Key Workers Petition UK (@keyworkerpetuk) 's Twitter Profile
Key Workers Petition UK

@keyworkerpetuk

We are a new advocacy and campaign group for Key Workers with Long Covid. You can email us at [email protected]

ID: 1572210854866690048

linkhttps://chng.it/zbbCY6bY calendar_today20-09-2022 13:07:55

5,5K Tweet

749 Followers

712 Following

#ThereForME (@thereforme_uk) 's Twitter Profile Photo

Weโ€™ve been so moved seeing the #FundThePlan videos over the past few weeks. Now, we want to get our call to #FundThePlan out far and wide. Hereโ€™s a little something weโ€™ve put together for the campaign. Weโ€™d love your help making some noise with it ๐Ÿ™

Disability News Service (@johnpringdns) 's Twitter Profile Photo

The Labour government has launched a new cost-cutting drive aimed at Access to Work, which insiders fear could destroy the scheme and lead to disabled people being forced to quit their jobs. disabilitynewsservice.com/second-wave-ofโ€ฆ

Rachel (@rachelleese84) 's Twitter Profile Photo

Sarah Sackman KC MP - Iโ€™ve written to you several times about the delivery plan for ME. All 72 Lib Dem MPs agree it needs to be properly funded. Would be great to see my MP say the same #fundtheplan

Lucibee ๐ŸŒป (@_lucibee) 's Twitter Profile Photo

Thank you David Chadwick MP ๐Ÿ”ถ for signing this letter. #pwME need all the support they can get. #MEAwarenessMonth #StillTheSaME #ThereForME #MECFSDeliveryPlan #GreatestMEdicalScandal

Key Workers Petition UK (@keyworkerpetuk) 's Twitter Profile Photo

Thank you Tessa Munt MP ๐Ÿ”ธ and all those in the Liberal Democrats who support #LongCovid and #MECFS. Many ppl with LC also meet the criteria for ME/CFS diagnosis & with clinics closing all over the country, it is essential that the government Ashley Dalton MP listen to us #WorldMEDay

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

1/Our Rapid Response to recent BMJ Opinion piece suggesting reframing false โ€œillness beliefsโ€ have a primary role in recovery from ME/CFS This rapid response was supported by 92 medical & scientific experts researching, treating or living with ME/CFS. bmj.com/content/389/bmโ€ฆ

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

2/To be clear We would not consider Hopium and no research funding acceptable care for patients living with cancer, multiple sclerosis or MND/ALS, so why would we accept this for those suffering ME/CFS and Long Covid? We shouldnโ€™t. And we wonโ€™t.

Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

3/these outdated beliefs need to be buried w/the dinosaurs where they belong. Time for a paradigm shift in the way we view PAIS. Patients need proper hope in the form of funded biomedical research into PEM, drug therapy trials and multidisciplinary care Itโ€™s long overdue

Disability News Service (@johnpringdns) 's Twitter Profile Photo

The Department for Work and Pensions has unlawfully failed to respond to a request to see a secret paper on the departmentโ€™s safeguarding failures, casting doubt on a ministerโ€™s pledge to open DWP to โ€œpublic scrutinyโ€. disabilitynewsservice.com/dwps-unlawful-โ€ฆ

Disability News Service (@johnpringdns) 's Twitter Profile Photo

Disabled peers have told a committee of MPs that they face a โ€œdaily fightโ€ just to be able to do their job, because of their continuing battle against the access barriers within the House of Lords. disabilitynewsservice.com/disabled-peersโ€ฆ

Lucy ๐Ÿพ (@wildlifelucy) 's Twitter Profile Photo

Dan Wyke ๐Ÿฆ โžก๏ธ๐Ÿง ๐Ÿ”ฅ I wonder if by the time we get to this point, we're already so disillusioned that 'no help' was expected. What I can't forgive is that they offer no advice on how to stop the disease progressing. No warnings about over-doing it. No explanation of PEM. It's outright negligence.

Rachel Hext (@hextrachel) 's Twitter Profile Photo

The latest pay disputes are highly triggering for those of us with #LongCovid. Trade Unions are shouting about NHS staff not being valued with low pay, but we are still getting messages weekly about members who cannot access support for IHR, dismissal or phased returns. 1/2

Key Workers Petition UK (@keyworkerpetuk) 's Twitter Profile Photo

This ๐Ÿ‘‡ We are being contacted regularly by exasperated disabled people who are at their wits end because they arenโ€™t getting trade Union support at vital points in their #LongCovid journey. Itโ€™s disappointing at best and neglectful at worst. The RCN Unite the union: join a union UNISON Healthcare