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Join us for this year's #MWMsymposium, which will kick off with presentations to bring light to theoretical models of HRQL in pediatrics, the challenges of measuring QOL and solutions to these challenges. Learn more: ow.ly/VQUz50ITVNA Children's Hospital Duke University School of Medicine

Ever been concerned that the order of questions posed in a PRO affects the results? Paul Novotny et al. provide evidence that the ordering of domains does not affect the results. SCTorg Mayo Clinic FDA Oncology Ethan Basch journals.sagepub.com/doi/pdf/10.117…

How frequently should PROs be required in cancer trials to avoid under-reporting of symptoms? Every week, say Bellinda King-Kallimanis and colleagues. Bellinda King-Kallimanis SCTorg FDA Oncology #PFDD Ethan Basch #clinicaltrials journals.sagepub.com/doi/pdf/10.117…

Ethan Basch, Gita Thanarajasingham and Amylou Dueck outline a list of methodological standards for the use of PROs in cancer clinical trials. SCTorg Ethan Basch Bellinda King-Kallimanis FDA Oncology #PFDD #clinicaltrials journals.sagepub.com/doi/pdf/10.117…

Didn’t think I could respect and admire my friend John F. Rhodes more than I already do. But this video increased that 10x. John’s courage and determination have saved countless lives and, with this video, are touching so many others. youtu.be/V3rbevc-5Ac

Very well deserved!

Miss our May newsletter? Read more about our upcoming "critical questions" workshop on #pragmatictrials, a recent paper on ethics in machine learning, and a call for research in pediatric therapeutics. conta.cc/3Mb8kIp

ICYMI: A Duke Cancer study published in February indicates that about one in seven breast cancers detected by mammography screening are over-diagnosed. Marc D. Ryser, PhD, Assistant Professor of Population Health Sciences and Duke Mathematics, explains. Duke Department of Population Health Sciences

So excited to see this out to the public. Looking forward to all of the excellent input we’ll receive on this. #PatientReportedOutcomes #ClinicalTrials #measurement #ClinicalOutcomeAssessments

FDA announced public webinar for PFDD draft Guidance 3 on clinical outcome assessments. #COAs #clinicaltrials fda.gov/drugs/news-eve…

.Courtney Van Houtven (she/her) writes in a Health Affairs essay, that although she is well-versed in how family caregivers can advocate for their patient, she had trouble navigating the system when her sister with intellectual disabilities was in the hospital. Read more bit.ly/3BWmqdp

#isoqol2022 I learnt a new language & paradigm for PROM Validation in the outstanding #ISOQOL workshop: Arguing for Validity structured EB validation practice to advance PRO measurement. Many thanks Melanie Hawkins Nancy mayo @_SandraNolte Kevin Weinfurt Professor Richard H Osborne & Kara

Learning to use freudenfreude on social media is helpful for young users, explains recent graduate Eleanor Robb. researchblog.duke.edu/2023/06/14/shi…

Join Melanie Hawkins of Swinburne University of Technology, Rick Sawatzky of Trinity Western University, and Kevin Weinfurt of Duke University for this webinar on 16 August. Registration is still open! Details at pathlms.com/isoqol/webinar….

Kevin P. Weinfurt and Bryce B. Reeve discuss "Patient-Reported Outcome Measures in Clinical Research" with JAMA Statistical Editor Roger J. Lewis. Hosted on AMA Ed Hub™. ja.ma/3Pc4pz8