
Lupus Association
@ladaorg
Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
ID: 786729450247446528
https://LADAinc.org 14-10-2016 00:44:52
10,10K Tweet
5,5K Followers
5,5K Following


Early cancer detection means more hope, especially for patients with complex conditions like lupus. A majority in both the House & Senate now back the #MCEDAct Chuck Schumer Hakeem Jeffries @LeaderJohnThune@SpeakerJohnson finish the job and pass the bill!

This slide: The Patient Voice Needs to be Stronger!” Lupus Association


🌟Huge thanks to Fredy Pancca and the @RRF for the support to do this collaborative work. So excited to see it recognised at #EULAR2025!! Looking forward to the great work ahead with the @cSLE T2T Global team!


•The #MCEDAct is a game-changer for seniors, with majority support from both the House and Senate! Now, Senator Ashley Moody John Kennedy Senator Reverend Raphael Warnock need to cosponsor to make this a reality. Speaker Mike Johnson Steve Scalise Leader John Thune Senator Mike Crapo fightcancer.org/releases/legis…

Excited to present at BIO 2025 in Boston, June 16-19! Join me at the Storytelling Session on Tuesday, June 17, 2025 at 12:00pm to explore how biotech is tackling global challenges—because the world can't wait. #BIO2025 Lupus Association convention.bio.org


Happy to see so many people stopping by our poster, presented by our Chair, Jeanette Andersen! Come to poster L340 and learn about some of the insights of our Living with Lupus Survey about doctor-patient relationship from the patient's perspective. #EULAR2025



The #LADAOrg Team is excited to be here at #BIO2025 to bring the #PatientPerspective and partner with other stakeholders to advance global #Innovation that improves lives. Kudos to Biotechnology Innovation Organization for developing a great program and our dear friend Paul for being a great sport! 💜


Please join us in urging Rep. Mike Kelly to cosponsor #HR3164. Seniors in Pennsylvania and across the country deserve access to prompt, essential care from pharmacists. Learn more about #HR3164 here: bit.ly/ecaps-119th-co… luis National Infusion Center Association (NICA) Aimed Alliance CSRO


Thank you to Biotechnology Innovation Organization and OshmanAdvocate for giving me the opportunity to share my #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important to people like me. Lupus Association


✅ Check my visual summary for the American College of Rheumatology #recommendations for the screening 🔎 and treatment 💊 of #LUPUS #NEPHRITIS ⬇️ What would you change? Please DO let me know if an update 🔄 is needed 👍


Check out the video from #BIO2025 from my interview with OshmanAdvocate about the importance of the #patientperspective being included in research, health, regulatory and public policy. Biotechnology Innovation Organization Lupus Association linkedin.com/posts/kathleen…

We are one of 77 groups urging Rick Scott and@SenAshleyMoody to reject proposed federal cuts to health care and SNAP. Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. floridapolicy.org/posts/77-group…

Please join us in urging Rep. Linda Sánchez to cosponsor #HR3164. Seniors in California and across the country deserve access to prompt, essential care from pharmacists. Learn more about #HR3164 here: bit.ly/ecaps-119th-co… Global Healthy Living Foundation


Louisiana is facing high drug prices, thanks to PBMs’ control over prescription costs. Governor Jeff Landry, please continue to push for #PBM reform, ensuring compensation isn't linked to drug prices to reduce the financial burden on patients. #LALeg


The U.S. House of Representatives will vote any day now on a bill that will kick millions off Medicaid and increase health care costs. Before they vote, urge your representative to vote NO! Thank you American Cancer Society Cancer Action Network for your leadership on this crucial issue! act.fightcancer.org/a/now-is-the-t…