤️ Kate 💙 #LetsTalkAboutNETs

Today I ran 10 K !!!🏃🏻‍♀️🎊🏃🏻‍♀️🎊 we are raising awareness for <a href="/ncukcharity/">Neuroendocrine Cancer UK #NotJustNECancer</a> this is very close to my ❤️ as my beautiful friend has recently been diagnosed. Most of these cancers are diagnosed at stage 4...we must do better 🙏🏻 please take a look at the website.❤️ <a href="/KateNCUK/">Kate 💙 #LetsTalkAboutNETs</a>
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

🎥 New webinar recording now available: Bill Harris & Elena Vrana (The Christie) outline the purpose, phases & patient value of clinical trials in neuroendocrine cancer — incl. a case study & advocacy insights. Watch here: youtu.be/DYBhHuFKhZM?si…

Thor Halfdanarson (@oncothor) 's Twitter Profile Photo

Lu-177 DOTATATE PRRT in patients with NETs and extensive bone metastases. Is it effective and is it safe? It looks like the answer is yes to both and indeed, we use it frequently under such circumstances. Skeletal related events were 20%... jnm.snmjournals.org/content/early/…

kate (@katydearkate) 's Twitter Profile Photo

Today it's #GlobalRunningDay so I ran 🏃🤣❤️ even tho it's late and I'm shattered 🤣 had a lovely motivating email from Neuroendocrine Cancer UK #NotJustNECancer today....reminded me why I started this 🙏🏻 This charity work so hard to support patients/families/,HCPs ❤️ Kate 💙 #LetsTalkAboutNETs they are brilliant 🙏🏻♥️

Today it's #GlobalRunningDay  so I ran 🏃🤣❤️ even tho it's late and I'm shattered 🤣 had a lovely motivating email from <a href="/ncukcharity/">Neuroendocrine Cancer UK #NotJustNECancer</a> today....reminded me why I started this 🙏🏻 This charity work so hard to support patients/families/,HCPs ❤️  <a href="/KateNCUK/">Kate 💙 #LetsTalkAboutNETs</a> they are brilliant 🙏🏻♥️
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

“When Deb was diagnosed with neuroendocrine cancer in 2005, I had no idea what we were facing. Finding The Christie changed everything. My advice? Advocate hard. Get to a Centre of Excellence.” — Dave. A 20-year caregiving journey: ow.ly/EA5O50W8AuA

NET Cancer Day (@netcancerday) 's Twitter Profile Photo

👉Close collaboration between NEN researchers and NEN patients helps advance patient-centered research. ☑️Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-ins… #LetsTalkAboutNETs

👉Close collaboration between NEN researchers and NEN patients helps advance patient-centered research. ☑️Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-ins…
#LetsTalkAboutNETs
Thor Halfdanarson (@oncothor) 's Twitter Profile Photo

Nirupa Sachithanandan Great point! I often ask that at the end of visit. Patients with NETs are often exceptionally well informed, even at the first visit largely because of the quality material provided by groups like Neuroendocrine Cancer Foundation, NET Research Foundation, NET Cancer Day, CarcinoidCancer CCF, NCAN and others

kate (@katydearkate) 's Twitter Profile Photo

A very hot 7 K run today 🏃🏻‍♀️🌞🥵as always motivated by my reason for starting this... Raising awareness for Neuroendocrine Cancer UK #NotJustNECancer Kate 💙 #LetsTalkAboutNETs to support my friend. Hardly anyone I know had heard of these cancers and the charity is small and relies on fundraising 🙏🏻♥️

A very hot 7 K run today 🏃🏻‍♀️🌞🥵as always motivated by my reason for starting this... Raising awareness for <a href="/ncukcharity/">Neuroendocrine Cancer UK #NotJustNECancer</a> <a href="/KateNCUK/">Kate 💙 #LetsTalkAboutNETs</a> to support my friend. Hardly anyone I know had heard of these cancers and the charity is small and relies on fundraising 🙏🏻♥️
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

Diagnosed at 28 with Lung Neuroendocrine Cancer (AC), Laura's journey highlights diagnostic delays, surgical recovery, and the role of support groups. A powerful reminder of early symptom recognition & multidisciplinary care. ow.ly/EPVV50WfwrZ

Kate 💙 #LetsTalkAboutNETs (@katencuk) 's Twitter Profile Photo

Sharing again because these developments are vital for the future of all Lung Neuroendocrine Cancer patients … Breakthrough Research Paves Way for Personalised Treatment in Lung Neuroendocrine Cancer ⁦Open Science Community Maastricht⁩ neuroendocrinecancer.org.uk/breakthrough-l…

NET Cancer Day (@netcancerday) 's Twitter Profile Photo

📌Carcinoid syndrome with lung NETs can produce bronchospasm, which is quite different from the sort of carcinoid syndrome you may get with GI NETs, with flushing and the diarrhea. ☑️Get to know lung NETs with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs

📌Carcinoid syndrome with lung NETs can produce bronchospasm, which is quite different from the sort of carcinoid syndrome you may get with GI NETs, with flushing and the diarrhea. 
☑️Get to know lung NETs with #NETInfo in 11 languages: incalliance.org/net-info-packs/
#LetsTalkAboutNETs
Thor Halfdanarson (@oncothor) 's Twitter Profile Photo

I try, often unsuccessfully, to not post while on vacation but this is just too important. Hot of the Arvind Dasari, MD, MS et al. press. New SEER data. Increasing incidence and prevalence, owing to earlier and likely largely incidental diagnoses. Improving OS too🙂 jamanetwork.com/journals/jaman…

I try, often unsuccessfully, to not post while on vacation but this is just too important. Hot of the <a href="/adasarimd/">Arvind Dasari, MD, MS</a> et al. press. New SEER data. Increasing incidence and prevalence, owing to earlier and likely largely incidental diagnoses. Improving OS too🙂

jamanetwork.com/journals/jaman…
The Brain Tumour Charity (@braintumourorg) 's Twitter Profile Photo

Today the Rare Cancers Bill passed its Third Reading. A massive thank you to everyone in the rare cancer community who wrote to their MP to secure their support and make sure it passed.

Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

⚠️ Outdated & misleading: “Carcinoid” fails to reflect the malignant potential of neuroendocrine neoplasms & should no longer be used. Clear terminology = better understanding, earlier diagnosis, improved care. neuroendocrinecancer.org.uk

⚠️ Outdated &amp; misleading: “Carcinoid” fails to reflect the malignant potential of neuroendocrine neoplasms &amp; should no longer be used.

Clear terminology = better understanding, earlier diagnosis, improved care.

neuroendocrinecancer.org.uk
NET Cancer Day (@netcancerday) 's Twitter Profile Photo

Are you a NET patient getting ready for radioligand therapy? 📢INCA is launching a NEW #NETInfo factsheet on #RadioligandTherapy designed to help patients to be prepared and confident. ☑️Available in 15 languages to download from #NETInfo Pack: incalliance.org/net-info-packs/

Are you a NET patient getting ready for radioligand therapy? 
📢INCA is launching a NEW #NETInfo factsheet on #RadioligandTherapy designed to help patients to be prepared and confident. 
☑️Available in 15 languages to download from #NETInfo Pack: incalliance.org/net-info-packs/
Neuroendocrine Cancer UK #NotJustNECancer (@ncukcharity) 's Twitter Profile Photo

🎙️ New episode: Two Neuroendocrine Cancer UK professionals, Kate & Craig, share their unique perspectives as both staff and neuroendocrine cancer patients. A powerful look at bridging lived experience with professional roles in cancer support. 🎧 Listen now: