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Today Chris McDermott and I have written to the Rt Hon Andrew Stephenson CBE MP, Minister for Health and Social Care, asking for an urgent meeting to discuss how NICE evaluates new treatments for #MND #ALS in light of their decision on Tofersen. UK MND Research Institute MND Association My Name'5 Doddie Foundation

A great opportunity for an enthusiastic graduate to contribute to the development of online materials as part of the Innovation Hubs for Gene Therapies Skills and Training provided by the #GTIMC at University of Sheffield Find out more here: bit.ly/3J3OyPR Application Deadline: 16 April

A new research project has launched as part of the Pre-Fellowship scheme, funded by the MND Association and administered by MND Scotland. Dr Heather Marriott will work on a project that aims to find early indicators of #MND progression. Read the full story below 👇

Meet our ✨ new ✨ Pre-Fellow🥼 Heather Marriott is further investigating if people with #MND #ALS can be grouped based on shared biology. This could help better predict disease progression and move towards personalised treatment options. Learn more: mndassociation.org/research/our-r…

QurAlis at #AAN24! QurAlis' head of development Emma Bowden, PhD, presented a poster on two Phase 1 clinical trials of QRL-101 in #ALS patients. QRL-101 is a first-in-class #Kv7 #precisionmedicine for ALS. #neurodegenerativediseases

Developing the next generation of researchers is vital in the fight against #MND #ALS. 👨‍🔬 They may hold the cure in their hands, but they just don’t know it yet. Next week we are holding #MNDEnCouRageUK to encourage, train and support the future MND research leaders. Watch

Honoured to be attending this event again this year. One of my highlights of 2023. See you there!

Two job openings in my group! Join my team at King's MND Centre Institute of Psychiatry, Psychology & Neuroscience as a: 1. **Research Fellow in Epigenetics**. Closing date: July 17, 2024. 🧠⚡🧬 Apply here: (kcl.ac.uk/jobs/091825-re…) 2. **Research Associate in Genetics**. Closing date: July 10, 2024. 🧠⚡🧬 Apply here:

To find effective treatments and make a difference for people living with #MND we need talented researchers. 👩‍🔬👨‍🔬 #MNDEnCouRageUK aims to develop the future leaders of MND research. Joining us? Start creating new connections by sharing that your attending!

The best work is when you really feel you’re making a difference. So as someone who, like far too many… Has lost family to the horrors of motor neurone disease. I could not be more proud to spend my week… Teaching MND Association scientists how to communicate their critical work.

.Kristiana Salmon gave us a whistle stop tour of her career so far, including all of the twists, turns and pivots at #MNDEnCouRageUK. She also gave some good advice: “Your career doesn’t always go the way you think, timing isn’t always perfect and you have to make the choices

On day 1 of #MNDEnCouRageUK we: 🧑‍🏫 learnt how to communicate research effectively 👂 heard about the impact of an #MND #ALS diagnosis 🧑‍💼 took time to think about careers and progression. We can't wait for day 2, where we will be joined by people affected by MND. See you

For all those interested in MND Research, please make sure you are following the MND Research X account. Lots of useful information and updates shared on here! Neuroscience Institute UK MND Research Institute King's MND Centre

Follow the new MND Research account MND Research. Easily one of the best sources of ALS/MND research information in the world.

Follow MND Research trusted source of MND/ALS information

Congrats to MND Research on another fantastic #MNDEnCouRageUK 👏🏻. Incredibly honoured to have been invited back this year, and beyond impressed with this year’s ECRs. This event is truly something special ✨

⁉️ Are you still following us?? ⁉️ A little reminder that you may not following us any more. As part of MND Association we share the latest #MND #ALS research from all over the world, as well as details about the research your support funds. 🔬 Follow us to stay up to date!

Celebrate the 10th anniversary of the #ALSIceBucketChallenge and take the plunge with ALS Canada! 🧊🎉 Ten years ago today, Aug. 6, to Dec. 31, 2014, over 260k Canadians took part in the Ice Bucket Challenge, raising awareness and $17.2 million for #ALS. Take on the challenge

“My work is driven by a great degree of hope and passion, and it was excellent to share this with those affected by MND.” Our #MNDEnCouRageUK event brings together the whole #MND #ALS research community. Read about Abby’s experience: mndresearch.blog/2024/09/12/sea…

NICE has made the decision to treat tofersen, a specialised genetic therapy for a small subset of people with #ALS #MND developed in the UK, as a general therapy, condemning it to fail their assessment. We must change that decision. Sign the petition: ecampaigns.mndassociation.org/page/151379/pe…